Mayo Clinic Connect
My son at 39 was just diagnosed with CMML and will be coming to Mayo for 4 months to prepare for and receive it. His dad and I will be his caregivers at the Hope House while he is there. Who had been through this?
Hi @javajude that must be so heartbreaking and nerve-wracking for you and your son as you prepare. How is your son feeling? What did you doctor's give your son to prepare?
@javajude, I'd like to introduce you to @jeaniecm who will also be going to Mayo soon to accompany her husband who will be having a stem cell transplant. She started this discussion:
– Lodging transplant patients https://connect.mayoclinic.org/discussion/lodging-transplant-patients/
Members @teammeadows @jzier and @tbone45 may also be able to share their experiences with CMML to help you prepare for what to expect.
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Thanks for the introduction. I just want to clarify, I will be having the SCT. My husband will be accompanying me as my caretaker.
Thanks for clarifying, Jeanie. May I ask what type of cancer you are getting the transplant for? Will it be autologous or allogeneic stem cell transplantation?
Multiple Myeloma My SCT will be autologous.
@jeaniecm, you may also be interested in following the
– Blood Cancers group https://connect.mayoclinic.org/group/blood-cancers-disorders/
– Hematology blog/page https://connect.mayoclinic.org/page/hematology/
In particular, this Multiple Myeloma discussion may interest you: https://connect.mayoclinic.org/discussion/multiple-myeloma-26f521/
Liked by Justin McClanahan
Hi @javajude, I thought I would check in. Are you at Mayo Clinic now for the 4 month period with your son while he prepares and receives a bone marrow transplant? How are you? How's he doing?
My husband had a stem cell transplant almost 8 years ago, for AML flt3. What would you like to know? Is he getting his own cells?
Liked by Colleen Young, Connect Director
Although getting in remission is the same process. Your son's recovery will be a lot faster, and fewer complications, due to getting his own stem cells.
I have had both an Auto and Allo SCT, but not bone marrow. I can tell you about my experiences if you'd like. Which kind is your son getting? He's lucky to have his parents as caregivers.
Even though getting this news is devastating, and there are hard days ahead, there are also brighter days ahead. You will have a lot of support at the Gift of Life house (transplant house) from others going through the same thing. I don't believe you qualify for the Hope Lodge. We have stayed at both places, and both are great, simply because you have the support from others going through it. We were given a lot of information, and CD's to watch. Please remember that everyone is different, and your son being young has a lot going for him.
I have seen someone who had a 5% chance of making through the transplant make it.
Thank you for your hopeful reply. My son's chemo has started, and in fact round 2 starts next Thurs. We are lucky to have a room at the GOL Transplant House. It is amazing and has given us the gift of hope again.
He is going to have an allogenic transplant.
Thanks for that.
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