Burning Mouth Syndrome. I have it very severe.

Posted by mygrigio @mygrigio, Aug 5, 2011

I am a 76 year old women and have had this condition for almost a year. it is getting worse everyday. been to many doctors and not one of them has heard otf it, I am getting desperate

@bryleeraye

I am 53 and I have had burning mouth for about a year now. I have been to dentists, pychiatrist, family doctor and everyone of the docs tell me to see another doc it is so frustrating … I am bipolar and take meds for it but this is a very depressing ailment in itself. All the docs look at you and don’t know what you are talking about, so I do my own researching all the time and I found this site….if anyone has found something that helps PLEASE let me know.

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I started with my dentist who said ‘nothing wrong with your teeth. They look great.’
He sent me to my primary care doctor who prescribed an anti fungal med. Didn’t work. She tried something else. No luck, so she sent me back to dentist – who sent me to an oral surgeon. He diagnosed bms. I’ve seen him 3 times. Tried different meds. No help. In 4 months, i’ve Gone from’great teeth’ to receding gums. I’m glad to have found this group.

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@donnass

I started with my dentist who said ‘nothing wrong with your teeth. They look great.’
He sent me to my primary care doctor who prescribed an anti fungal med. Didn’t work. She tried something else. No luck, so she sent me back to dentist – who sent me to an oral surgeon. He diagnosed bms. I’ve seen him 3 times. Tried different meds. No help. In 4 months, i’ve Gone from’great teeth’ to receding gums. I’m glad to have found this group.

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My gums are receding as well. I assumed as of age, 61. Have you tried the magic mouthwash?

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@donnass

I started with my dentist who said ‘nothing wrong with your teeth. They look great.’
He sent me to my primary care doctor who prescribed an anti fungal med. Didn’t work. She tried something else. No luck, so she sent me back to dentist – who sent me to an oral surgeon. He diagnosed bms. I’ve seen him 3 times. Tried different meds. No help. In 4 months, i’ve Gone from’great teeth’ to receding gums. I’m glad to have found this group.

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@donnass I have this same problem sometimes when the Dr,s dont help, you need to help yourself by using some home remedies My teeth where hurting when I,d brush them so I started using baking soda and salt (coarse) salt mixture ,now they don't hurt and my gum are pink and stronger looking I swish my mouth with liquid Vitamin B12 before swallowing. I found in the drugstore Biotene use it before bedtime or during day when needed hope some of this helps you

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@destinnana

My gums are receding as well. I assumed as of age, 61. Have you tried the magic mouthwash?

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@distinnan My reply to donnass may apply to u ablit gums Mixture of baking sods and salt as my gums started to receed I used this solution and my gums are pink and healthy looking

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It I had burning on my tongue and gums for a long time, my Gastroenterologist asked me to change a couple of my medicines from generic to brand name! It was expensive but worth it, the burning went away !

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@minijo43

It I had burning on my tongue and gums for a long time, my Gastroenterologist asked me to change a couple of my medicines from generic to brand name! It was expensive but worth it, the burning went away !

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@minijo43 What scripts were they?

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Has anyone had success with medical marijuana

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I just joined the group today. I have had BMS for over a year. I have also been diagnosed as having Sjögren’s syndrome and celiac disease. I follow a gluten free diet and take a low dose of prednisone and hydroxychloroquine. I use Biotene toothpaste and mouthwash. I tried pilocarpine but hate the side effects. Any suggestions?

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@jjaklee

Has anyone had success with medical marijuana

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I’m 68 years of age and suffer from BMS. I have seen many medical specialists and tried many things. I use a small amount of eatable marijuana in the late afternoon
after any “driving chores” are done. It gives me back some mucous lining in my raw mouth, calms me down, and makes me feel less sorry for myself. Take a tiny bit to see how it effects you and don’t have any alcohol as that magnifies the effect. I find it stays in my system for quite a number of hours so be careful not to use more until it has worn off – don’t drive until next day. If I’ve had a very quiet day sometimes don’t take again ‘TIL second day. It also makes my lips feel less tight and hurtful. It doesn’t “cure” for sure but gives relief for a few hours when you can’t take it anymore. I don’t use any other meds regularly except vitamin B12 and vitamin D3. Hope this assists someone. – B

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@babsguelph

I’m 68 years of age and suffer from BMS. I have seen many medical specialists and tried many things. I use a small amount of eatable marijuana in the late afternoon
after any “driving chores” are done. It gives me back some mucous lining in my raw mouth, calms me down, and makes me feel less sorry for myself. Take a tiny bit to see how it effects you and don’t have any alcohol as that magnifies the effect. I find it stays in my system for quite a number of hours so be careful not to use more until it has worn off – don’t drive until next day. If I’ve had a very quiet day sometimes don’t take again ‘TIL second day. It also makes my lips feel less tight and hurtful. It doesn’t “cure” for sure but gives relief for a few hours when you can’t take it anymore. I don’t use any other meds regularly except vitamin B12 and vitamin D3. Hope this assists someone. – B

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@babsguelph Imagine– pot could be the solution to BMS. It's worth a try, since BMS means endless torture with no medicinal solution otherwise. Thank you!

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@babsguelph

I’m 68 years of age and suffer from BMS. I have seen many medical specialists and tried many things. I use a small amount of eatable marijuana in the late afternoon
after any “driving chores” are done. It gives me back some mucous lining in my raw mouth, calms me down, and makes me feel less sorry for myself. Take a tiny bit to see how it effects you and don’t have any alcohol as that magnifies the effect. I find it stays in my system for quite a number of hours so be careful not to use more until it has worn off – don’t drive until next day. If I’ve had a very quiet day sometimes don’t take again ‘TIL second day. It also makes my lips feel less tight and hurtful. It doesn’t “cure” for sure but gives relief for a few hours when you can’t take it anymore. I don’t use any other meds regularly except vitamin B12 and vitamin D3. Hope this assists someone. – B

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Glad it does something !
I have BMS….3 miserable years of hell and counting. Nothing works,not even clonazepam.
Please check, and test for these causes of BMS.
1) -HSV- 1, HSV-2 blood test and 24 urine study.
2) HEAVY METALS blood test with 30 days on and 30 days off all types of seafood, and WHITE RICE.All can contain mercury.
3) Test for viral infection.
4)test for yeast infection
5)reflux testing.
6)Full range of test for allergies.
All my testing was negative.However, these can cause this condition.
Stu

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@ristu

Glad it does something !
I have BMS….3 miserable years of hell and counting. Nothing works,not even clonazepam.
Please check, and test for these causes of BMS.
1) -HSV- 1, HSV-2 blood test and 24 urine study.
2) HEAVY METALS blood test with 30 days on and 30 days off all types of seafood, and WHITE RICE.All can contain mercury.
3) Test for viral infection.
4)test for yeast infection
5)reflux testing.
6)Full range of test for allergies.
All my testing was negative.However, these can cause this condition.
Stu

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@ ristu I have BMS for 3-4 years, with none of those conditions, and like you, nothing works. The most significant fact here I think is that the medical profession has no idea what causes it. Thanks for info.

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