Initial Visit in Jacksonville- How Long Should I Expect to be There?

Posted by katieknight @katieknight, Wed, Apr 24 3:38pm

Hello,

I have my first initial visit/ consultation for the hematology/oncology department in Jacksonville in May. I figured it would be a couple hours for the whole appointment/ tests (if any) and that I would just drive home afterwards (I live 2.5 hours away). From what I am reading- it loos like that is not the case? Do most people that go to Mayo stay for a minimum of 3-4 days to have tests done? Or are one-day appointments just as likely? What can I expect? I am bringing a lot of recent biopsies, lab work, CT's, etc.from my referring doctor.

Thank you!

My initial visit to mayo in Rochester was 4 days. A lot depends on what tests they’ll accept from your previous facility. It was my experience that they wanted results from their own testing. Another factor is the logistics of having that many appointments and scheduling them without any overlap. I worked with scheduling and my pre-coordinator and they were very helpful. It might be a little overwhelming at first but if you get comfortable with your schedule and get to know the footprint of the campus you will be okay. I had a liver transplant because of cancer and just celebrated my third anniversary on 4/10.

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@des46893

My initial visit to mayo in Rochester was 4 days. A lot depends on what tests they’ll accept from your previous facility. It was my experience that they wanted results from their own testing. Another factor is the logistics of having that many appointments and scheduling them without any overlap. I worked with scheduling and my pre-coordinator and they were very helpful. It might be a little overwhelming at first but if you get comfortable with your schedule and get to know the footprint of the campus you will be okay. I had a liver transplant because of cancer and just celebrated my third anniversary on 4/10.

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Thank you for your input, and i’m so happy you’re doing well now!

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@des46893

My initial visit to mayo in Rochester was 4 days. A lot depends on what tests they’ll accept from your previous facility. It was my experience that they wanted results from their own testing. Another factor is the logistics of having that many appointments and scheduling them without any overlap. I worked with scheduling and my pre-coordinator and they were very helpful. It might be a little overwhelming at first but if you get comfortable with your schedule and get to know the footprint of the campus you will be okay. I had a liver transplant because of cancer and just celebrated my third anniversary on 4/10.

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@des46893 you had a liver transplant because of cancer? I had no idea they did transplants for that. When I had cirrhosis I did have a couple of malignant lesions and if there had been more, or if they were larger than a certain size, I would not be able to be a candidate for transplant. I have wondered why they can’t do transplants for pancreatic cancer, but I guess if it has progressed there is concern that it could have metastasized. I am under watch for that now, I had an MRI on Monday and will see my oncologist on Friday.
JK

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I just returned from Mayo Rochester. I was there 5 business days and it still wasn’t long enough. If you have a complicated case, I would suggest 7 business days (maybe drive home for the weekend?). A word of warning: some offices will not allow a follow-up until *all* of the tests and labs are done. They weren’t able to get my last test scheduled while I was there and the Neurology office absolutely refused to allow me to see the doctor to discuss the 5 test and 30 or so labs I was able to get done, before I flew home. So I have to fly back to Rochester for the test and follow-up appointment. You may want to check with the office you’re seeing and find out how they handle follow-ups. And as a previous poster said: they want their own results. I had labs, tests and scans repeated that I had done at home within the last 3-4 months, but they wanted their own. A very expensive and time consuming “preference” for the patient to deal with, especially for things that don’t change over time (I.e. negative labs for infectious disease and heavy metals). I hope your trip goes well and they are able to help you.

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@tnraemae

I just returned from Mayo Rochester. I was there 5 business days and it still wasn’t long enough. If you have a complicated case, I would suggest 7 business days (maybe drive home for the weekend?). A word of warning: some offices will not allow a follow-up until *all* of the tests and labs are done. They weren’t able to get my last test scheduled while I was there and the Neurology office absolutely refused to allow me to see the doctor to discuss the 5 test and 30 or so labs I was able to get done, before I flew home. So I have to fly back to Rochester for the test and follow-up appointment. You may want to check with the office you’re seeing and find out how they handle follow-ups. And as a previous poster said: they want their own results. I had labs, tests and scans repeated that I had done at home within the last 3-4 months, but they wanted their own. A very expensive and time consuming “preference” for the patient to deal with, especially for things that don’t change over time (I.e. negative labs for infectious disease and heavy metals). I hope your trip goes well and they are able to help you.

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Thanks for sharing your experience. Hope you’re feeling better! I only live 2.5 hours away, so I guess it won’t be too bad

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@contentandwell

@des46893 you had a liver transplant because of cancer? I had no idea they did transplants for that. When I had cirrhosis I did have a couple of malignant lesions and if there had been more, or if they were larger than a certain size, I would not be able to be a candidate for transplant. I have wondered why they can’t do transplants for pancreatic cancer, but I guess if it has progressed there is concern that it could have metastasized. I am under watch for that now, I had an MRI on Monday and will see my oncologist on Friday.
JK

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I underwent a procedure called chemoembolization where they treat the tumor and then seal off all blood supply to that area. I returned to mayo every 3 months for pictures to track the the effectiveness of the treatment. And like you Nash was a complicating factor in the diseased liver

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Hi, @katieknight. I have not met you before, and so I want to say welcome to Connect. My experience with Mayo is that they are very thorough in their approach. And if one test is enough, that they do not order others. Sometime outside results and images are accepted, and other times Mayo will need a more accurate or even updated result. It is a team approach and every patient is treated as a unique individual.

Once I was scheduled to fly from Kentucky to Rochester for one test at the request of my home transplant department. My appointment schedule noted only 1 appointment, and my husband and I wondered how long to stay, so we planned on several extra days. (Due to severe health complications, I never made it to this appointment, however I did get my transplant at Mayo Rochester). Looking back, we realize that for the original appointment, I could very well have been finished with test, had the doctor visit, and diagnosis all completed in a matter of hours. -so it is possible in some situations.

I hope your visit goes well for you. May you have a safe trip.
I look forward to hearing an update after your appointment.
Have you thought about calling the hematology/oncology department where you are scheduled to see if they can answer your length of stay question?

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Hi @katieknight,
I'd like to add my welcome. Like Rosemary, I suggest that you call Mayo Clinic and ask for as much information as they can give you so that you can get a better idea of what to expect. I'd also like to tag fellow Connect members who have been patients at the Cancer Center at Mayo Jacksonville. @travelgirl @burrkay @ocarlson and @samlerpe can share more about their experiences with first consults and subsequent appointments, travel, etc.

@katieknight, do you already have a diagnosis?

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Our experience with Jacksonville is subsequent to thoracic surgery in Rochester for NSCLC…
Our experience with our first appointment there was that we first sent overnight (first delivery) on a Thursday, a cover letter and records including biopsies and scans with a brief outline of my wife’s history.
Within 48 hours (the following Monday) we received a call asking us to get there ASAP., as they had diagnosed a cancer in the lung from the scans and biopsies we had forwarded.
We arrived on the following Monday AM for a meeting with the PA, tests for a few days…that Friday AM-VATS surgery, hospitalIzed with dismissal on Sunday after a bi-lobectemy.
So..
Question is do u have a diagnosis and your tests including all scans?
My guess would be plan on consult meeting with the PA, tests, and subsequent meeting towards the end of the week with the PA and surgeon or oncologist to lay out the strategy…return trip perhaps the following week.
Good luck!

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@katieknight When I first went to Mayo Clinic I was told by the GI department to plan on staying a few nights. If they feel you need any testing they will schedule pronto. The GI department was scheduling a colonoscopy .

Usually my Hematology appointments can be all done in one day. Blood, Ct's and meet with the Dr in the afternoon.

It just depends on what you are having done? They also had me fax all my medical records so they could go through in advance. That way thye knew what to schedule.

I wish you the best at Mayo. If you need anything or have more questions pop back online.
Jackie

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I went to Scottsdale last year and had a full neurological work up with multiple tests within 5 days. Returned from Florida expecting to have a vascular work up at the request of my primary care doc in CA. Appt lasted a full 15 minutes and that was it. $2500 in air and hotel for 15 minutes.
My primary care doc was shocked

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@socagirl

I went to Scottsdale last year and had a full neurological work up with multiple tests within 5 days. Returned from Florida expecting to have a vascular work up at the request of my primary care doc in CA. Appt lasted a full 15 minutes and that was it. $2500 in air and hotel for 15 minutes.
My primary care doc was shocked

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Hi @socagirl, I'm sorry to hear of your experience. I strongly recommend that you contact the Office of Patient Experience in Florida. Here is the contact information.
Mayo Clinic Office of Patient Experience
https://www.mayoclinic.org/about-mayo-clinic/patient-experience
Jacksonville campus:
FLAOFFPATEXP@mayo.edu
904-953-2019

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Thank you. Mayo did respond to my concerns . Although they could do nothing more than assure me that they would address my specific complaints, at least I felt as if they took me seriously and would possibly use my feedback in a constructive manner.

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@socagirl hello! I’m a liver transplant recipient at Mayo Jacksonville. I had my initial visit one year ago. I was told ahead of time that I needed to be there for 3 weeks to complete my initial visit. It may be different for your medical issue. You may need to contact Mayo to find out how long your initial visit will be. Wishing you the best!

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