Mayo Clinic Connect
Does anyone know of this. I think its rare but does exist. My neurologist does not know about this. I have compression between my c5 and c6 cervical disk and have had alot of sun damage to my skin.
I agree with the mail from “Relentless”
There is no cure but we can help ourselves to live with it.
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There IS a cure! See my post! CTaylor27
Liked by bobbiellen
What a wonderful gesture. I have a new diagnose. Acute encephalopathy, thats the shrinking cerebellum. I had a seizure and fell broke my right ankle for the 2nd time. Doctors had a fit with all the fractures both ankles. Physical therapy are crazy here in rehab, told them I won't do it. They want me to jump on left foot( left ankle which for 10 years is swollen), with a hospital walker, I would kill myself, no way to. Told them no. I am going home..
My family Dr said the encephalopathy is temporary, due from major shock as in breaking right ankle. Surgeon says break agaIn, will never walk again. I moisturized for years at least 15, never worked. I now know that was not the reason. I have severe narrowing my whole length of spine, spinal stenosis, bulging discs. Many issues with back besides scoliosis. Lottery of diseases in my family.
going to try MSM cant hurt…I dont think
Yes I believe so too- just don’t settle or give up!
Thanks……I already did google all those drugs but was wondering how other people responded to them. I should have worded that better. And yes, I have read about staying moisturized and also out of the sun. I just bought some fresh aloe – so I have the actual leaf in my fridge and get it directly from the plant. I found that most of the aloe products out there are mixed with so much other stuff, but will look into the product you mentioned.
Most importantly, I am trying to rule out any type of spinal issue before resort to drugs – so my doc ordered nerve conduction studies this week after reading about the severe stenosis and foramina narrowing at my C4,5 and 6. In the meantime, I am experimenting with CBD and finally a significant amount of relief, not completely yet, but i have only been on it for three days so far.
Good luck with ur tests, I am also going to try CBD. Just to let u know I never found the aloe from the plant helped me but the aloe mixed with propolis really helped a lot. The propolis (you may know this) acts as an antibiotic inside a bee hive – it’s very precious and “Forever Living” only use very pure ingredients. you will have to google the above but I think they are world wide and well worth a try.
The is so much! I do know the propolis provides additional support but not that it functioned as an antiobiotic.
Sorry, I did not explain it well. Propolis acts like an antibiotic to the bees,as it lines the hive to protect them.
I also have RA but I don't think it is connected. I think it was too much sun.
I am wondering if RA and other conditions too, might set up a hypersensitivity of the nerves when exposed to too much sun?
Some years ago I cleared up my brachioradial pruitus COMPLETELY by taking MSM powder in grapefruit juice. Start with a heaping teaspoon a day…first thing on an empty stomach…and gradually increase to 4 heaped teaspoons a day…about 20 grams…morning and night. Best to dissolve in a little warm water then add grapefruit or tomato juice to disguise the bitter flavor. BP has recently come back after about two years of being free…probably stress, so I’m doing it again and it’s working again!
Also you can add two cups to your bath for an overall skin boost…it absorbs well through the skin! Soak for awhile of course! I buy in bulk from a horse company…99.9% pure MSM and much cheaper! I think the company is called “Mane and Tail”
Read up on MSM…so good for you and NATURAL!
I tried the MSM cream and it made my skin that itching immediately.
Has anyone tried a topical compounded cream that includes these ingredients: ketamine 10%, amitryptiline 5% and lidocaine 5%?
I am picking this script from the compounding pharmacy tomorrow. I saw it mentioned in an 11/8/2018 you tube video by Gil Yosipovitch, MD, who is known to be the "itch guru doc". I also noticed that he wrote a book a few years back with the Hopkins "itch doc", Shawn Kwatra, MD. I just had an appointment at the Hopkins Dermatology Center. They also want me to try the Gabapentin but that drug makes me concerned.
Seems it is all so much trial and error, because nobody really knows the etiology and there are so many different reasons why the itching happens to people.
Wondering if those of us who get the itching intensified with sun exposure……have any type of thermoregularity sweat issue? I read that abnormal sweating patters and areas of anhidrosis are correlated to the area of the symptoms – I had a sympathectomy over 18 years ago and thus I don't sweat from my head down to the middle of my arms – which is where the itching is. However I don't have any scalp, face, or upper chest itching and all those don't sweat either…..
One dermatologist said he thought light therapy would help with the itching, but then said it would affect my lupus, which is not active, have issues. He also said he thought living in a hot climate would help the itching, but lived in Tucson for several years and still had severe itching. I can't believe all those drs, could not figure out the itching. I now have some itching on scalp but shampoo with tea tree oil really helps. So thankful with this site and my diagnosis.
Can you take Nortriptyline? My Dr put me on it at bedtime and it's like a miracle, it stopped after 2 doses. I used to have the itching for 2 or 3 mths. This yr it was six mths going on 7….
It stung when I applied the topical msm roll-on.
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