Mayo Clinic Connect
Does anyone know of this. I think its rare but does exist. My neurologist does not know about this. I have compression between my c5 and c6 cervical disk and have had alot of sun damage to my skin.
Liked by karenvduke
I have read on an autoimmune site that fibro is not an auto immune. But have ms, sjogrens, chronic fatigue, lupus not active, something else cant remember, too many diseases & syndromes.
Yes I feel a burning sensation after itching and then I ice my arms. Yes the itch is confined to my arms. and back of my neck when sleeping.
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I have to many top dermatologists since 88 when started itching forearms mainly some upper arms. Scars all over forearms. Head of skin dept univ of Mich put me on something can't remember what now but was on it for 16 yrs because I was getting severe staf infections, since staf is everywhere. Those have calmed down. I have used triamcinolone cream for several yrs I go back and forth with the aspercream(not roll on causes itching), same as pain cream at rite aid that Dr suggested. Has lidocaine, anything with lidocain works numbs area. I am way past ice caused itching. Without anything I scratch so bad I bleed. So the hydroxyzine has saved my day. Whatever works for you is great. I have some burning without lyrica for right arm from severe tingling. Have tried to stop but arms get worse so cut in half. Was getting lyrica from manufacturer by moved and no longer with Dr. So co pay is $37 as the hydroxyzine. I have the best part D & the best supplement, only good part for Medicare
Hi. I am struggling. For the past 3 years I have suffered severe itching on both forearms.. the first 2-3 years it seemed seasonal and I thought it was allergies. This past year has been the worse, constant sores on my arms from scratching. I have tried all sorts of creams, steroids, oils, etc. Ice is the only thing that has helped. I have recently seen a dermotologist who gave no answers other than I am not allergic to anything… I have been struggling with my doctor (who I just fired) who hasn't been of help.. I was requesting to be referred to a neurologist but instead she prescribed me gabopentin which I have read works but I'd really prefer to know what is wrong over just taking piils? what is causing this? I am only 28 years old.. I am more of a "natural remedy" type.. trying to avoid most medicines unless necessary. I used to think my arms were beautiful and now they are scarred and rashy. It is hard to concentrate and sometimes hard to sleep. Any recommendations for how to seek further help? There doesn't seem to be anything wrong with my neck.. I tried chiropractics a few times but it seems expensive for the 10 minute process… I wonder about getting an MRI to see if there is something going on with my cervical spine? I feel defeated by my doctor who scolded me and chalked it up to me "not taking proper pre-cautions in the sun". I wear sun screen but you can't tell me to wear longsleeves for the rest of my life?! Right…? Thanks for hearing me. No one seems to understand and tries to tell me to do a juice cleanse or something.. I am very healthy and active, great health other than this disorder…
Have had this for about 10 yrs. Have tried everything (Ice & Gabapentin delivering the best relief). Currently I am being treated with a series of PIT Injections (Founded by Lyftogt). After the 2nd series of shots, I have now been itch free for a week and stopped taking the gabapentin. Scheduled to do a few more series of the shots, and will post updates
Liked by jal333
Thanks so much for posting this! I googled it and found two docs near me that do this.
I will be eager to follow your updates!
After four months of misery, I was ready to start the Gabapetin, but decided to try going back on Lexapro first- I had been on this for years but stopped in May, thinking that maybe it was similiar enough to these other anti-anxiety and anti-seizure meds that people have found effective for this condition – and now am experiencing about a 95% improvement. I am also using a compounded cream from the pharmacy at night- called TKAL- which means topical Ketamine, amitryptaline and lidocaine.
Liked by jal333, bjmart
Hello BJMart – I sent you a private message wondering about the costs, insurance coverage and where and who you are seeing? It looks like it is still relatively new to the States and hard to find doctors that understanding the neurogenic itching verses the neurogenic pain. It is good you found one.
Welcome to Connect, @salemm72. Thanks for sharing tips for relief. I understand that physical therapy or even acupuncture may help some people who have cervical spine disease. (Reference: http://www.clinicaladvisor.com/dermatology/brachioradial-pruritus/article/593588/) Do you have issues with your cervical spine or neck?
I wondered if the dematologists or pain docs at Mayo JAX will prescribe the TKAL or do the PIT injections to help with the pruritis? Can you find out or should I make an appointment with my neck pain doc or dermo first?
If you already have a dermatologist, I would just call about the TKAL cream. They should already know about that.
For the PIT treatment, (which is intended to resolve it after a prescribed number of treatments- however it isn’t coverered by insurance)…..I will send you a link that shows a list of the doctors that are trained to do it and you can find one closest to you, if you would like? There is a doc in Orlando that does it. Is that too far for you to go?
Can you send me the link for doctors that are trained to do PIT treatments in Florida? I live in Orlando!
How are you doing after the PIT injections?
Bret Thomas is right in Orlando! Very good! He is a DO with lots of experience using this treatment.
Doing good! Highly recommend Dr. Thomas!
Wow, I can't even believe I found people with the same problem!! So far, all I've gotten from 2 doctors I went to were really crazy looks. My primary care provider did prescribe a pill that helps a little bit, but I've kinda been afraid it's some symptom of an autoimmune disorder.. like MS or something?? Mine used to come and go but has been pretty much consta
I truly can sympathize with your situation. I've been dealing with the EXACT same thing for probably 3 or 4 years now, but there were many months in between when my symptoms just disappeared. But now they're back and with a vengeance!! The only relief I get is from ice. And I don't have insurance. 🙄
I've makes it worse for me. My only thing I can tell you is to get insurance. Otherwise use over the counter Aspercream per primary suggestions, not the roll on but the cream. Anything with lidocaine, on shelf or try Amazon.
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