Asthma and Interstitial lung disease

Hi @jmb73 I can only imagine what you are feeling right now.

@noahs @suziropiequet @aldrichgirl @fighter @wendy4122 and @bb729 have all mentioned interstitial lung disease in the past and may be able to offer you some support while you wait to find out the severity and what your treatment options may be.

Has your doctor offered any treatment options thus far?

My doctor said that he believes that he believes there is an error in the test. I have to repeat it.

I only have seen the PA and she has increased my Breo 100 to Breo 200. She said the doctor wanted my asthma under control and to have the HRTC in May and then he would see me and discuss the disease. She said there was no treatment but there are some studies. With the coronavirus, I am staying home as much as possible. I am going to PT as I have gotten a stabbing pain in my head where the pin site (gamma surgery) infection was located. My PC ordered an MRI and she thinks is arthritis in my neck. But now I am afraid to go to PT and will cancel my appointments. The breathing issues have me really worried.

Does anyone have some ideas about ILD- like how to help the symptoms? I always have pressure on my chest but I only use the nebulizer when my breathing gets really bad. I guess that is asthma but is the constant pressure ILD? Thanks Joan

@jmb73- Good morning. Not being able to control symptoms is very upsetting. Have you been to the doctor or spoken with him recently? Have you discussed this issue? How long have you felt these symptoms?
https://www.mayoclinic.org/departments-centers/interstitial-lung-disease-clinic/overview/ovc-20398498
https://www.lung.org/lung-health-and-diseases/lung-disease-lookup/interstitial-lung-disease/

Joan,
I use a nebulizer as needed, but don't wait until "the last minute" to ease the pressure.
I use PROAir & Flovent as well as needed. If you have ILD i am sure you have been told.
The pressure could possibly be do to other lung issues in the pneumonia/tuberculosis family. Your Pulmanolagist can help.

I see my doc in May but he also works in the ICU so I hope he doesn't cancel. I did ask the PA and she said to use the nebulizer as needed. She said it's recommended use is every 6 hours but she wants me to use it if I have any chest congestion. I do have costochronditis and that causes pain and pressure in my chest. I have had these symptoms for 2 years and the doctors say it shouldn't be costochronditis as it has lasted too long. She said there is no treatment for ILD and to just treat my asthma. She said to not get stressed as it will make it worse. Let's see my son just lost his job and he has 2 kids, the corona virus attacks elderly and people who have asthma. He has asthma. My grandson lost his job and his father might lose his. No stress? Sorry to vent. I am sure every one is going through stuff like this. thanks for your help.

@jmb73- YOu can vent all you want at Mayo Connect. Asthma is cruel and for some cases the only thing that will help are inhalers. Do you have any?

Yes I have an inhaler but the PA said the Dr. would rather I use the nebulizer and only use the inhaler in an emergency. I have AFIB and am on nebulizer medicine that only raises my BP. I have high BP too but it isn't going too high. My inhaler isn't supposed to affect my heart either. I take BREO 100 too and once I use up the 100 I go on BREO 200. I need to lose weight as I am sure it would help but my second son just lost his job so I am still eating chocolate! My husband doesn't think I have bad asthma or ILD. I guess the Dr. just likes ordering nebulizers etc. I think he is confused as the last time I was in the hospital they kept saying my lungs sounded good. I went to the ER and was in trauma 1 and then spent 6 days in the hospital with breathing treatments every 4 hours. I also don't understand how my lungs sounded good! Do any of you know why they would say that?

Hi jmb. My lungs too sound good but I have bronchiectasis, a chronic inflammation of the small bronchial tubes with an underlying MAC infection. There’s lots of air in my lungs, just can’t get it in or out. Perhaps you might want to have that checked out. Your pulmonologist can point you in the right direction.