Atopic Dermatitis: Does Dupixent (dupilumab) help you?

Hi – Pam here from Phoenix. I just joined Connect again, now for AD. I am suffering with severe AD. Dr. wants me to go on the biologic Duplixent. Would love to meet anyone facing a similar problem. Pam

Interested in more discussions like this? Go to the Autoimmune Diseases group.

I have been on it for a few weeks.
So far no change.

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@burningfeetinphoenix. I found this on the Mayo Clinic site. It gives lots of information about self care for eczema. I don’t know much about how long it would take Duplixent to work—have you talked to your doctor or pharmacist
https://www.mayoclinic.org/diseases-conditions/atopic-dermatitis-eczema/symptoms-causes/syc-20353273
We’re you ever able to find out what the causative factor was in starting the dermatitis?

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Thanks for responding! I have read this article OK. They think this is an autoimmune problem but I am skeptical. You thoughts? Pam

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@burningfeetinphoenix

Thanks for responding! I have read this article OK. They think this is an autoimmune problem but I am skeptical. You thoughts? Pam

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@burningfeetinphoenix You know, i decided to look up the possibility of a connection between autoimmune and AD. It was interesting because the researchers were almost evenly split between yes and no. So, now I’ll ask the Autoimmune Association. I’ll let you know!

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I agree except Duplixent is advertised for AD and it is a a MAB for autoimmune diseases. I read the clinical trials and they found drug very effective for AD.. I found this article on this subject – link below. LMK what you find out. I am seeing another dermatologist for a second opinion. Thank you so much for your help! Pam
https://aacijournal.biomedcentral.com/articles/10.1186/s13223-021-00597-4#:~:text=The%20random%2Deffects%20meta%2Danalysis,erythematosus%2C%20ulcerative%20colitis%20and%20vitiligo.

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I have heard it works wonders, however when a few people went off it the problem came back. I would love to try it however the doctors say I don't have enough percentage of eczema on my whole body to do so. I have it on my fingers, I need my hands, at times my fingers are split bleeding and hurt so much. Vitamins and antihistamines are getting me through rough times.

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@burningfeetinphoenix, I'll add my welcome. I added your discussion to the Skin Health group too (https://connect.mayoclinic.org/group/skin-conditions/) I'm also tagging fellow members @sandrajune @kimass1 @gardeningjunkie @impatient @nimska @yejin @walisky who have experience with atopic dermatitis, some of whom have taken Dupixent (dupilumab).

You may also be interested in these related discussions:
– Adult Onset Atopic Dermatitis: https://connect.mayoclinic.org/discussion/adult-onset-atopic-dermatits/
– Atopic dermatitis and mosqutio bites: https://connect.mayoclinic.org/discussion/atopic-dermatitis-and-mosqutio-bites/

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@colleenyoung

@burningfeetinphoenix, I'll add my welcome. I added your discussion to the Skin Health group too (https://connect.mayoclinic.org/group/skin-conditions/) I'm also tagging fellow members @sandrajune @kimass1 @gardeningjunkie @impatient @nimska @yejin @walisky who have experience with atopic dermatitis, some of whom have taken Dupixent (dupilumab).

You may also be interested in these related discussions:
– Adult Onset Atopic Dermatitis: https://connect.mayoclinic.org/discussion/adult-onset-atopic-dermatits/
– Atopic dermatitis and mosqutio bites: https://connect.mayoclinic.org/discussion/atopic-dermatitis-and-mosqutio-bites/

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Thanks so much! I will definitely look at that discussion group. Pam

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@burningfeetinphoenix

I agree except Duplixent is advertised for AD and it is a a MAB for autoimmune diseases. I read the clinical trials and they found drug very effective for AD.. I found this article on this subject – link below. LMK what you find out. I am seeing another dermatologist for a second opinion. Thank you so much for your help! Pam
https://aacijournal.biomedcentral.com/articles/10.1186/s13223-021-00597-4#:~:text=The%20random%2Deffects%20meta%2Danalysis,erythematosus%2C%20ulcerative%20colitis%20and%20vitiligo.

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@burningfeetinphoenix. Hi, Pam. Sorry it took me a few says to read the articles. I came to Washington, DC to help my mother and lots of things got in the way. The article was very interesting! And so much work involved before they even got to the actual study. Yikes! AD seems to be connected with certain, specific autoimmune diseases.
Have you had symptoms of any ‘strange’ diseases?

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Thanks.! No, I have never had any of these other conditions, only AD. (Well that is my current diagnosis). I am looking at other MAB's for AD and some other similar drugs that act similarly. My life is really being turned upside down due to this skin problem. My research is leading me in so many different directions. I tried to get into Mayo here in Phoenix to no avail. I am going to call Jacksonville tomorrow. Unfortunately my dermatologist is not being very helpful.

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@siosal

I have been on it for a few weeks.
So far no change.

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Is Duplixent helping at all? I am researching other MABs for AD and some similar drugs like Rinvoq from Abbie is a big factor. Pam

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@burningfeetinphoenix

Is Duplixent helping at all? I am researching other MABs for AD and some similar drugs like Rinvoq from Abbie is a big factor. Pam

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Good morning, Pam @burningfeetinphoenix. I see that you’re trying to get an appointment at Mayo. Try this link
https://MayoClinicConnect.in/1mtmR63
Some visits may be virtual, some in person. But, remember that Mayo can’t see everyone, but try anyway. Your doctor may be able to help with a referral.
Have you found any support groups in your area or on Fb?

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