Chronic pain - Let's talk

Posted by leh09 @leh09, Mar 23, 2016

Are there any discussions for chronic pain?

Interested in more discussions like this? Go to the Chronic Pain group.

@leh09

I’m concerned about the new recommended guidelines for opioids. My need is genuine, my dose is low for a chronic pain patient, but I don’t want to have to nearly beg every time I see my pain Doctor. Yes I understand that opioids are not the best choice for chronic pain, but I’ve tried everything else and what I’m on right now works! I haven’t had a dosage increase in a long time however every time I’ve tried to back my dose down the pain is unbearable. I’m so frustrated with it all.

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I agree, I could have said the same thing about my conditions. Even worst for me as a veteran they are trying to pass a law making very difficult if not impossible for veterans to use opioids.

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I wish I could go swimming as I am disabled and swimming is about the only exercise I could do, but the only swimming pool is too far away and too expensive. Also it is not doctors who are restricting opioids although some doctors are involved.
Due to untimely deaths from over doses the thinking is that eliminate opioids and stop the deaths, but in some journals on pain their are studies that show a high rate of suicide among chronic pain suffers. The limiting of opioids is more likely result in increased suicides as well as more suffers going out side the law for dangerous illegal drugs. I do not see anything good coming from these restrictions.

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@19lin

I have had chronic pain for over 40 years and use strong medicine to fight it. My concern is that there are groups trying to ban opioids for everyone except cancer patients and temporary short term use. 19lin

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Thank you, I though I was in the Chronic pain group?

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@suebreen54

Hi I have chronic pain since 2015 I go to a pain clinic. I used to be involved in the pain association. I’d love to talk anytime. We can do it right here

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I’ve had surgeries, injections, nerve burns, multiple medications, psychotherapy, physical therapy, and been thru the pain rehab clinic. The only thing that works is opioids. I’m tired! Tired of doctors that look at me with suspect, tired of the pain. Just so tired. I keep moving, keep going, ride my bike, grocery shop, cook, and once again I’m so tired of it all. I’m NOT suicidal but those thoughts have entered my mind. I SO WISH that medical marijuana was legal so I could try that. I’ve heard it works well, but I live in a conservative state. I’m trying to get on disability, but have been rejected twice. I now have an attorney that is trying. Enough ranting for tonight but it helps to unload to those that might understand.

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@suebreen54

Hi I have chronic pain since 2015 I go to a pain clinic. I used to be involved in the pain association. I’d love to talk anytime. We can do it right here

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I can sympathies. There maybe so other things to try so keep checking on new alternatives and I might suggest you write your elected officials as these are the ones who will make the final decision to shut off opioids. I have tried many things including tems units, acupuncture, and other things. I have not tried hypnosis yet, but that is only because I know of on one in my area who does it for pain. You might try counseling, but be aware any threats of self harm could land you in a hospital. Keep trying to find things that help. One of my big issues is to encourage the development of an objective measure for pain. I think this might help a lot of people as well as doctors. If they could objectively measure our pain and how well pain control methods worked or didn’t work it would make it easier to get better treatment for pain.

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@19lin

I have had chronic pain for over 40 years and use strong medicine to fight it. My concern is that there are groups trying to ban opioids for everyone except cancer patients and temporary short term use. 19lin

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You may have been, but this particular thread has been really active recently, so I moved you over here in hopes you could join the conversation 🙂 Some threads are more active than others, so I wanted you to get the most interaction.

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@19lin

I have had chronic pain for over 40 years and use strong medicine to fight it. My concern is that there are groups trying to ban opioids for everyone except cancer patients and temporary short term use. 19lin

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How do I get on the thread chronic pain lets talk?

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I don’t know for sure as the moderator came on line and moved me there, contact the people who run the site.

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@19lin

I have had chronic pain for over 40 years and use strong medicine to fight it. My concern is that there are groups trying to ban opioids for everyone except cancer patients and temporary short term use. 19lin

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Thank you I appreciate it, but how do you get to this site when I sign on I can not find it?

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@19lin

I wish I could go swimming as I am disabled and swimming is about the only exercise I could do, but the only swimming pool is too far away and too expensive. Also it is not doctors who are restricting opioids although some doctors are involved.
Due to untimely deaths from over doses the thinking is that eliminate opioids and stop the deaths, but in some journals on pain their are studies that show a high rate of suicide among chronic pain suffers. The limiting of opioids is more likely result in increased suicides as well as more suffers going out side the law for dangerous illegal drugs. I do not see anything good coming from these restrictions.

Sent from Windows Mail

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The American Medical Association ( AMA) is who recently made the recommendation to limit opioids to patients with acute pain and cancer and to NOT use opiods for chronic pain. I’m so frustrated feeling like I’m “drug seeking” Well I guess I am drug seeking, just not the same as a drug addict. My message to the AMA is “You may think you know what my chronic pain is, but I don’t think you do. Even those who have experienced chronic pain do not know about MY chronic pain and what works for me!”

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Hi @gravey @19lin @leh09 @suebreen54 @mrsg @excentrk,

As Community Director of Mayo Clinic Connect, I’m thrilled that you have all connected about this very important topic – chronic pain. Having posted to this thread, you automatically receive email notifications when a new message is posted. (You can unsubscribed from these emails at any time.)

If you want to find this thread on the website Mayo Clinic Connect, simply go to the group “Just Want to Talk” https://connect.mayoclinic.org/group/other/?tab=discussions and then click the thread titled “Chronic pain – Let’s talk”.

Let’s keep talking and as @leh09 @suebreen54 suggest, keep walking 🙂

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@mlemieux

HI @leh09, I’ve been through a great deal of chronic pain most of my life. What would you like to talk about?

Regards,
Martin R. Lemieux

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I hit click for no notifications and know I’m trying to get back

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