Mayo Clinic Connect
Does anyone know of this. I think its rare but does exist. My neurologist does not know about this. I have compression between my c5 and c6 cervical disk and have had alot of sun damage to my skin.
Do they do that in the US? On the east coast? Anywhere near the mid-Atlantic? I couldn't find it anywhere around here.
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Sorry I don’t know as I live in Europe.
There are two FB Groups in BP. i have tried everything. Atlas chiro. only thing left for me is diet and the Amastsu. no here in NJ knows what that is at all
As far as I can assertain you do not have Amatzu Treatment in the USA. In one of the statements written by “Angiemm”he or she reported that the use of Vick’s Vapour rub (usually used for a cold) helped greatly and I tried it, and yes it did help, and the itching stopped for several hours. Try it. The most important thing is to exfoliate and above all keep ur arms moisturized all day long applying many times, it really does work that and keeping ur arms covered. WITHOUT A SHADOW OF DOUBT THE DRUG MY GP PRESCRIBED. “AMITRIPTYLIN” was without doubt the help I needed – yes I know, drugs – I don’t want to take drugs ever but you know what, I can’t live with this terrible terrible itching and pain. I may have to stay on the drug for a few years, in the hope that the way medicine is going they will find some help for all of us in the BRP family. Quality of life wins over length of time every time. I hope one or two of my suggestions will help at least one person, particularly exfoliating moisturing and covering ur arms with long sleevs. The very best of luck.
I have this, just found out why I have scratched my arms bloody since 1988. My whole vertebrae is a mess, severe narrowing and compression fractures the whole length. Spinal stenosis, others. Pain Dr said I have a lot of company. I only use ibuprofen really helps with pain, will not touch pain pills, except for surgery, broke my ankle last week, he took out a plate from previous break and put in a bigger one. Had a ,seizure and dropped. Not one dermatologist could help me but a doctor recommended expected on the skin. It really helps, burns at first, stops the itching, would rather have pain. I have been on hydroxyzine since 2000 when I begged for something. Originally I was getting 8 a day, drs have dropped it to 5. It can cause somsthing, do you think I care, what something else? 4 rare diseases. Triamcinolone also helps
what can i take to stop the non stop itching it never goes away i feel like i want to rip the skin off my arm i have tried evereything over the counter but it does nt work i can not take much longer of this what can u suggest for me todo
Might try spraying self with bactine at first sign of itching. After you have scratched yourself it is harder to to stop and makes itching worse. Keep spray by bed for night use. Hope this helps a bit.
I mixed up some diy blends-to apply topically, that ….so far….are giving me some relief….. here they are:
2oz. Witch hazel, Tbs alcohol, and about 10 drops of copaiba essential oil and about 20 of lavender oil
10 drops of tea tree, clove and lavender oil in an oil base of jojoba oil and argon oil
Manuka wound honey
Babo botanicals healing ointment from Whole Foods with colloidal oatmeal, Shea butter, aloe – no chemicals or additives
Shear Radiance pure whipped Shea butter with colloidal oatmeal
I am also taking Tumeric orally, twice a day- from Xhile Foods
Tomorrow I go to a physical Therapist for treatment, exercises and maybe a traction device
Also looking for a good massage therapist that does cranial sacral and myofascial and musculoskeletal alignment
I believe that one needs to try to call the skin down with natural products – no chemicals but also treat the C5-6 entrapment, or whatever might be going on with the spinal nerves in the neck. Good idea to get X-rays to determine. I did that and the nerve encroachment was there at the C5/6, which can affect sensation in the upper arms, which is where it is a problem for me.
Will keep you posted.
Liked by Jamie Olson
i can’t stand fabric on my arms
Neither can I- but with these oils and creams, it isn’t a problem- but I am careful about fabrics- only cotton or something soft like bamboo- no itchy stuff like synthetic blends or itchy sweater type fabrics
All cotton is the best for your skin, especially sheets. Microfiber is terrible. It's hot and irritating. I loathe everything on my skin. I have so many scars on my arms. I am thankful to all of you.
@bobbiellen You can find a list of myofascial release John Barnes methods trained therapists at https://www.myofascialrelease.com/ . If you don't find someone near you, call Therapy on the Rocks in Sedona, AZ and ask for names of people who trained there. They don't all pay to be listed on the website. You'll need an MRI to determine nerve entrapment and stenosis as X rays will just show the bones and alignment and some arthritis. I had cervical central canal stenosis at C5/C6 and had a spinal fusion at Mayo 2 years ago without added hardware. I stayed in my neck brace until it fused at 3 months. Get as many opinions as you need and look up anything and research papers you find on your surgeon. Get one who's area of interest matches your case, and who only does spine surgeries, and ask how many they have done. Make sure they explain to you exactly where your symptoms come from and how they determined that. They can get it wrong if you have overlapping symptoms with other nerve issues in which case surgery would not fix all the symptoms. I also had thoracic outlet syndrome at the same time as the spinal cord compression. Arnica gel helps pain applied topically. A therapist can also use a cold laser or Dolphin Neurostimulator to calm down symptoms and muscle spasms. This surgery is a big surgery, but for me it wasn't as painful as I expected and the pre-surgery nerve pain was gone immediately when I woke up from surgery.
The website listed myfascislrelease is for sale, so it's a dead link!
I have had some relief taking yoga, the stretches and movements seem to adjust something from the neck down, at one point I had a 3 year break without scratch the arms once….felt like a miracle. Now it is back, so I am back at yoga, and there is less itching already….I am getting a good nights sleep for a change without plopping the ice packs on my arms all night.
If u do have a problem use Vick’s vapour rub yes I know it’s for a cold – but it really helps me. To all in our BRP family please keep moisturizing MANY times a day and EXFOLIATE twice a week. Since I started taking amitriptyline (unfortunate it’s a drug) I am 85% better and the moisturizing helps with the 15%. I still use the ice but very rarely. I have had BRP for over 13 years.
Thanks for the tips.
I found temporary relief with Biofreeze- 4%?menthol but got tired of the smell.
Now I am staying moisturized with natural creams with Shea butter and colloidal oatmeal and am experimenting with essential oils.
Most importantly I am getting some relief- significant- with PT- manual and automatic cervical neck traction. Going to a cranial sacral massage therapist tomorrow and on 12/13 I am going to a PT who used cranial sacral therapy as one of many treatment modalities.
Last my PT, said to use a dry wash cloth on the area and rub it lightly – she said since the skin is so hypersensitive, it is helpful to desensitize it. She also said to try a vibrating sensation on it as well.
In short, I feel like the need to itch has drastically decreased and I am only just getting started with these treatments. Hopingcto eliminate nighttime icepacks; and certainlyvto get rid of this. Next summer, I will NOT be in the sun. I spent more time in the sun by the pool then I ever have this summer- since it was so hot outside. Never realized these would be the consequences. While I noticed some arm itching towards the end of summers – nothing so debilitating as this time. I used to put hydrocortisone on periodically and didn’t obsess about it because it was so random. This 24/7 stuff has got to stop!
Thanks so much Jennifer! I do appreciate all that information. I am looking for a good neurologist and neuro- surgeon. I live in Baltimore so one would think there would be good ones st Hopkins.
Question- you said pre- surgery nerve pain- did you have itching ?…….on your arms?
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