Anybody else have Factor V Leiden?

Posted by patientk @patientk, Jun 24, 2021

Anybody else have factor 2 and factor v leiden what has been your expierence with them

Interested in more discussions like this? Go to the Blood Cancers & Disorders group.

Hi @patientk, allow me to connect you with fellow members @piglit @sherohio @susangourdlady @mlemieux and others who have written about living with factor V leiden and related mutations.

You may also be interested in these discussions
– Newly diagnosed with coagulant factors https://connect.mayoclinic.org/discussion/newly-diagnosed-with-coagulant-factors/
– Factor V Leiden and MTHFR mutations-Blood clots in femoral artery https://connect.mayoclinic.org/discussion/factor-v-leiden-and-mthfr-mutations-blood-clots-in-femoral-artery/

And this blog post
– Clotting disorders: Factor V Leiden and blood clots https://connect.mayoclinic.org/page/hematology/newsfeed-post/clotting-disorders-factor-v-leiden-and-blood-clots/

What lifestyle changes or habits help you to live well with Factor I and Factor V Leiden?

REPLY

Hi. I just returned from a Doppler having my second clot. I went off Coumadin to have surgery and was off too long

Previously I had a dvt almost 20 years ago I’ve been on Coumadin since.

Leiden Factor V is more common than you think.

I hope you remain healthy

REPLY
@hollyteachet

Hi. I just returned from a Doppler having my second clot. I went off Coumadin to have surgery and was off too long

Previously I had a dvt almost 20 years ago I’ve been on Coumadin since.

Leiden Factor V is more common than you think.

I hope you remain healthy

Jump to this post

Welcome @hollyteachet. I moved your message to this more recent discussion about Factor V Leiden so you can connect with @patientk and others.

Are you back on Coumadin now?

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Yes, in 2017…Memorial Day I went to the hospital ER feeling sick but not sick enough to go to the hospital, I thought. But my late husband thought otherwise. I had been experiencing shortness of breath. But attributed this to an upcoming birthday! After several tests at the hospital, I was told I would be hospitalized. I had dvt and PE's. I looked at the dr. and said…"Am I going to die?" He said "No…but if you had not gotten here in a timely manner, you could have experience a heart attack, stroke….or even death. For 3 days, I had both arms inserted with IV's and one of the medications was Heparin which dissolves clots. Because I had not been in an accident, gone on a long flight where I could not move around, had surgery (but I had cataract surgery but they said during cataract surgery one is not sedated very long), a hematologist was called in. She diagnosed me with Factor V Leiden. Sent me home with Xarelto which broke me out in a rash and then changed to Eliqus. I have been fine since but don't like being on a blood thinner….which she said I will be on indefinitely.

REPLY
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