C. difficile – Are your guts ever normal again?

Posted by sue6408 @sue6408, Jan 27, 2019

Does anyone know any body that has recovered from c.diff (guts back to pre-c.diff status ) . I have been negative for a year and still have bloating every time I eat anything and sporadic diarrhea. I need maternity clothing to eat and be comfortable. I have 0 appetite since I was initially infected.I am on creon 36,000 . this helps some what with bloating,I take papya&pineapple enzymes not helping, and floraster 2xday not sure about that.I have tried the FODMAP diet, I avoid many foods on that diet. I am seeing an RD, just finished an elimination diet with her. If I eat I bloat there for I am. Bottom line…are my guts ruined forever ?

Thank you for responding. I could try that . I have even tried beeno but that didn’t help either. I had the same infection for 10 months. I tried difficed , but tested positive 2weeks later. Next was vanc and that killed it . Every time I get the runs for 3 or more days, I get a stool culture. So far everything is negative. I just want to feel normal and enjoy life again.

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@sue6408

Thank you for responding. I could try that . I have even tried beeno but that didn’t help either. I had the same infection for 10 months. I tried difficed , but tested positive 2weeks later. Next was vanc and that killed it . Every time I get the runs for 3 or more days, I get a stool culture. So far everything is negative. I just want to feel normal and enjoy life again.

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@sue6408 I just bought Gas-X yesterday and I'm going to try that and see if it helps with the terrible gas I wake up with almost every morning. It says it also helps with bloating so you might want to try that too.

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@pines

@sue6408 I just bought Gas-X yesterday and I'm going to try that and see if it helps with the terrible gas I wake up with almost every morning. It says it also helps with bloating so you might want to try that too.

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Thank you for responding. Have tried this without good results. I hope it works for you.It seems people don't get better after c. diff.

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thanks

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I feel the same finished vancomycin and now I already have been in bathroom 10-15 times a day just moved to Florida got here last night that was interesting took forever I am
Just not eating so sick of the pain and bathroom my 5th gi dr another idiot sorry didn’t even schedule me for a follow up

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I feel your pain. It just seems the Drs. Don’t know how to heal our guts after C. Difficile. I have been on the lo fodmap diet and I know any bean,pea or cabbage is off the menu. Trying the low fodmap might help identify culprits that cause runs and your worst bloating. I never thought I would have a box of diapers hidden in the back of my closet at my age.

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So I am wondering if anyone here has had the fmt? I am headed in that direction after having had my 4th round of antibiotics. According to my gastro doctor, that is the next step. He says it has a 90% cure rate. Anyone with thoughts?

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@ngorman25

So I am wondering if anyone here has had the fmt? I am headed in that direction after having had my 4th round of antibiotics. According to my gastro doctor, that is the next step. He says it has a 90% cure rate. Anyone with thoughts?

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@ngorman25 Our year 2018 sounds much the same. Except my Cdiff started in the spring after taking Clindamycin. You are just one year older than I am. I also took Flagyl first, then 10 days on Vanco and after the 3rd bout, I did the Vanco taper for 6 weeks. Finally after my 4th bout, I took Dificid (fidaxamicin). I wish I would have taken it after Flagyl didn't kill all the Cdiff spores. Prior to approving Dificid, my insurance asked if I had taken Vancomycin. They approved it, but the co-pay was still almost $1,000. It ONLY kills the Cdiff spores and does not kill your good bacteria. If I were you, I would ask your doctor about taking it before I would do the FMT. I have NOT had a reoccurance since taking it last October. I knock on wood every time I say that or write it. I also take Florastor or another S. Boulardii probiotic every single day. If you are considering FMT, you might google Open Biome and read up of the capsule form of FMT. The cost is $635 and I'm not sure if my insurance would pay for it. But if I have a 5th bout, I'm going to ask my GI to order it.

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@ngorman25

So I am wondering if anyone here has had the fmt? I am headed in that direction after having had my 4th round of antibiotics. According to my gastro doctor, that is the next step. He says it has a 90% cure rate. Anyone with thoughts?

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I have not had a reoccurring infection ,just the same one for 10 months. (I am testing negative but still feel awful ) I have researched FMT and that would have been my next step. You can take a capsule or have it done thru colonoscopy.

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Thanks Sue! I think I probably will have the fmt instead of trying dificid. I really don't want to take any more antibiotics than I have already. I had several antibiotics all last year for different reasons. I was "ripe" when I got an abcessed tooth in August and the dentist prescribed clindamycin, which finished me off! Then I got the "bastard bug" ,(cdiff). My gastro doctor called it that. I have had 4 flare-ups since September. I just dropped off a specimen, again, and am pretty sure it will be positive as I have had some diarrhea since Saturday. That's why I asked if anyone had any knowledge of fmt.

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@bluebanana

I'm suffered for 7 days with what I thought was a bad case of the stomach flu until I went to my family doctor and they requested a stool sample and found from that that I had c-diff I believe this is the sickest I've ever been in my entire life

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hi You all, I just am having my first bout with C.Diff. It is quite an experience. I am feeling kind of paranoid about the spores from C. Diff which apparently linger on even after you are feeling okay. What do you all know about disinfecting your home? Do you all do a lot of this?My doctor thinks you can't reinfect yourself. Have you heard that? Would appreciate any help.

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@pines

@sakota Cdiff spores can live for months on things. You could have picked it up in a doctors office, nursing home or hospital while visiting someone. It's hard to tell. It is not airborne though. Hand washing is key to an infected person. I'm happy to hear that you have not relapsed. Stay well and yes, keep the faith as you battle lung cancer.

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Ah i see you talking about the spores. I am just in my first episode if C.Diff and right now what is upsetting me most is the fear that I could reinfect myself with the spores in my own apartment. Do you know if that is possible?

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@annapocono

Ah i see you talking about the spores. I am just in my first episode if C.Diff and right now what is upsetting me most is the fear that I could reinfect myself with the spores in my own apartment. Do you know if that is possible?

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@annapocono Cdiff spores can live for months on counters, light switches & etc. What's key is to clean with bleach and wash your hands really good after every trip you make to the bathroom. I had never even heard of Cdiff before I got it last spring after taking Clindamycin. Unfortunately, I went for almost two weeks before I went to the doctor. At first I thought I had the flu… and then I thought it was Ecoli. What RX are you taking currently? I took Flagyl, then two rounds of Vancomycin and finally Dificid after my 4th bout last October. It's a difficult thing to cure. And there is more than one strain of Cdiff. Are you also taking a probiotic? My gastroenterologist has me taking Florastor or any probiotic with S. Boulardii in it. S. Boulardii can survive the acid in our stomachs and goes to work in our GI tracts where the Cdiff spores thrive. I will take this for ever and really think it's helped me. Wishing you well and hope this is your first and last Cdiff episode.

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@bluebanana

I'm suffered for 7 days with what I thought was a bad case of the stomach flu until I went to my family doctor and they requested a stool sample and found from that that I had c-diff I believe this is the sickest I've ever been in my entire life

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I came across this subject and thought I'd pass on some information I learned when my husband had c-diff. I apologize if this has already been discussed. My husband was blind, had terminal cancer, and then contracted a very bad case of c-diff. It was a very difficult time for us, made worse by the high cost of the medication. He needed three separate courses of medication because it wouldn't clear up. Someone mentioned trying a compounding pharmacy and the cost was a small fraction of the other two courses. Hopefully someone else can save considerable money from my experience.

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@bluebanana

I'm suffered for 7 days with what I thought was a bad case of the stomach flu until I went to my family doctor and they requested a stool sample and found from that that I had c-diff I believe this is the sickest I've ever been in my entire life

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Good morning. I was diagnosed with c-diff yesterday, after about 8 months of symptoms, but i never went to the dr. I feel that i got it from all the UTIs that I have had. I have also had strep twice this last year. They started me on vanco 125 mg for 10 days. I've only taken two doses thus far. But I'm fearful of recovering and what damage I have caused to my gutt and colon. I am 46 and hate to think I have to deal with all the repercussions I've caused. I'm hoping this will heal me, then i need to go to Dr to find out why I am getting so many UTIs.. i haven't get cipro for them. I have had them bad enough they turned into a kidney infection. I appreciate all the stories and comments, helps to know I'm not alone.

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