I also am afflicted with this nasty syndrome. I am 68 years of age and I am a mostly retired court reporter. First six months I tried to figure out on my own thinking it was an allergy. My quality of life quickly went downhill so began seeing doctors including ENT, neurologists X 2, allergist, and dental experts, had lots and lots of blood tests and several MRIs of brain and entire spine. I was treated very well and told what I don’t have. A woman doctor (not sure of her exact qualifications) in Toronto specializes in researching and treating BMS tells me I have Burning Mouth Syndrome and prescribed Clonazapam at night (low dose) along with the Lyrica my ENT specialist had prescribed. Those drugs have heavy side effects and are addictive and only covered up the problem so I chose not to take them for more than 2 or 3 months. (They did give some respite from the pain)
I am now taking “bits” of edible marihuana(once a day) to cover the pain. It helps the pain in my lips and helps to relax me - which also assists my desperate and grumpy mood. I take as little as possible and not until needed. My personal syndrome symptoms, along with the mouth pain, includes a large dull headache and in my throat a constant salivating and swallowing and involuntary contracting of tissues on the right side of throat only. This last part is not assisted by the marihuana. Lucky for me,when I close my eyes to sleep it all stops. When I wake I’m fine except for sometimes headache will cause me to get up, but my mouth is all fine — once up - it all starts again — worse after lunch and worse still in the evening. I had my dentist fashion a mouth guard for me that I wear during the day - helps stop the “movement” of my tongue inside my mouth when it is moving around and helps me to “quiet” my mouth and throat down.
It helps me stay away from stressful situations and to lie down and close my eyes to make it stop - eyes must be closed. I learned the mouth guard trick from a lady on line. I hope this assists and or adds to research in this area —- one day at a time- bmc

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