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Posted by triumph2020 @triumph2020, Jul 21, 2021

First time here, is this still active, don't see yr 2021 anywhere

Interested in more discussions like this? Go to the Brain & Nervous System group.

I fall quite often, no warning. Low B12, folic acid and iron level is 22. I’ve had multiple blood tests, bone marrow biopsy, CT’s, MRI’s and nerve conduction study, nothing found. I’ve been off work since Jan 28 2021, due to severe tailbone pain. I’ve lost 60+ lbs since December for no reason, feet go numb, sometimes from my waist down.

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Hello @triumph2020, Welcome to Connect, an online community where patients and caregivers share their experiences, find support and exchange information with others. Yes, Mayo Clinic Connect is still active! Some discussions and topics are older than others. You may want to look at the Tips on How to Use the Site which is in the upper right corner of the Connect home page. Here's the link just in case you are not on the home page – https://connect.mayoclinic.org/get-started-on-connect/.

May I ask what you were searching for when you found Connect and started this discussion?

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@robin396

I fall quite often, no warning. Low B12, folic acid and iron level is 22. I’ve had multiple blood tests, bone marrow biopsy, CT’s, MRI’s and nerve conduction study, nothing found. I’ve been off work since Jan 28 2021, due to severe tailbone pain. I’ve lost 60+ lbs since December for no reason, feet go numb, sometimes from my waist down.

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Hello @robin396, Welcome to Connect. I'm sorry to hear you've been off work since January due to severe tailbone pain. I know it can be frustrating when doctors can't figure out what is causing your symptoms and have run many tests. You may also be interested in the following discussion:

— Extreme weight loss, cannot eat. No diagnosis yet.: https://connect.mayoclinic.org/discussion/extreme-weight-loss/

I'm not sure if it's an option for you but have you thought about seeking help at a major teaching hospital or health facility like Mayo Clinic? If you would like to seek help from Mayo Clinic, contact one of the appointment offices. The contact information for Minnesota, Arizona and Florida can be found here http://mayocl.in/1mtmR63.

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@johnbishop

Hello @robin396, Welcome to Connect. I'm sorry to hear you've been off work since January due to severe tailbone pain. I know it can be frustrating when doctors can't figure out what is causing your symptoms and have run many tests. You may also be interested in the following discussion:

— Extreme weight loss, cannot eat. No diagnosis yet.: https://connect.mayoclinic.org/discussion/extreme-weight-loss/

I'm not sure if it's an option for you but have you thought about seeking help at a major teaching hospital or health facility like Mayo Clinic? If you would like to seek help from Mayo Clinic, contact one of the appointment offices. The contact information for Minnesota, Arizona and Florida can be found here http://mayocl.in/1mtmR63.

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I went to an oncologist/hematologist in Jackson, MS, he did blood tests and a bone marrow biopsy. My blood test showed a faint band on my gamma region, but biopsy showed nothing. He suggested that I might want to go to the Mayo Clinic. I saw a dermatologist for the waxy rash on my face and my hair falling out, she said that it looks like an autoimmune disease that my body isn’t fighting and it is attacking my nervous and neurological systems. I fall very often, with no warning, I have low B12, folic acid and my iron level is 22. My vision is extremely blurry unless I put on +1.50 readers, I have never had to wear glasses. I have the feeling of an electrical jolt in my feet and then they go numb. I have constant headaches with hardly any relief. I have had shingles 3 times since January of this year, I’ve lost 60+ lbs not intentionally. Some days I am numb from my waist down. Any ideas?

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@robin396

I went to an oncologist/hematologist in Jackson, MS, he did blood tests and a bone marrow biopsy. My blood test showed a faint band on my gamma region, but biopsy showed nothing. He suggested that I might want to go to the Mayo Clinic. I saw a dermatologist for the waxy rash on my face and my hair falling out, she said that it looks like an autoimmune disease that my body isn’t fighting and it is attacking my nervous and neurological systems. I fall very often, with no warning, I have low B12, folic acid and my iron level is 22. My vision is extremely blurry unless I put on +1.50 readers, I have never had to wear glasses. I have the feeling of an electrical jolt in my feet and then they go numb. I have constant headaches with hardly any relief. I have had shingles 3 times since January of this year, I’ve lost 60+ lbs not intentionally. Some days I am numb from my waist down. Any ideas?

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@robin396, Just a quick search on a medical symptom checker for Blurred vision, Joint pain, Numbness there are many conditions that can cause the symptoms. That's probably why your oncologist/hematologist mentioned you might want to go to Mayo Clinic. Here's a symptom checker if you want to give it a try – https://symptoms.webmd.com/.

Have you thought about seeking help at a major teaching hospital or health facility like Mayo Clinic? If you would like to seek help from Mayo Clinic, contact one of the appointment offices. The contact information for Minnesota, Arizona and Florida can be found here http://mayocl.in/1mtmR63.

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What should I do to make an appointment? I need answers

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@robin396

What should I do to make an appointment? I need answers

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To make an appointment, contact Mayo Clinic using the following link – http://mayocl.in/1mtmR63.

You might also want to look at these discussions for some tips:
— Your Tips on How to Get Off to the Best Start with a New Specialist: https://connect.mayoclinic.org/discussion/your-tips-on-how-to-get-off-to-the-best-start-with-a-new-specialist/
— Tips for your first Mayo Clinic visit and tests/appt schedules: https://connect.mayoclinic.org/discussion/tips-for-first-dr-visit-and-testsappt-schedules/
— Initial Visit to Mayo Clinic – How Long Should I Expect to be There?: https://connect.mayoclinic.org/discussion/initial-visit-in-jacksonville-how-long-should-i-expect-to-be-there/

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