Hi Ngorman25, so sorry younjad to battle the CDiff. I have had CDiff more times then I want to know. Since my daughter was born in 1992. I had it for a year on and off. Then got it again after a bout of antibiotics. Then years later I started getting the symptoms really bad with diarrhea and bad cramping for weeks on end. The tests were Negative which I could not believe. I would be put on Flagyl and sooner or later it would go away. This was three years of suffering with this. Running to the bathroom after eating and always needing to know where the bathrooms were near. Finally within the last month after months of on and off symptoms which I was told I most likely have IBS, I thought well I have to stop this diarrhea so I started taking Imodium. Total mistake. I knew in my own mind I had CDiff but since it kept coming back neg I went with the IBS. Total difference though between IBS is people do not go through the night. I was going about 18 to 20 times a day and night. . I was exhausted and getting very sick. Fever. Etc Felt like I had the flu. Taking the Imodium made CDiff go crazy. Went to ER and they dismissed it as the flu. Well, that was enough, as I was suffering intensely with a 102 to 103 fever for weeks. With the worst pain and diarrhea. Finally my dr said go to Orlando Health Hospital, ASAP. I walked in feeling quite sick and thought I am either going to die because they are Not getting positive test results and then they don’t treat or these people are going to help me. I had had it. Finally, the wonderful ER doc sent me up to cat scan for a scan of my colon. Then he wanted to culture of my stool which was what I would refer to green tea of the worst kind. The doc came quickly innafter the tests and said you have a bad case of colitis with CDiff and you are being admitted to critical care. Finally the test came back positive. Since I have chronic CDiff often times the tests come back negative. They put me on Flagyl and Vanco right away. I was vomiting everything I ate and still going about 10 times an hour. Horrible. After almost two weeks in the hospital I was able to eat a little which is only carb type food, everything liquid I would throw up right away. Bread stayed down. Went home on vanco now on for three weeks. Just now functioning more normal but still not perfect. I know once I go off this vanco the CDiff will return. So I have opted for the Fecal transplant. My docs have all recommended it and I am now in the first part of the process of getting ready for it. I have read of the amazing success. But wanted to ask those who have had it have you had any weight gain the transplant!!!! I would love to hear from people who have done this. I am super excited to know there is a cure as I have been suffering for a long time with many episodes of long term hanging in bathrooms and being in chronic pain. Not my favorite place to be. Let alone having to eat almost nothing to try and feel better. Thanks for any feedback and I truly feel for those who have to endure the horrible world of CDiff. Best of luck to all as there is help out there.

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@suzannedee Hi, suzannedee, today marks 4 weeks post fmt. I wish I had words of encouragement for you, but I don't! Up until two days ago, I felt really good. But on Wednesday night I started having some mucus discharge. I am still having a lot of mucus and know I have to contact my gastro doctor. I am terrified! I haven't even mentioned it to my family yet. I am so done.

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I was actually taking a proton pump inhibitor (omeprazole) for 6 mo before and while taking clindamycin. I had been wanting to get off it so when I started having my “issues” before I was diagnosed with c diff I just quit the omeprazole cold turkey. I believe that it can contribute to getting c diff as it blocks the acid production. I have changed my diet since so not having the acid reflux as much. I am 3 weeks post Dificid and so far ok. 🤞 I must say that I worry every day that it is going to come back though.

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Hi Ngorman25, so sorry younjad to battle the CDiff. I have had CDiff more times then I want to know. Since my daughter was born in 1992. I had it for a year on and off. Then got it again after a bout of antibiotics. Then years later I started getting the symptoms really bad with diarrhea and bad cramping for weeks on end. The tests were Negative which I could not believe. I would be put on Flagyl and sooner or later it would go away. This was three years of suffering with this. Running to the bathroom after eating and always needing to know where the bathrooms were near. Finally within the last month after months of on and off symptoms which I was told I most likely have IBS, I thought well I have to stop this diarrhea so I started taking Imodium. Total mistake. I knew in my own mind I had CDiff but since it kept coming back neg I went with the IBS. Total difference though between IBS is people do not go through the night. I was going about 18 to 20 times a day and night. . I was exhausted and getting very sick. Fever. Etc Felt like I had the flu. Taking the Imodium made CDiff go crazy. Went to ER and they dismissed it as the flu. Well, that was enough, as I was suffering intensely with a 102 to 103 fever for weeks. With the worst pain and diarrhea. Finally my dr said go to Orlando Health Hospital, ASAP. I walked in feeling quite sick and thought I am either going to die because they are Not getting positive test results and then they don’t treat or these people are going to help me. I had had it. Finally, the wonderful ER doc sent me up to cat scan for a scan of my colon. Then he wanted to culture of my stool which was what I would refer to green tea of the worst kind. The doc came quickly innafter the tests and said you have a bad case of colitis with CDiff and you are being admitted to critical care. Finally the test came back positive. Since I have chronic CDiff often times the tests come back negative. They put me on Flagyl and Vanco right away. I was vomiting everything I ate and still going about 10 times an hour. Horrible. After almost two weeks in the hospital I was able to eat a little which is only carb type food, everything liquid I would throw up right away. Bread stayed down. Went home on vanco now on for three weeks. Just now functioning more normal but still not perfect. I know once I go off this vanco the CDiff will return. So I have opted for the Fecal transplant. My docs have all recommended it and I am now in the first part of the process of getting ready for it. I have read of the amazing success. But wanted to ask those who have had it have you had any weight gain the transplant!!!! I would love to hear from people who have done this. I am super excited to know there is a cure as I have been suffering for a long time with many episodes of long term hanging in bathrooms and being in chronic pain. Not my favorite place to be. Let alone having to eat almost nothing to try and feel better. Thanks for any feedback and I truly feel for those who have to endure the horrible world of CDiff. Best of luck to all as there is help out there.

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Has anyone recovered fully from CDiff? I ended up with anal fissure from cdiff all the diarrhea. I’ve had biopsy from stomach, small intestines, and colon and they are negative but my stomach cramps, a lot of gas , bloating, and diarrhea. I’m tired of feeling bad and have to stay close to a bathroom. Any Hope out there that it will get better?

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Forgive me…I know nothing about what you have…just trying to be helpful. I have seen these two things help the gut wonderfully. Back stories on both if you want to know….but…..won't bother you with details. Eat fresh papaya. The real fruit. Every day. Also, and imperative….use bone broth. Most easily used in powdered form, and must be used with vitamin C. Put a few tablespoons of it into juices, smoothies, soups, teas,….do this at least twice. a day. It straightens out a messed up colon. Try it for a few weeks and see what happens. Get bone broth at a health food store. My colon cannot be without it. Research it. Fabulous for healthy immunity and leaky guy. Best of luck to you…. Lori Renee

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@sandyabbey @pines @ngorman25 and whoever else is worried about reinfection..!😩. My mother in law had CDiff 2 years ago. She had been on antibiotics for awhile for recurrent UTI’s. Well, she is in the hospital now with it again and has not been on antibiotics. I had my FMT on Feb 28 and for the last 2 weeks I am finally feeling better. I haven’t seen my MIL in over a month. Have your docs told you that you will forever be more susceptible to getting c diff again regardless if you have been on antibiotics? I’m concerned about the future of getting c diff again out of the blue like she did as well as concerned that I could have reinfected my MIL even though I took all the safety precautions. Other family members are taking care of her now and I will definitely stay away from her. This makes me so sad because I would like to help her but I can’t. Do you all feel like you are the plague, just moments away from infecting someone? I feel like no matter how clean I make my house, c diff germs are lurking. 🤦‍♀️

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@nettecook Oh I'm so sorry to hear about your mother-in-law. Do you also think you got it from her? I've not heard of any other family members giving it to each other. But I do understand how you feel about feeling like "you are the plague." I had people stay away from me for fear of getting it. Hand washing is really the key. I'm happy to hear that you are doing better after your FMT. Will your MIL be having FMT?

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Forgive me…I know nothing about what you have…just trying to be helpful. I have seen these two things help the gut wonderfully. Back stories on both if you want to know….but…..won't bother you with details. Eat fresh papaya. The real fruit. Every day. Also, and imperative….use bone broth. Most easily used in powdered form, and must be used with vitamin C. Put a few tablespoons of it into juices, smoothies, soups, teas,….do this at least twice. a day. It straightens out a messed up colon. Try it for a few weeks and see what happens. Get bone broth at a health food store. My colon cannot be without it. Research it. Fabulous for healthy immunity and leaky guy. Best of luck to you…. Lori Renee

Jump to this post

@sandyabbey @pines @ngorman25 and whoever else is worried about reinfection..!😩. My mother in law had CDiff 2 years ago. She had been on antibiotics for awhile for recurrent UTI’s. Well, she is in the hospital now with it again and has not been on antibiotics. I had my FMT on Feb 28 and for the last 2 weeks I am finally feeling better. I haven’t seen my MIL in over a month. Have your docs told you that you will forever be more susceptible to getting c diff again regardless if you have been on antibiotics? I’m concerned about the future of getting c diff again out of the blue like she did as well as concerned that I could have reinfected my MIL even though I took all the safety precautions. Other family members are taking care of her now and I will definitely stay away from her. This makes me so sad because I would like to help her but I can’t. Do you all feel like you are the plague, just moments away from infecting someone? I feel like no matter how clean I make my house, c diff germs are lurking. 🤦‍♀️

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@nettecoo, @sandyabbey @pines @ngorma25 I am sorry to hear of two cases of C diff in one family. Something we all dread. I have been super super concerned about infecting others especially my kids and grandkids and getting reinfected myself. I finally got appointments with an infectious disease specialist and a GI doctor who specialises in C. Diff. I asked a lot of questions about contagion. Here is what they both independently told me:
1. I am only contagious when I have active diarrhea. If i am colonized but do not have active diarrhea, I am not contagious.
2. As for my apartment and the spores lingering on counters etc. They said give it all a good cleaning, especially the toilet and surrounds, with a product that specifically works against C Diff (the K list at EPA website tells you which they are) , and then it is okay for any one to come to may apartment unless they are immune compromised. My little grandchildren, even the baby , are fine, they said.
3. The infectious disease expert said that C. Diff spores are spread all around and that the vast majority of people are not immune compromised and so are not made sick by them.

As for your question about whether we can get C Diff again without even taking an antibiotic –the doctors thought i probably would not get it again unless I took an antibiotic but they emphasized that I have underlying health issue (two markers in my blood that makes me somewhat immune compromised) . That made me wonder if maybe i could independent of taking an antibiotic. I have come to understand that it is really important whether or not there is some underlying condition that increases risk. I supposedly have that.

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@pines I don’t think I got it from her as so much time had passed. However, maybe it was dormant in me? I did take care of her when she was sick. I was on that antibiotic for 10 months and got C diff 2 weeks after getting off of it. My husband thinks I’m being a little too careful but I do not want to go through this again. If it lives in surfaces.. well, surfaces are all over your house. So much of this is trial by error and a mystery!

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@nettecoo, @sandyabbey @pines @ngorma25 I am sorry to hear of two cases of C diff in one family. Something we all dread. I have been super super concerned about infecting others especially my kids and grandkids and getting reinfected myself. I finally got appointments with an infectious disease specialist and a GI doctor who specialises in C. Diff. I asked a lot of questions about contagion. Here is what they both independently told me:
1. I am only contagious when I have active diarrhea. If i am colonized but do not have active diarrhea, I am not contagious.
2. As for my apartment and the spores lingering on counters etc. They said give it all a good cleaning, especially the toilet and surrounds, with a product that specifically works against C Diff (the K list at EPA website tells you which they are) , and then it is okay for any one to come to may apartment unless they are immune compromised. My little grandchildren, even the baby , are fine, they said.
3. The infectious disease expert said that C. Diff spores are spread all around and that the vast majority of people are not immune compromised and so are not made sick by them.

As for your question about whether we can get C Diff again without even taking an antibiotic –the doctors thought i probably would not get it again unless I took an antibiotic but they emphasized that I have underlying health issue (two markers in my blood that makes me somewhat immune compromised) . That made me wonder if maybe i could independent of taking an antibiotic. I have come to understand that it is really important whether or not there is some underlying condition that increases risk. I supposedly have that.

Jump to this post