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I am a 76 year old women and have had this condition for almost a year. it is getting worse everyday. been to many doctors and not one of them has heard otf it, I am getting desperate
@mamajomclane Hi, what I have learned is that the MLS laser stands for multiwave locked system. I first heard about it in another support group where someone was having good results for her BMS. Basically she said is not given in the mouth though-it’s all over-especially in her lymphatic system. She said she had 6 treatments and was having better success in 6 weeks than in all the 6 years of pills and potions.
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@meadowhouse, wow that is impressive. I will look for more detail on the site if you have posted it. Thank you!
Hi everyone. So, what's the story with this MLS laser? Also, does amitriptyline, or calcium channel blockers have any success with other BMS sufferers ? So far, after three plus years, nothing has worked ! Regards Stu
@ristu Hi, Stu, amitriptyline and calcium channel blockers have not helped me. I have had BMS or Atypical trigeminal neuralgia since 2004 due to a dental incident. The only think that helps me is Klonipin, Cymbalta, and ambien for sleep. I also do yoga and see a chiropractor on a regular basis.
Hi Lauren. So, clonazepam has not work for me at all. I have not tried amitriptyline on calcium channel blockers yet. Just was curious, if you had tried that. I need to look into the laser treatment. Wondering if that will bring any relief, and have any side effects? Regards Stu
@ristu, My chiropractor is quite knowledgeable about lasers and uses one in his office. The next time I see him, I will ask him about the MLS laser. I have heard that some people respond well to amitriptyline. I can't use it because it causes my gums to throb worse than before application. Do you have BMS or Trigeminal neuralgia? Some people are diagnosed with both.
Hi Lauren. I have BMS. I'm curious as to how the action of the laser Works. Does it numb the nerves? Does it destroy the nerves? Does the laser have any long-term side effects? How long does it last, meaning is it effective for long-term? I appreciate any efforts. Thanks Stu
Hi everyone. So, I see there's a number of studies that are available on the internet on what they call a low level laser. The results in some of the cases appear to be an 80% Improvement in the pain management for burning mouth syndrome. If anyone has had this treatment, and is free of pain more than three months, I'd like to hear from you. Regards Stu
@ristu and anyone else– about 1 year ago I read that a doctor had used some kind of "deep brain stimulation" (or deep brain something), which had 100% success in relieving BMS, and caused no side effects. There was a published paper on his research. He was in a university in the mid-southeast. At the time I tried to look him up but did not find him. Since BMS is neurological, this approach would seem to make sense. Anyone else ever heard of this?
Hi @ristu, you may have noticed that I merged your post to this existing discussion on burning mouth syndrome so that other people with BMS experience can see your post. Simply click VIEW & REPLY in your email notification to find your post.
Back to you @ristu. Have you been able to find research on it's effectiveness?
Please add me to any information regarding burning mouth syndrome.
OK thanks. I have found a few small studies that had 80 % success rate. So,,it has some promise. Regards,Stu
Hello Burning Mouth Syndrome discussion members, you may have noticed I moved the Burning Mouth Syndrome from the Just Want to Talk group to the Skin Health group as Mayo Clinic is classifying BMS in dermatology.
I'd also like to take this time to check in on the members of this group to see how they are handling their symptoms. @mollyquilter @lauren123 @mamajomclane and @donnaclabaugh how are you all handling your symptoms?
@ethanmethanmcconkey, could you inform us as to why Burning Mouth syndrome has been moved to dermatology?
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