Welcome to your home for all things Mayo Clinic Hematology. At Mayo Clinic, hematologists work in collaboration with teams of experts from virtually every medical and surgical specialty for the care of adults and children with blood diseases, including various cancers of the blood and bone marrow.
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You've been diagnosed with Erdheim-Chester disease (ECD), now what? Doctors Ronald Go and Gaurav Goyal discuss what comes after receiving your diagnosis of ECD – treatment options, waiting and watching, and how you can find a specialist to best care for your rare and complex disease.
ECD Treatment options:
Erdheim-Chester disease (ECD) is a very rare disorder in which histiocytes, cells that help fight infection, multiply and infiltrate bone marrow and then spread throughout the body.
Symptoms can include:
Changes in gait
Changes in sensory ability
Diabetes insipidus, a disorder characterized [...]
At first, Tanis Milicevic’s local doctor told her to wait and see. Pregnant with her second child, Tanis had been sensitive about changes in her body when she felt a worrisome bump on the back of her head.
The doctor’s advice gave her temporary peace — the bump [...]
Mayo Clinic Rochester's Hemophilia Treatment Center (HTC) provides specialty care to patients with a bleeding disorder. The center provides whole-patient care, including:
Disease and symptom management
Coordinated care with other Mayo Clinic specialties (if needed)
On-site coagulation lab
All tests can [...]