I only have seen the PA and she has increased my Breo 100 to Breo 200. She said the doctor wanted my asthma under control and to have the HRTC in May and then he would see me and discuss the disease. She said there was no treatment but there are some studies. With the coronavirus, I am staying home as much as possible. I am going to PT as I have gotten a stabbing pain in my head where the pin site (gamma surgery) infection was located. My PC ordered an MRI and she thinks is arthritis in my neck. But now I am afraid to go to PT and will cancel my appointments. The breathing issues have me really worried.

Hi there. I was diagnosed with ILD in August 2020. Initially I was prescribed steroids for several months, after which I was prescribed Cellcept, a steroid reducer and often used with transplant patients. My Cellcept dosage has been decreased and I am now on 500 mg a.m. and p.m. My PFT's (pulmonary function tests) have been normal for at least the past six months. So, there is light at the end of the tunnel! The best advice my pulmonologist gave me in 2020 was "Walking is super important." I walk every day and consider this just another prescription. I think this might be why I seem to be doing so well with ILD. I feel great. I hope you have a good pulmonologist. Please, if you feel up to it, walk every day. I wish you well.