burning mouth syndrome very severe

Posted by mygrigio @mygrigio, Aug 5, 2011

I am a 76 year old women and have had this condition for almost a year. it is getting worse everyday. been to many doctors and not one of them has heard otf it, I am getting desperate

@meadowhouse

Hi Lauren
You mentioned in an earlier post that klonopin and laser are the only things that help with your BMS.
I am very interested in hearing more about the laser therapy. I have found a dentist who has an MLS laser
and I’m thinking about trying it on my mouth.
Can you tell me more about your experience with laser treatment?

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I'don't like to know also what is involved, and if you are feeling better. Regards,Stu

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@ristu

I'don't like to know also what is involved, and if you are feeling better. Regards,Stu

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I'd like to know

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@meadowhouse

Hi Lauren
You mentioned in an earlier post that klonopin and laser are the only things that help with your BMS.
I am very interested in hearing more about the laser therapy. I have found a dentist who has an MLS laser
and I’m thinking about trying it on my mouth.
Can you tell me more about your experience with laser treatment?

Jump to this post

@meadowhouse, What I have learned is that some people respond well and some do not. I don't know what an MLS laser is. I purchased a Terraquant laser on line after it seemed to help. The important point is that it needs to be used daily. Only then will you know if it helps. Good luck and keep me posted, please.

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@meadowhouse

@mamajomclane
I am currently trying to make an appointment with a chiropractor near me who has the MLS laser. I will let you know how I make out. There is another chiropractor who has a cold laser unit but it is different than the MLS one I had read some positive things about.

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@mamajomclane, what is a MLS laser?

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Hi everyone. So, what's the story with this MLS laser? Also, does amitriptyline, or calcium channel blockers have any success with other BMS sufferers ? So far, after three plus years, nothing has worked ! Regards Stu

Liked by lauren123

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Hi @ristu, you may have noticed I moved your post to this existing burning mouth syndrome discussion so that others can follow along on the MLS laser discussion.

Looking back, I see it was @lauren123 originally brought up MLS treatment, so while we wait for her to respond, I wanted to share this information for everyone to read on MLS treatment.

Here is a study on MLS Laser therapy's effectiveness: https://www.ncbi.nlm.nih.gov/pubmed/21142725

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@ethanmcconkey

Hi @ristu, you may have noticed I moved your post to this existing burning mouth syndrome discussion so that others can follow along on the MLS laser discussion.

Looking back, I see it was @lauren123 originally brought up MLS treatment, so while we wait for her to respond, I wanted to share this information for everyone to read on MLS treatment.

Here is a study on MLS Laser therapy's effectiveness: https://www.ncbi.nlm.nih.gov/pubmed/21142725

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Ok. Thanks for the link. I will check it out. Regards,Stu

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@lauren123

@meadowhouse, What I have learned is that some people respond well and some do not. I don't know what an MLS laser is. I purchased a Terraquant laser on line after it seemed to help. The important point is that it needs to be used daily. Only then will you know if it helps. Good luck and keep me posted, please.

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@lauren123 Thanks so much for your info on the type of laser you have. I will let you know how I make out once I start on the MLS laser therapy I mentioned.
Are you still using your laser every day?

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@lauren123

@mamajomclane, what is a MLS laser?

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@mamajomclane Hi, what I have learned is that the MLS laser stands for multiwave locked system. I first heard about it in another support group where someone was having good results for her BMS. Basically she said is not given in the mouth though-it’s all over-especially in her lymphatic system. She said she had 6 treatments and was having better success in 6 weeks than in all the 6 years of pills and potions.

Liked by lauren123

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@meadowhouse

@mamajomclane Hi, what I have learned is that the MLS laser stands for multiwave locked system. I first heard about it in another support group where someone was having good results for her BMS. Basically she said is not given in the mouth though-it’s all over-especially in her lymphatic system. She said she had 6 treatments and was having better success in 6 weeks than in all the 6 years of pills and potions.

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@meadowhouse, wow that is impressive. I will look for more detail on the site if you have posted it. Thank you!

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@ristu

Hi everyone. So, what's the story with this MLS laser? Also, does amitriptyline, or calcium channel blockers have any success with other BMS sufferers ? So far, after three plus years, nothing has worked ! Regards Stu

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@ristu Hi, Stu, amitriptyline and calcium channel blockers have not helped me. I have had BMS or Atypical trigeminal neuralgia since 2004 due to a dental incident. The only think that helps me is Klonipin, Cymbalta, and ambien for sleep. I also do yoga and see a chiropractor on a regular basis.

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Hi Lauren. So, clonazepam has not work for me at all. I have not tried amitriptyline on calcium channel blockers yet. Just was curious, if you had tried that. I need to look into the laser treatment. Wondering if that will bring any relief, and have any side effects? Regards Stu

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@ristu

Hi Lauren. So, clonazepam has not work for me at all. I have not tried amitriptyline on calcium channel blockers yet. Just was curious, if you had tried that. I need to look into the laser treatment. Wondering if that will bring any relief, and have any side effects? Regards Stu

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@ristu, My chiropractor is quite knowledgeable about lasers and uses one in his office. The next time I see him, I will ask him about the MLS laser. I have heard that some people respond well to amitriptyline. I can't use it because it causes my gums to throb worse than before application. Do you have BMS or Trigeminal neuralgia? Some people are diagnosed with both.

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@ristu

Hi everyone. So, I see there's a number of studies that are available on the internet on what they call a low level laser. The results in some of the cases appear to be an 80% Improvement in the pain management for burning mouth syndrome. If anyone has had this treatment, and is free of pain more than three months, I'd like to hear from you. Regards Stu

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@ristu and anyone else– about 1 year ago I read that a doctor had used some kind of "deep brain stimulation" (or deep brain something), which had 100% success in relieving BMS, and caused no side effects. There was a published paper on his research. He was in a university in the mid-southeast. At the time I tried to look him up but did not find him. Since BMS is neurological, this approach would seem to make sense. Anyone else ever heard of this?

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Hi Lauren. I have BMS. I'm curious as to how the action of the laser Works. Does it numb the nerves? Does it destroy the nerves? Does the laser have any long-term side effects? How long does it last, meaning is it effective for long-term? I appreciate any efforts. Thanks Stu

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