Mayo Clinic Connect
Does anyone know of this. I think its rare but does exist. My neurologist does not know about this. I have compression between my c5 and c6 cervical disk and have had alot of sun damage to my skin.
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Thanks so much Jennifer! I do appreciate all that information. I am looking for a good neurologist and neuro- surgeon. I live in Baltimore so one would think there would be good ones st Hopkins.
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@bobbiellen If you wanted to come to Mayo, my neurosurgeon is excellent, and he is also orthopedic trained in addition to neurosurgery. You can see him in the Art for Healing discussion under the Just Want to Talk Group. I'm an artist and was loosing my ability to do my artwork and he gave that back to me, so I painted his portrait for him. Mayo just interviewed me about it for a Sharing Mayo Clinic story for their blog for January. Get as many opinions as you need to pick a good surgeon. I saw 5 who wouldn't help me, and one very wonderful one who did. I'm doing great.
What a wonderful gesture. I have a new diagnose. Acute encephalopathy, thats the shrinking cerebellum. I had a seizure and fell broke my right ankle for the 2nd time. Doctors had a fit with all the fractures both ankles. Physical therapy are crazy here in rehab, told them I won't do it. They want me to jump on left foot( left ankle which for 10 years is swollen), with a hospital walker, I would kill myself, no way to. Told them no. I am going home..
That’s awesome! Which Mayo Clinic? I live in Maryland.
@bobbiellen You can find a list of myofascial release John Barnes methods trained therapists at https://www.myofascialrelease.com/ . If you don't find someone near you, call Therapy on the Rocks in Sedona, AZ and ask for names of people who trained there. They don't all pay to be listed on the website. You'll need an MRI to determine nerve entrapment and stenosis as X rays will just show the bones and alignment and some arthritis. I had cervical central canal stenosis at C5/C6 and had a spinal fusion at Mayo 2 years ago without added hardware. I stayed in my neck brace until it fused at 3 months. Get as many opinions as you need and look up anything and research papers you find on your surgeon. Get one who's area of interest matches your case, and who only does spine surgeries, and ask how many they have done. Make sure they explain to you exactly where your symptoms come from and how they determined that. They can get it wrong if you have overlapping symptoms with other nerve issues in which case surgery would not fix all the symptoms. I also had thoracic outlet syndrome at the same time as the spinal cord compression. Arnica gel helps pain applied topically. A therapist can also use a cold laser or Dolphin Neurostimulator to calm down symptoms and muscle spasms. This surgery is a big surgery, but for me it wasn't as painful as I expected and the pre-surgery nerve pain was gone immediately when I woke up from surgery.
@jenniferhunter @anniemaggie I corrected the link in Jennifer's post. It was just missing a letter. See https://www.myofascialrelease.com/
This itching happens to me occasionally, usually in winter in Florida. I have used Biofreeze on the forearms to relieve itching and it does seem to work occasionally. It's a very strange thing that seems to come and go.
I finally found why I was severely itching arms only since 1988. I take hydroxyzine, 5- 25 mg used to be 8 a day, drs worry, always worry. Put on per doctor over the counter aspercreme. Works, it's for pain, itching meds makes it worse. Burns a little first cause of all the scratching al so preescription triasimolone, works. Called brachioradial pruritis. Caused from cervical vertebrae issues, so weird, you can find on this site. I googled it and it popped up here.
I just bought the NuLeaf brand of CBD oil to try. Will post results soon. I also bought the plusCBDoil brand of CBD salve to apply topically. Again will post results. My experiment with CBD! Be careful of the brand and supplier. Do the research to make sure you don’t buy “snake oil”, and you are getting the real pure CBD, tested by an outside lab, etc.
I recall reading that some of you have had good luck with CBD oil but I can't find how to find the filter to locate these earlier posts???
Anyway, if anyone knows how to do that or has had luck with CBD oil, I would love to read about it.
So far I have taken about 100 mg. of a high quality CBD oil in increments of about 4-5 hours based upon my symptoms. My last dose was 7:30 pm and then I woke up with the itching again at midnight and took another dose (dose – 10 drops or 24 mg.)……it takes time to start working…..like 30 minutes plus so I had to resort to the icepack again…..mild itching sensation this am so I too smaller dosages (5 drops each) at 6 am and then again at 10 am. I am also generously applying the CBD balm to my arms (I have a 1.3 oz jar with 100 mg of CBD from plusCBD oil – a good company – but I may need a stronger balm with more CBD per ounce. I have screened for legit companies, those with third party lab testing, as we as only using the full spectrum hemp extract. Involves alot of research for a newbie and the products ARE expensive. At this point, I will do whatever to get this over!
Last BIOMAGNETIC PAIR THERAPY – I just found out about this. Worth considering for this condition and have PT appointment for this on the 17th.
I know that a lot of people are against medications but honestly after years of trying everything to no avail (apart from the temporary relief of ice packs), I asked my gp for amytriptiline. She gave me Nortryptiline and I take it every night. It was ordered as 10 mg but could be increased within a wk to 30mg. Finally I have Total Relief, It's awesome as I'm flying overnight to Australia to spend Christmas with my family and I was really dreading that flight and the holiday in general. Last year I was there and got what was like freezer burn from the ice pack and had a huge area of skin on my upper arm actually peel off and it was very sore and nasty. I wish everyone a very Merry Christmas and a Happy and hopefully itch free new year. (and Happy Hanukkah as well!)
Wondering how that is different from the Gabapentin or the pregabalin?
I think all the drugs mentioned are part of the same family. if one is not working then try another. Also google the difference, eg, WHAT IS THE DIFFERENCE BETWEEN AMITRIPTYLINE AND THE DRUG YOU ARE TAKING ? IT WILL TELL YOU. I have great relief with amitriptyline but most importantly KEEP KEEP moisturising I also find (don’t laugh) Vick’s vapor rub a great relief and ALOE VERA PROPOLIS IT’S SOLD WORLD WIDE. The PRoduct is made By
“FOREVER LIVING” you may need to ice sometimes but 85% less than before. One last tip, as BRP is light Senitive ware long sleeves even in bed or keep arms under sheet. Good luck
I agree with the mail from “Relentless”
There is no cure but we can help ourselves to live with it.
Thanks……I already did google all those drugs but was wondering how other people responded to them. I should have worded that better. And yes, I have read about staying moisturized and also out of the sun. I just bought some fresh aloe – so I have the actual leaf in my fridge and get it directly from the plant. I found that most of the aloe products out there are mixed with so much other stuff, but will look into the product you mentioned.
Most importantly, I am trying to rule out any type of spinal issue before resort to drugs – so my doc ordered nerve conduction studies this week after reading about the severe stenosis and foramina narrowing at my C4,5 and 6. In the meantime, I am experimenting with CBD and finally a significant amount of relief, not completely yet, but i have only been on it for three days so far.
Some years ago I cleared up my brachioradial pruitus COMPLETELY by taking MSM powder in grapefruit juice. Start with a heaping teaspoon a day…first thing on an empty stomach…and gradually increase to 4 heaped teaspoons a day…about 20 grams…morning and night. Best to dissolve in a little warm water then add grapefruit or tomato juice to disguise the bitter flavor. BP has recently come back after about two years of being free…probably stress, so I’m doing it again and it’s working again!
Also you can add two cups to your bath for an overall skin boost…it absorbs well through the skin! Soak for awhile of course! I buy in bulk from a horse company…99.9% pure MSM and much cheaper! I think the company is called “Mane and Tail”
Read up on MSM…so good for you and NATURAL!
See my post! CTaylor27
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