Pediatric Alopecia

Posted by .harp player @amberpep, Aug 7, 2017

I have a dear friend whose 12 year old granddaughter has lost every bit of her hair. Her hair was gorgeous, long, brown, and shiny. Then it began to fall out in clumps, until now she is bald. The doctor diagnosed her with alopecia, but something doesn’t feel right about that to me. Why would this happen to such a young person. She’s a dear, sweet, girl, very conscientious and respectful. Can anyone tell me anything about this?
abby

@amberpep – Abby, Here is the link to alopecia by Mayo Clinic.
http://www.mayoclinic.org/diseases-conditions/hair-loss/basics/definition/con-20027666
I have a friend at church who has been bald for years from it. I remember when he was loosing his hair due to alopecia years ago. I do not know anything ele about it except to send this information to you.

Unfortunately, health conditions can come upon any of us, even sweet little girls. I was once a sweet little girl (that’s what my mom said) and at 12 years of age I had beautiful almost black curly hair that was beginning to turn gray. It developed into a silvery streak that I hated. Now I am completely silver. And now I like it.
Rosemary

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@rosemarya Rosemary, I am sure you were a sweet little girl. You started turning grey that young! My sister did in HS and she is quite white now. I love the look of white hair, and it looks good on her. I’m not sure color you would call my hair now, only my hair dresser knows for sure. My husband, my daughter and I all consider me to still be a redhead but I think that’s a stretch. I started losing some hair recently but when I started taking biotin it really helped I think. My hair is sort of thin so I can’t afford to lose what I have.

JK

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Hi @amberpep,

Here’s some information about hair loss in children, from the American Hair Loss Association:
http://www.americanhairloss.org/children_hair_loss/causes_treatment.asp
Is your friend’s granddaughter on any medication, or has she had any recent illness?

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Hi … No, as far as I know she isn’t on any medications. She’s very bright and does not allow herself any slack at all … high stress. I don’t know if stress can make this worse or not, but it’s sad for a girl her age …. right before puberty. Her parents have gotten her a natural hair wig, but it’s not the same.
abby

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Hi @amberpep,

How is your friend’s granddaughter doing?

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Hi there …. thanks for thinking of her. She’s the same. She either goes to school totally bald or wears the real hair wig her parents got her. She is an extremely conscientious little girl …… far beyond her 13 years. Neither of her parents are real sharp and (I’m just hypothesizing here) I can imagine her folks telling her if she wanted to go to college she better be sure to get a scholarship because they couldn’t pay for it. I don’t know that, obviously, but she puts herself under so much stress that I can imagine it could be at least part of this. Everything she does, she does perfectly.
abby

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Amber, I'm so sorry to hear about your friends daughter. I have suffered with alopecia since I was 17 years old, I am 64 now. Fortunately, I have only ever lost it in small clumps, about the size of a quarter. In beginning, I use to get cortisone shots all around the affected area. By the 5 time I had it, I decided to just wait it out and let it grow back in it's own time – which took about 6 months. Once doctor attributed it to stress, another said auto immune. What I do know, is that every time I had a reoccurrence, it was during an extremely stressful situation in my life. I hadn't had an episode for about 18 years, but did have another recently, a my hair wasn't growing back. I thought perhaps there may be new information and treatments so I went to U Penn to see their dermatologists, but there is no new information and they still don't know definitively why it happens. This time however it took a series of 8 injections about a month apart.

I will pray for your friends daughter.
Pam

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I have a almost 2 yr old grandson who was diagnosed with Alopecia. He has one circular bald spot on top of head. Doctor wants to start him on a ointment usually prescribed for 12 and up, Clobetasol 0.05%. My daughter will hold off on this until sees a pediatric derm in Sept.
Of interest is that he is a twin, sister also has very thin hair. My daughter was told this may be a result of her thyroid condition. Wondering if anyone has any experience in this disease with children. Thank you in advance.

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@collierga

I have a almost 2 yr old grandson who was diagnosed with Alopecia. He has one circular bald spot on top of head. Doctor wants to start him on a ointment usually prescribed for 12 and up, Clobetasol 0.05%. My daughter will hold off on this until sees a pediatric derm in Sept.
Of interest is that he is a twin, sister also has very thin hair. My daughter was told this may be a result of her thyroid condition. Wondering if anyone has any experience in this disease with children. Thank you in advance.

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Hello @collierga, You will noticed we moved your post to the following existing discussion – Pediatric Alopecia where you can meet other members who have shared their experiences. If you click the VIEW & REPLY button at the bottom of the email notification it will take you to the discussion where you can read and ask other questions you may have. I did find an article from 2019 you may find helpful.

Pediatric Alopecia Areata: What Is Known and What Is New:
https://www.the-dermatologist.com/article/pediatric-alopecia-areata-what-known-and-what-new

Are you able to share why your daughter thinks it might be a result of her thyroid condition?

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The adult dermatologist told her it may be from her thyroid condition. They have a appointment next week with a Pediatric dermatologist at Milwaukee Children's hospital

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@collierga

The adult dermatologist told her it may be from her thyroid condition. They have a appointment next week with a Pediatric dermatologist at Milwaukee Children's hospital

Jump to this post

@collierga, that is good news that you have an appointment with a pediatric dermatologist at the Milwaukee Children's Hospital. Hopefully they will be able to diagnose the cause and provide a treatment. Will you share an update with us after her appointment?

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@collierga– it is very upsetting to see a child with hair loss. The Pediatric dermatologist will explain and treat. It’s an autoimmune disease- dermatologists often inject steroids into the patch.
It is hard to pinpoint the cause- thyroid disease could be a factor, but many times it is not known.

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@johnbishop

@collierga, that is good news that you have an appointment with a pediatric dermatologist at the Milwaukee Children's Hospital. Hopefully they will be able to diagnose the cause and provide a treatment. Will you share an update with us after her appointment?

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You bet, thanks for your help

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@johnbishop

@collierga, that is good news that you have an appointment with a pediatric dermatologist at the Milwaukee Children's Hospital. Hopefully they will be able to diagnose the cause and provide a treatment. Will you share an update with us after her appointment?

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Good morning
Update on my 2 yr old grandson . Pediatric Dermatologist agreed with diagnosis of alopecia. Very helpful and reassuring to my daughter and son in law.
Even though may have hair loss can live a normal life. Also said there is a lot of research being done.

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@collierga

Good morning
Update on my 2 yr old grandson . Pediatric Dermatologist agreed with diagnosis of alopecia. Very helpful and reassuring to my daughter and son in law.
Even though may have hair loss can live a normal life. Also said there is a lot of research being done.

Jump to this post

@collierga, That must be comforting and reassuring to you also, as well as your daughter and son in law. Thank you for sharing the update. Have you ever used Google Scholar (https://scholar.google.com/)? I did a search using "alopecia + children + hair loss + home remedies" and found a free book – Hair and Scalp Treatments – Treatments in Children that you can download as a PDF or an EPUB format file: https://link.springer.com/chapter/10.1007/978-3-030-21555-2_16

I haven't looked at it too closely but the introduction sounds like it might offer some suggestions and it was first made available online September 13th, 2019.
"Introduction
Hair loss in children is a distressful situation for patients and, particularly, parents. Treatment of these patients is commonly a source of concern for physicians as well. It is important to correctly identify the cause of hair loss in children and to determine if there are any potential underlying medical conditions that will require further investigation and care. Additionally, lack of clinical trials and clinical research results in a paucity of data regarding treatment efficacy and safety in this specific population. Weighing the risks versus benefits of therapy for hair loss is a point that has to be readdressed in every consultation. In this chapter, we discuss treatment of common types of hair loss in children based on current literature and experience."

Thanks again for sharing the update which is helpful for other members of the discussion.

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