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Chronic pain - Let's talk

Posted by leh09 @leh09, Mar 23, 2016

Are there any discussions for chronic pain?

Interested in more discussions like this? Go to the Chronic Pain Support Group.

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briansr | @briansr | May 22, 2016

@twokitties Hello twokitties my name is briansr..I saw your post and wish you all the luck on your surgery. Ive had 8 low back and cervical surgeries, all were a have to. The first two were lumbar L4-S1, I couldn't walk. You might need some help when you get home. I am done, everyone I've had has caused the disc above or below to crumble. This has been a 33yr battle and they want to another one. I'm sure yours will go fine. I asked my dr what was wrong with me and he just said I was messed up. I will say a prayer for a speedy recoverj and no more leg pain. briansr

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3 replies
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briansr | @briansr | May 23, 2016
In reply to @ladyjane85 "dbentley - I had the pain stimulator put in about 3 years ago, onethat St Judes..." + (show)
Profile picture for ladyjane85 @ladyjane85

dbentley - I had the pain stimulator put in about 3 years ago, one<br>that St Judes uses, true it rumbled my body badly, did no good, and<br>would continue to rumble even after shut off. Had it taken out last<br>year. True there may be a newer model, but I am reluctant to have a<br>6th surgery with 38 staples again. Nothing seems to work for me. hank<br>you - you have an updated one that seems to work better, but one can<br>only withstand so many surgeries.....<br>

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I tried the simulator but only as a test. Hurt like hell but when I went<br>back the dr moved the wires around and it<br>Felt good, he mapped where they were and then removed them. I already have<br>a pain pump and did not want another machine in my body, but it felt great.<br>Maybe you should find another dr to test it first for one or two days and<br>match it to your pain, then say no or yes. But give it another try because<br>it might help a lot briansr.Good luck!!!<br>

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success101 | @success101 | May 23, 2016
In reply to @maggie38 "Hi. I'm Michelle and I've recently had a lumbar spine surgery, which really went very well..." + (show)
Profile picture for maggie38 @maggie38

Hi. I'm Michelle and I've recently had a lumbar spine surgery, which really went very well for my back and took away all the pain. But about three weeks after the surgery I developed nerve pain in the top of my foot and in my big toe . I just begun to take gabapentin but my system doesn't seem to enjoy it. I feel spacey but I can tell it lowers the pain except at night. Just today I tried wrapping A lidocaine patch around the top of my foot and kind of over my big toe. It is really made a difference today, then again I am not sure if it's the gabapentin small dose, or the patch I put on. I have had this chronic pain now for approximately two months perhaps a little longer.

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I would like to hear more from<br>twokitties. Concerning her upcoming<br>surgery on her legs.<br>I seem to be suffering from the same conditions. Seeing chiorpractor<br>now,not sure.have it so bad in hips and down<br>legs. Had PT also,cannot take one<br>mile walk anymore. I too am 72.<br>Love to hear from anyone.<br>Success<br>

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1langla | @1langla | May 23, 2016
In reply to @mlemieux "HI @leh09, I've been through a great deal of chronic pain most of my life. What..." + (show)
Profile picture for Martin @mlemieux

HI @leh09, I've been through a great deal of chronic pain most of my life. What would you like to talk about?

Regards,
Martin R. Lemieux

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I'm sorry 2 hear you've been coping with chronic pain a long time. I haven't had it that long.But,about 20 yrs..I do find it hard 2 cope with so much all the time.Or just about.Take care.

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ladyjane85 | @ladyjane85 | May 23, 2016
In reply to @ladyjane85 "dbentley - I had the pain stimulator put in about 3 years ago, onethat St Judes..." + (show)
Profile picture for ladyjane85 @ladyjane85

dbentley - I had the pain stimulator put in about 3 years ago, one<br>that St Judes uses, true it rumbled my body badly, did no good, and<br>would continue to rumble even after shut off. Had it taken out last<br>year. True there may be a newer model, but I am reluctant to have a<br>6th surgery with 38 staples again. Nothing seems to work for me. hank<br>you - you have an updated one that seems to work better, but one can<br>only withstand so many surgeries.....<br>

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to @briansr from ladyjan85 Had the trial on neurostimulator and then<br>the implant for over one year. Did nothing better than a TENS<br>unit which is only supposed to make your brain forget the pain and listen<br>to the rumble. Huh. If a lot of pain, up to 9 and 10 level does no good.<br>Since this reqired 38 staples to remove, and I had the best neurosurgeon I<br>certainly would not try it again. They admit it MAY reduce as much as 50%<br>of some pain....<br><br>

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ladyjane85 | @ladyjane85 | May 23, 2016
In reply to @maggie38 "Hi. I'm Michelle and I've recently had a lumbar spine surgery, which really went very well..." + (show)
Profile picture for maggie38 @maggie38

Hi. I'm Michelle and I've recently had a lumbar spine surgery, which really went very well for my back and took away all the pain. But about three weeks after the surgery I developed nerve pain in the top of my foot and in my big toe . I just begun to take gabapentin but my system doesn't seem to enjoy it. I feel spacey but I can tell it lowers the pain except at night. Just today I tried wrapping A lidocaine patch around the top of my foot and kind of over my big toe. It is really made a difference today, then again I am not sure if it's the gabapentin small dose, or the patch I put on. I have had this chronic pain now for approximately two months perhaps a little longer.

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@twokitties. Do not worry over a laminectomy - it is a small<br>incision to remove the troubled area. Wait until you need surgery<br>with<br>long incisions up and down with rod and screws. I have had 5<br>surgeries, and many needle procedures. I sincerely hope yours works<br>and that is as far as you need to go in surgeries....ladyjane85<br>

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briansr | @briansr | May 23, 2016
In reply to @suebreen54 "Hi I have chronic pain since 2015 I go to a pain clinic. I used to..." + (show)
Profile picture for suebreen54 @suebreen54

Hi I have chronic pain since 2015 I go to a pain clinic. I used to be involved in the pain association. I'd love to talk anytime. We can do it right here<br />
<br />

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What is the pain assosiation. Ive been in pain for 33yrs, 8spinal surgeries and 5 auto immune diseaces

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ladyjane85 | @ladyjane85 | May 23, 2016
In reply to @suebreen54 "Hi I have chronic pain since 2015 I go to a pain clinic. I used to..." + (show)
Profile picture for suebreen54 @suebreen54

Hi I have chronic pain since 2015 I go to a pain clinic. I used to be involved in the pain association. I'd love to talk anytime. We can do it right here<br />
<br />

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@briansr Do you mean this chat group, or do you mean a Dr who is part of<br>a Pain Management group? ladyjane85<br><br>

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twokitties | @twokitties | May 23, 2016

@success101 Hello. You said you would like to hear from me. Just to tell you a little more about me. My leg pain has been ongoing for over 2 years. I've tried physiotherapy, dry needling, various recommended exercises, chiropractors, acupuncture & an epidural. Nothing helped. I take morphine to be able to cope & I get things done. My surgery is scheduled for June 6th. The thought of the scalpel in my back,makes me shiver but my surgeon is very reassuring & has given me hope. You say you have the same condition. How are you coping?

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2 replies
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twokitties | @twokitties | May 23, 2016
In reply to @twokitties "@success101 Hello. You said you would like to hear from me. Just to tell you a..." + (show)
Profile picture for twokitties @twokitties

@success101 Hello. You said you would like to hear from me. Just to tell you a little more about me. My leg pain has been ongoing for over 2 years. I've tried physiotherapy, dry needling, various recommended exercises, chiropractors, acupuncture & an epidural. Nothing helped. I take morphine to be able to cope & I get things done. My surgery is scheduled for June 6th. The thought of the scalpel in my back,makes me shiver but my surgeon is very reassuring & has given me hope. You say you have the same condition. How are you coping?

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Would like to hear from others who have gone through this.

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