Chronic pain - Let's talk

Posted by leh09 @leh09, Mar 23, 2016

Are there any discussions for chronic pain?

Interested in more discussions like this? Go to the Chronic Pain group.

@19lin

I wish I could go swimming as I am disabled and swimming is about the only exercise I could do, but the only swimming pool is too far away and too expensive. Also it is not doctors who are restricting opioids although some doctors are involved.
Due to untimely deaths from over doses the thinking is that eliminate opioids and stop the deaths, but in some journals on pain their are studies that show a high rate of suicide among chronic pain suffers. The limiting of opioids is more likely result in increased suicides as well as more suffers going out side the law for dangerous illegal drugs. I do not see anything good coming from these restrictions.

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Hello Jim,
Thanks for your reply. I just wanted to let you know that I never list the medical mm on my list of medications when I speak to my doctor or when I try to set up an appointment with any other doctor. As soon as I mention the methadone or the oxycodone, either the front office hangs up on me or I am accused of being a heroin addict. Even the big named pharmacies all accuse me of trying to get a fix. For all the retired and disabled people in Tucson, I am amazed at the response from the medical community. I look like an ape when I walk and my walking ‘gate’ is only about 6 inches. My head hangs off to the side because of the arthritic spurs at C-3 so I am a little disgusted with the reaction from the Doctors and the Pharmacists here. I have tried a couple of Pain clinics before, but they haven’t been able to help me at all. Most only recommend physical therapy at $40 or $60 a visit. That’s my co-pay, and if I could afford them I would go, but SSDI doesn’t pay me enough to be able to afford that therapy. Several times this year I have had to choose between medicines and food. In the beginning, I chose the medicines but after 4 days of eating a loaf of bread or corn bread to fill my aching stomach, I found I my glucose levels ranged between 350 and 450 mg/dl. It was a bad choice. Now I try to balance the meds with groceries. It doesn’t work very well. I do feel hopeless about the situation, and so far I haven’t been able to find any supplemental insurance plans or Advantage plans that can help. Even Medicare refuses to help me with the prescriptions. Please, I am not looking for pity, but I just wanted to be honest with you.

Thanks again for your concern,
Bob

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@19lin

I wish I could go swimming as I am disabled and swimming is about the only exercise I could do, but the only swimming pool is too far away and too expensive. Also it is not doctors who are restricting opioids although some doctors are involved.
Due to untimely deaths from over doses the thinking is that eliminate opioids and stop the deaths, but in some journals on pain their are studies that show a high rate of suicide among chronic pain suffers. The limiting of opioids is more likely result in increased suicides as well as more suffers going out side the law for dangerous illegal drugs. I do not see anything good coming from these restrictions.

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@bob815c

I had the thought as I read your post that if I were in your place, I’d call the man who set up our Medicare and supplements, and tell him what’s going on. I’m pretty sure that he’d look at the plans that are available, and find one that would cover the costs of my care. He’s been a good agent, and has done the work of researching.

Gotta go.

Jim

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@kelseydm

Hi @19lin. Welcome to Connect! I understand your concerns and this is a great forum in which to discuss them. I’m tagging @mlemieux, @suebreen54 and @leh09 who may be interested in discussing this as well. I’m also moving your post over to a thread called “Chronic pain – Let’s talk” as I think it’s a good fit for this discussion.

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I've suffered with chronic pain most of my life. I have arthritis which started reading it's ugly head when I was 10 years old. By the time I was 18 it was in my spine. I am 81 and spinal stenosis has almost crippled me. Am on opioids and have had several spinal ablations. One back surgeon 15 years ago said I was inoperable. My pain specialist says it would take a year to recover with no guarantees.

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@leh09

I’m concerned about the new recommended guidelines for opioids. My need is genuine, my dose is low for a chronic pain patient, but I don’t want to have to nearly beg every time I see my pain Doctor. Yes I understand that opioids are not the best choice for chronic pain, but I’ve tried everything else and what I’m on right now works! I haven’t had a dosage increase in a long time however every time I’ve tried to back my dose down the pain is unbearable. I’m so frustrated with it all.

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I understand as well. Both me and my daughter suffer from the same chronic disease.

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@leh09 Welcome to connect We are a group of pain suffere,s ,and so much more If you can give us a little more information about what you have I,m sure someone on here can help with same problem We share with each other as to what helps us with same conditions Looking forward to hearing from you.

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@kimmiesue55

I understand as well. Both me and my daughter suffer from the same chronic disease.

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@kimmiesue55 Welcome to Mayo Clinic Connect, a place to give and get support.

May I ask what chronic disease you and your daughter have?

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