Mayo Clinic Connect
The PTSD has been rearing its vicious head as I am now dealing with bladder cancer and all of the spreading my legs for treatment. I do okay until the fallout afterwards. Lot of time lost and not wanting to continue on with the BCG. Weekly treatments and no time to adequately regroup. The PTSD still can keep me in its grip. Not sure if it's worth it.
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@parus Can you find something to focus on during/just after treatment? Do self-talk that lets you know you have chosen this treatment to help yourself get better/healthier? Reward yourself, congratulate yourself for having the strength [physically, mentally, emotionally] to go through this. Because you are strong!
Liked by Teresa, Volunteer Mentor, Lisa Lucier, Connect Moderator
This is a tough one, @parus. The "fallout afterward" as you put it can be difficult. How many treatments are required?
@parus– There really is no way to get around the compromising positions women have to endure with certain tests or treatments. I don't envy you this and it's difficult to imagine that such positions are "a blessing." I'm wondering if you are lying down or sitting up during treatments. And the reason that I'm wondering is that is, if you are sitting up you could read, listen to music, anything to help keep you mind on something else, once you are all settled. Having cancer will definitely wake PTSD up and let it play for a while, but after your cancer has been treated you can do all the things that you have done in the past to make it go back in it's closet.
Are you reacting ok with any side effects?
I have had several rounds of ECT, and it isn't possible to read or concentrate on something else. You are put to sleep with a little Propofol, then the electric current is run through your body for a few seconds, which induces a strong seizure. When you wake up, you will feel like someone walked on you. Every muscle in your body will hurt. Whether or not the ordeal is useful is up to each patient to decided. I don't think I got anything of value from the procedure. However, I have had one ketamine infusion, and I'm going for my second next week. It is supposed to help your pain, in my case, my back. I believe it has marginally. It also has therapeutic properties. I went to sleep and felt very relaxed for several days. Think it over. I will be glad to answer questions.
Liked by Lisa Lucier, Connect Moderator, Ginger, Volunteer Mentor
Hi Vicki, I had ECT when I was 18. In those you were not given any sedation. Woke up in my room and had no memory of the procedure. Someone sat with me until little by little my memory came back but not sure how much it did. Having PTSD did I block parts of my childhood, or was it the ECT? I had 35 sessions, s lot, is that amount done today? As far as I know it did nothing for me? I don't remember if I had muscle pain or just pain? I know I need that person to sit with me because I was so confused. I was an in-patient in a beautiful hotel like setting. My parents did their best for me. Curious to the setting you were in before it was done. For me, It was done in the basement sitting on a long bench waiting with others, a nurse would call our name when we were next. We also heard the noise, scary. I haven't thought about that in years.
Liked by Merry, Volunteer Mentor
Dear Parus, this is peach. It is not your fault for having the trauma of ptsd. This comes from me peach who also has had PTSD since birth. My earliest recollection as a child was when I was approximately three years old. I woke up in a dark room on a bed, I was gasping for breath and chocking. I heard women's voices coming from another room. It was my grandmothers and my mothers voices. They were arguing. I smelled my grandmothers smell on the sheets. Now all was ok. My grandma was here. My mother tried to strangle me. This was only the beginning of a most terrible,terrible life. Both mental and physical torture and pain. And this goes even deeper than one can imagine. (I have always wanted to write a book about this.). It never stopped and went on until I ran away. I think being treated this way, at home, at work in the army at war, etc. This is the brain being whipped into submission with extreme pain. My story goes deep and I am sure this affects every other person under these many circumstances. Some how keep up your hope, pray, do anything to keep holding on. With the most endearing love for you, Peach
Liked by Lisa Lucier, Connect Moderator, Merry, Volunteer Mentor, Ginger, Volunteer Mentor
Dear Hopeful, I think the treatments go on till you die. Tomorrow I will be 82 years old and am still needing treatments. I am also waiting to hear from my doctor this Tuesday if I have ovarian cancer.
Oh boy, you are right. To keep myself going I watch television, listen to the radio. do crossword puzzles and jigsaw puzzles. Also as many other things to do as possible. Keep as busy as possible so when you do rest you will enjoy it. Peach
Liked by Merry, Volunteer Mentor, Ginger, Volunteer Mentor
I also have PTSD. To keep myself busy I bought coloring books that are very popular. The time goes so fast because I shade and think about the colors, how it would look, I look at the clock, hours have gone by. Helps keep those memories or some of them away.
Hi Peach, my thoughts are with you. Please let us know about Tues.. May I ask what kind of treatments are you getting? Have a restful evening.
Liked by Lisa Lucier, Connect Moderator, Merry, Volunteer Mentor
@peach14144 We will be thinking of you on Tues. Please let us know, if you'd like to share, what the Dr says. We care.
Yes, I will write again Tuesday. Perhaps the doctor will need to send in a sample, (biopsy). I have so many other illnesses that in a way I accept this one to join the rest of the gang. Remember, you must some how keep up the humor. Than you all as this caring does help me and the others. Peach
Oh!, bye the way I have forgiven my mother and do understand the sadness and misery in her life. To me it is healing.
@peach14144 Yes, humor is a good thing. I tend to go to humor to lighten a super serious situation, when it is appropriate [sometimes it has backfired, though!] It often takes the edge off, and eases a lot of tension in the room with doctors. I tell my drs that my body is having its own little civil war, since everything is autoimmune.
@parus. Hey Parus, I have been away, dealing with issues and I didn’t know you had bladder cancer. I am so sorry. But if I know you, this will be a fight – with you as a victor. I don’t know how often you’ve had to do the spread legs bit but, for me, the more it’s done, the easier it gets. Parus, I dearly hope I haven’t said the wrong thing here. I’m always cautious to not offend an ill person. You’ve been a help to me, I hope I can help you by praying……..,.,Karen
Liked by Lisa Lucier, Connect Moderator, Parus, Merry, Volunteer Mentor
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