Connect
← Return to Anybody else have Factor V Leiden?
Discussion
Anybody else have Factor V Leiden?
Blood Cancers & Disorders | Last Active: Apr 19 12:08pm | Replies (43)Comment receiving replies
I have Factor V Leiden and found out I had it when I was having pain in my right leg for about a week and then got shortness of breath and got worse as days went by. Mentioned to my doctor and she prescribed an inhaler because I do have bronchial asthma. Next day my breathing was getting so bad I went to the ER and they did some X-rays and admitted me due to blood clots in both lungs. Pulmonary Embolism. After tests I was diagnosed with the Factor V Leiden. I have been taking Xarelto blood thinner medication ever since.
Replies to "I have Factor V Leiden and found out I had it when I was having pain..."
Connect
Hello. How have you been doing with Xarelto? I started taking 10mgs a day about 8 months ago after developing a DVT after a 15 hour train ride and wearing compression hose that I feel CAUSED the clot since it formed under my knee right where the sock was tightest. Or could've just been from the long ride and not moving enough.
Discovered I carry Factor 4 (doubly heteroz.) when I was pregnant at 36 (now I'm 57) and had a DVT. Leg was swollen and painful but no one seemed to suspect a clot - luckily I read about DVT in What to Expect When You're Expecting!
Now I feel - and fear - that the Xarelto is causing new symptoms and side effects that have been popping up like trace blood in my urine, bladder urgency and discomfort off an on. I just stopped taking Xarelto since I'm very active and am curious to see if some of these symptoms go away. I'll probably go back on it but since my two clots were provoked I figure I'm safe if staying active...?
Interested in any shared experiences and happy to share mine!