Chronic pain - Let's talk

Posted by leh09 @leh09, Mar 23, 2016

Are there any discussions for chronic pain?

Interested in more discussions like this? Go to the Chronic Pain group.

@19lin

@jvivian Sorry for your situation Pain is very difficult and when mine is at its worst I can not do anything.

You can check with right to die groups, but first you need to write to your elected officials to tell them what is happening. This could help U as well as all the rest of us.

In the news I have already read of many deaths due to the new policy of no opioids. These were from people cut off by official sources who went on the black market and got bad pain medicine that killed them.

The best thing is to go to another town or state and seek help. Also talk to pain doctor about hospice or the use of another non narcotic drug used to help additics come off opioids. This can also help with pain I am told. Called methadone or something else can’t think of the name right now.

One person I talked to told me it helped her with her pain, but her doctors did not tell her about it right away because they did not make as much money from it.

If all else fails there are end of life groups on the internet. Most do not want this, but it may become the real way if they do not do something about the pain.

One article on Oregon law say that many who are eligible get the end of life pills then never use them. Just knowing they are there and they can take them immediately if the pain get to bad helps them get through until nature (God) take them naturally.

I can give you more info if you can contact me on my web site, but the controller here will not let me put it on here. If allowed I can give you information on end of life and I will try to find the name of medicine this other person told me that helped her. Good Luck. 19lin

Sent from Windows Mail

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Hello @jpresti1. I wanted to let you know that your reply to @jvivian may go unanswered as their last post was in 2016.

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“VERY WELL MAY BE” helpful if Yours Truly also was able to read as well —
“I CLAIM PAIN”…..

😜😜😜😜😜😜😜😜😜😜

“MUCH OBLIGED” — JON PRESTI

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@amandajro

Hello @calygirl84. I am so sorry to hear of your chronic pain from your varying diagnosis. You will notice that I have moved your post into an existing discussion with others who also have chronic pain so that you may find solace in not being alone. You can find it here: https://connect.mayoclinic.org/discussion/are-there-any-discussions-for-chronic-pain/

Members such as @lioness @queenmother56 and @kimmiesue55 have recently shared in this discussion and may be able to come back in to share with you.

Do you feel there is a correlation between your 23 and Me results and your health?

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Yes, I do, I think I have very poor muscular skeletal issues.
I have burnt 🥵 my body out by physically overdoing , my work, and play, everything has been too physically demanding.

So I have had so many multiple surgeries, because I not only have osteoarthritis, fibromyalgia, and aching all the time, but no Rheumatoid arthritis.
I wish I felt better at 65, I am recovering from revision back surgery, that is another big heal.
I do thing genetics 🧬 have to play some part?

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@calygirl84

Yes, I do, I think I have very poor muscular skeletal issues.
I have burnt 🥵 my body out by physically overdoing , my work, and play, everything has been too physically demanding.

So I have had so many multiple surgeries, because I not only have osteoarthritis, fibromyalgia, and aching all the time, but no Rheumatoid arthritis.
I wish I felt better at 65, I am recovering from revision back surgery, that is another big heal.
I do thing genetics 🧬 have to play some part?

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Hello @calygirl84, it's nice to meet you. I'm sorry to learn of your chronic pain and symptoms from various health conditions. I'm wondering if you have ever considered Mayo Clinic's Pain Rehabilitation Center? Given your diagnoses and the fact that you want to feel better at age 65, perhaps the PRC would be a good fit.

Here is more about the program:
https://www.mayoclinic.org/departments-centers/pain-rehabilitation-center/sections/overview/ovc-20481691
I graduated the Mayo PRC and can attest that it is an amazing life changing opportunity that works with patients on 4 categories – physical, emotional, behavioral and chemical. These 4 areas, fuel the fire of chronic pain. Ultimately the goal is to learn how to cut the fuel lines off.

What do you think? Might it be a program worth looking into?

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@rwinney

Hello @calygirl84, it's nice to meet you. I'm sorry to learn of your chronic pain and symptoms from various health conditions. I'm wondering if you have ever considered Mayo Clinic's Pain Rehabilitation Center? Given your diagnoses and the fact that you want to feel better at age 65, perhaps the PRC would be a good fit.

Here is more about the program:
https://www.mayoclinic.org/departments-centers/pain-rehabilitation-center/sections/overview/ovc-20481691
I graduated the Mayo PRC and can attest that it is an amazing life changing opportunity that works with patients on 4 categories – physical, emotional, behavioral and chemical. These 4 areas, fuel the fire of chronic pain. Ultimately the goal is to learn how to cut the fuel lines off.

What do you think? Might it be a program worth looking into?

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How does a person living on Social security afford Mayo. I live in FL but they want me to go to Rochester, MN because of multiple rare disorders.

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@schirmeyerk

How does a person living on Social security afford Mayo. I live in FL but they want me to go to Rochester, MN because of multiple rare disorders.

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Hi @schirmeyerk. I understand your concern about affordability. Are you accepted at Mayo Clinic in MN already?

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@schirmeyerk

How does a person living on Social security afford Mayo. I live in FL but they want me to go to Rochester, MN because of multiple rare disorders.

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@schirmeyerk

Mayo offers charitable housing. Learn more here:
https://www.experiencerochestermn.com/mayo-clinic/hotels/charitable-lodging/
I live in NY and went to Mayo Florida. I'm on Medicare – SS disability and my insurance cocered Mayo. Have you spoke to your insurance company yet about out of network coverage?

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I have a rotator injury right shoulder from golf. I have been using heat pads without much success.
What can I do ?

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@johnlschwartz

I have a rotator injury right shoulder from golf. I have been using heat pads without much success.
What can I do ?

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Hi @johnlschwartz, I'm not sure how long you have been battling the the shoulder injury.
Mayo Clinic has some information on the injury and treatments that may be helpful – https://www.mayoclinic.org/diseases-conditions/rotator-cuff-injury/diagnosis-treatment/drc-20350231
Have you looked into any treatments or physical therapy for your rotator injury?

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@schirmeyerk

How does a person living on Social security afford Mayo. I live in FL but they want me to go to Rochester, MN because of multiple rare disorders.

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Mayo has support programs for people who need financial help. Since they have that as part of their mission, give it a shot to apply. I assume Mayo there in Jacksonville doesn’t think they can handle your issues?

In any case, help is available. Ask for their financial support programs and the residential programs they can recommend—there are places you can stay if you have to go. I went to Mayo in Arizona and they worked with me. I had to stay there for months.

Good luck and blessings for you and yours.

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@johnlschwartz

I have a rotator injury right shoulder from golf. I have been using heat pads without much success.
What can I do ?

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I have a rotator cuff tear plus other problems there (injury) and I used Ice to bed with a contraption sold in cvs where you put the ice pack in it and it wraps around your bad shoulder and keeps the ice in place. I needed help putting it on. The strap wraps around. It was agony until I went to physical therapy for a while and continued to use ice. I would question the use of the heat vs. cold. The cold has a numbing effect which is good to alleviate that pain. I used lidocaine roll on they sell at the pharmacy. I hope you feel better. I need surgery to correct mine. Never got it. Now I have two bad shoulders. The new injury.

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