Burning Mouth Syndrome. I have it very severe.

Posted by mygrigio @mygrigio, Aug 5, 2011

I am a 76 year old women and have had this condition for almost a year. it is getting worse everyday. been to many doctors and not one of them has heard otf it, I am getting desperate

Hi Lauren
You mentioned in an earlier post that klonopin and laser are the only things that help with your BMS.
I am very interested in hearing more about the laser therapy. I have found a dentist who has an MLS laser
and I’m thinking about trying it on my mouth.
Can you tell me more about your experience with laser treatment?

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@patriciao

Does anyone use medical marijuana for Sjögrens? I see in Illinois it is one of the conditions listed for which medical marijuana can be prescribed.

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@meadowhouse

Hi Lauren
You mentioned in an earlier post that klonopin and laser are the only things that help with your BMS.
I am very interested in hearing more about the laser therapy. I have found a dentist who has an MLS laser
and I’m thinking about trying it on my mouth.
Can you tell me more about your experience with laser treatment?

Jump to this post

I'don't like to know also what is involved, and if you are feeling better. Regards,Stu

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@ristu

I'don't like to know also what is involved, and if you are feeling better. Regards,Stu

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I'd like to know

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@meadowhouse

Hi Lauren
You mentioned in an earlier post that klonopin and laser are the only things that help with your BMS.
I am very interested in hearing more about the laser therapy. I have found a dentist who has an MLS laser
and I’m thinking about trying it on my mouth.
Can you tell me more about your experience with laser treatment?

Jump to this post

@meadowhouse, What I have learned is that some people respond well and some do not. I don't know what an MLS laser is. I purchased a Terraquant laser on line after it seemed to help. The important point is that it needs to be used daily. Only then will you know if it helps. Good luck and keep me posted, please.

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@meadowhouse

@mamajomclane
I am currently trying to make an appointment with a chiropractor near me who has the MLS laser. I will let you know how I make out. There is another chiropractor who has a cold laser unit but it is different than the MLS one I had read some positive things about.

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@mamajomclane, what is a MLS laser?

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Hi everyone. So, what's the story with this MLS laser? Also, does amitriptyline, or calcium channel blockers have any success with other BMS sufferers ? So far, after three plus years, nothing has worked ! Regards Stu

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Hi @ristu, you may have noticed I moved your post to this existing burning mouth syndrome discussion so that others can follow along on the MLS laser discussion.

Looking back, I see it was @lauren123 originally brought up MLS treatment, so while we wait for her to respond, I wanted to share this information for everyone to read on MLS treatment.

Here is a study on MLS Laser therapy's effectiveness: https://www.ncbi.nlm.nih.gov/pubmed/21142725

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@ethanmcconkey

Hi @ristu, you may have noticed I moved your post to this existing burning mouth syndrome discussion so that others can follow along on the MLS laser discussion.

Looking back, I see it was @lauren123 originally brought up MLS treatment, so while we wait for her to respond, I wanted to share this information for everyone to read on MLS treatment.

Here is a study on MLS Laser therapy's effectiveness: https://www.ncbi.nlm.nih.gov/pubmed/21142725

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Ok. Thanks for the link. I will check it out. Regards,Stu

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@lauren123

@meadowhouse, What I have learned is that some people respond well and some do not. I don't know what an MLS laser is. I purchased a Terraquant laser on line after it seemed to help. The important point is that it needs to be used daily. Only then will you know if it helps. Good luck and keep me posted, please.

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@lauren123 Thanks so much for your info on the type of laser you have. I will let you know how I make out once I start on the MLS laser therapy I mentioned.
Are you still using your laser every day?

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@lauren123

@mamajomclane, what is a MLS laser?

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@mamajomclane Hi, what I have learned is that the MLS laser stands for multiwave locked system. I first heard about it in another support group where someone was having good results for her BMS. Basically she said is not given in the mouth though-it’s all over-especially in her lymphatic system. She said she had 6 treatments and was having better success in 6 weeks than in all the 6 years of pills and potions.

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