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Anybody else have Factor V Leiden?

Blood Cancers & Disorders | Last Active: Apr 19 12:08pm | Replies (43)
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@ahum

Just happened to me. Had shortness of breath and thought I had pneumonia so went to hospital and was told I had PE in multiple arteries and DVT in calf on left side. Kept in hospital 3 days with lovenox injections and sent home with 10 day supply of injections and then to switch to a pill. This just happened and came out if blue. I was walking 5mls a day. I’m 55 and have teens at home. This thread makes me feel better that thus will resolve eventually. Thank you!

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marine1954 | @marine1954 | Oct 25, 2022

had factor v for 48 years i have had three pe now i need surgery and i and worry about another dvt or pe

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Colleen Young, Connect Director | @colleenyoung | Oct 29, 2022

Welcome @ahum and @marine1954, that is unsettling to fear a blood clot that could cause a pulmonary embolism (PE) or deep vein thrombosis (DVT).

Did your care team offer suggestions on how to prevent blood clots?

Marine, what surgery will you be having?

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