Has anyone been told they have burning Mouth Syndrome ?

@lexonpark, I've moved your post to this existing discussion called "Burning Mouth Syndrome. Mine is very severe." I did this so you can easily connect with other members like @rgpadilla @lauren123 @sheetrock0131 @bonitav @judybl1 @twentyfour7 @ristu and others who have experiences with burning mouth syndrome.

Discussions about burning mouth syndrome like this one can be found in the Skin Health group https://connect.mayoclinic.org/group/skin-conditions/

Here are some related discussions:
– Burning Mouth Syndrome (BMS): Anyone found any relief? https://connect.mayoclinic.org/discussion/burning-mouth-syndrome-2/
– burning mouth syndrome,or bms https://connect.mayoclinic.org/discussion/burning-mouth-syndromeor-bms/

Lexonpark, have you been diagnosed with burning mouth syndrome recently? How do you manage the pain?

I am sure I have had this for years. I saw a tongue specialist a few years ago. He reccomended Klonpin, I was already on Klonpin, he just increased the dose. I also go for IVIG treatment. autoimmune deficiency. I spoke with my hematologist (thinking he had patients on chemo who got month sores). He gave me an RX for a mouth treatment. Lidocaine, Bendryl,Nystatin and Mylanta. You have to purchase it from a compound Pharmacy. I have used it 4 times a day for one week. Finally feeling better.

I was diagnosed with Burning Mouth Syndrome and Central Sensitization at Mayo Clinic a few years back. Now I feel it’s in my throat as its sore 24 hours a day. Does anyone experience this in their throat? Any suggestions?

I got it but come to find out it is from a med I was taking and now I am fine . Topamax was the med

I am very sorry for you to be going through so much pain. Have you been to a dentist? They seem to be much more familiar with BMS. My son did go to a doctor with this condition but after multiple tests there was no diagnosis. When he mentioned his burning mouth to a dentist Magic Mouthwash was prescribed. It is a compound made up by a pharmacy and the ingredients are used to suit the patient. It is very important that the mouthwash is prescribed specifically for you. My son took a dose of the mouthwash in the morning and evening after he brushed his teeth and he was cured. This may seem very simplistic as your condition seems much more severe. One ingredient sometimes used in the mouthwash is steroids which I would be very careful with as my daughter is now going through the extremely painful and debilitating condition of Topical Steroid Withdrawal which is caused by over use of steroids which she was prescribed by her doctor for eczema.