Mayo Clinic Connect
I am a 76 year old women and have had this condition for almost a year. it is getting worse everyday. been to many doctors and not one of them has heard otf it, I am getting desperate
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I moved your message and combined it with this existing discussion. I did this as I thought it would be beneficial for you to connect with the many members who are discussing much of what you are experiencing. Simply click VIEW & REPLY in your email notification to find your post.
How are you managing your symptoms, @jshdma?
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Burning mouth syndrome is a painful affliction, apparently with no treatment and certainly no cure. Since it is defined as a neuropathy, has anyone ever asked a neurologist about it? I have had it for 4-5 years: restricts eating, deformed my mouth, changed my life and nlo hope of ever improving.
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Welcome to the group!
I think you will find everyone to be very supportive and compassionate.
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@meadowhouse Thank you. My question is: since BMS is known to be a "neuropathy," has anyone ever asked a neurologist for help? The Academy of Neurology posts dozens of articles about BMS, but I do not see any that offers a cure.
I liked your post. So all respond. That is a good idea, but I've never attempted to talk to a neurologist. I've had burning mouth syndrome almost four years now. Also, another idea is to be hypnotized. Another idea is to try amitriptyline. It's an old day antidepressant drug.
The thought is the drug will shut off the neuron transmitter from the throat to the brain and stop the discomfort in the throat. It is taken in a very low dose with virtually no side effects.
@jshdma Yes, I currently see a Neurologist who is also a pain management doctor. Everything he has recommended so far has not worked(amitriptyline)or
didn’t agree with me and had to stop(Tramadol and Topamax). Since I have had bms for 8 years 24/7 I have tried all the other meds everyone else has mentioned (Gabapentin, Clonazepam, etc. to no avail.
I think I’m going to ask him about B12 shots every month as someone suggested.
Here’s hoping you will find something that helps🙏🏻
Hi. So I read your discussion. I've tried everything you have mentioned so far. You might want to try calcium channel blockers. Also, you might want to try hypnotism. Regards stu
@meadowhouse It has been suggested: go to "pubmed" a government website, enter "burning mouth syndrome." There are found 100s of scientific papers, written by doctors who have treated BMS. I was directed there to find some successful treatments. But it is a big job to read so many long papers. Has anyone tried this?
@ristu Thanks for your suggestions. Have you tried Calcium channel blockers and did it help. I am not familiar with this?
@ristu calcium channel blocker is a heart or BP med, I think.
Hi. Yes it was suggested to try calcium channel blockers. However, I do believe they are for heart issues. Regards Stu
Has anyone noticed that the burning mouth syndrome gets worse with cold weather versus warmer weather? Just today, after having a cold snap for a few days my burning mouth syndrome came back with a vengeance. Stu.
@ristu Never noticed that burning moth syndrome is worse in the cold weather. It is worse in the morning. If anyone wants to do the work, the NIH has a collection of dozens of scientific articles on BMS, It was recommended to me to read them and find a doc who treats it successfully. I have not done that yet.
OK then….Thanks !
I have suffered from this condition for 9 years. I take 0.5 mg of Xanax, which help some. It also causes dry mouth and sometimes trouble speaking. I researched about it when I first got it. I can never find good information and I wondered if anyone has any recent information that might help. I wanted to get in a study but apparently not enough people have it to warrant a study. Please help if you can!
Hello @judybl1, welcome to Connect. You may notice, I moved your discussion and combine it with an existing discussion titled, "burning mouth syndrome very severe." I did this so all of the members discussing how they live and cope with burning mouth syndrome could see your message and have a chance to chime in and so you have the chance to click VIEW & REPLY to see all the posts already shared by Connect members. The discussion is long, but contains many members sharing their frustrations and how they manage the diagnosis.
@judybl1, other than the xanax, what other things have you tried to manage the symptoms?
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