Extreme weight loss, cannot eat. No diagnosis yet.

Posted by filiond @filiond, Apr 13 3:44pm

have extreme weight loss cannot eat. Have bad cramps in back and upper stomach. have had endoscopie and colonoscopie and full blood and stool seem normal. have seen 2 gastro doctors who have no answers for me. Lost 40 lbs in 6 months. have also had scan with contrast for digestion system
which is normal Am followed by nathuropath doctor who is giving me enzymes and probiotics that don’t seem to work Any opinions!

@filinoid Hi Welcome to connect where we try to help if we can . We aren't Dr.s but have lots of experience. With back and stomach problems and they have ruled out any digestive problems. Have you thought it might be your kidneys? Maybe a Urologist would be able to help you out Where in your back is your pain? Does it radiate around to your stomach ? Can you give us some more detail? Let us hear from you again.

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Hi. @filiond A few years ago I decided that I was no way going to move up any more sizes of Wranglers and determined to shed the weight I had gained over the previous decade. In six months I lost 55 pounds. My doctors told me not to lose any more, and I haven't. I had been very slowly climbing out of a deep, dark hole of depression, and in the process was inactive and gained one pound after another.

I've been working since 2006 with therapists and psychiatrists, still am. A number of things pushed me over the edge of that hole, and I never could have come as far as I have without help. Along the way I've grown to appreciate the work of mental health professionals.

You probably know why I said all that. If I were in your position, I'd be asking my doctor for a referral to someone who could do a psychological evaluation on me. Obviously, I'm not in your position, so I can't presume to tell you what to do. Just my own thoughts for you to consider. Whatever is causing your lack of appetite and weight loss, I hope you get some answers soon.

Jim

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My pain is below my rib cage. It can take 6 to 12 hours to digest a small meal. My weight is under 100 lbs. I also had my gaulbladder removed 15 years ago. My pain can be at different places It can be the whole back. It can be on the right side and move to the front of my stomach. Once I have digested a meal I feel fine but I know if I over eat my pain will double. I mainly eat liquids with protein and collagen. Some fish with vegetables. Three years ago I was diagnosed with non ulcer dyspepsia and have a small hernia in my stomach. When I began having extreme pain in Nov 2019 I did not have mental or physical problems.

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@filiond – I do know of one condition where there is severe pain with eating and weight loss and it is called MALS, short for median arcuate ligament syndrome. It is rare, but we have group here. It is a vascular problem- there is pressure on the celiac artery by a ligament at the diaphragm. The celiac artery supplies blood to the intestines. It is similar to angina of the heart- less blood supply when it is needed, causing pain. I had it. That’s when I found this group, looking for information. They can check if there is problem with blood supply with a Doppler ultrasound.

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Have you tried a gastric emptying test. I also lost weight-50 pounds in 6 months. Was always nauseous- felt worse an hour after eating anything. Found out I my stomach didn’t empty all the way. Xifaxan helped me.

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Thanks for the info. I looked up the Symptoms.. I don't have nausea, vomiting or diarrhea but according to Wikipedia these symptoms can vary and can include constipation and no vomiting. I will follow up with my gastro Dr. next week by phone because of physical distancing due to the virus.

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@harlowjuno1

Have you tried a gastric emptying test. I also lost weight-50 pounds in 6 months. Was always nauseous- felt worse an hour after eating anything. Found out I my stomach didn’t empty all the way. Xifaxan helped me.

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Thank you for the info I did not have this test I will talk with my gastro Dr. nest week about the test and Xifaxan

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Good luck!

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In reply to @harlowjuno1 "Good luck!" + (show)
@harlowjuno1

Good luck!

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I have not have this test done I spoke to my gastro dr and she is ordering other tests. I was wondering if Xifaxan worked immediately and you were able to eat regular meals. I was told by my nathuropath this medication is good but the disadvantage of this medication is that the food passes through the digestive system so fast that the nutrients and minerals are not absored in the digestive system. Can you tell me if you were able to gain some the weight back. than you again

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@filiond

I have not have this test done I spoke to my gastro dr and she is ordering other tests. I was wondering if Xifaxan worked immediately and you were able to eat regular meals. I was told by my nathuropath this medication is good but the disadvantage of this medication is that the food passes through the digestive system so fast that the nutrients and minerals are not absored in the digestive system. Can you tell me if you were able to gain some the weight back. than you again

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I was able to gain about ten pounds back. I have to be careful how much I eat having gastroparesis- where the stomach doesn’t empty like it should.

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Thanks for your reply. I have to at least gain back 25 pounds to get to a reasonable weight. Gastroparesis does not sound very encouraging. How do you manage it.

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I also have Gastroparesis with a redundant colon and lost 30 pounds last year. I'm 52 y/o and have had chronic constipation my entire life. Finally, I have come to the conclusion that my body is happier if I only eat one meal a day, preferably a late lunch. I have to be carful not to eat too much or I get severe bloating, pain and constipation. My constipation would last 8-10 days with painful b/m's. My doctors tried just about everything possible. I decided I would stop taking all the medications since nothing worked for longer than a month or two. The key to being regular 2-3 days between b/m s (for me) is a very limited diet. I no longer get hunger pangs or feel deprived. My body is now used to eating 1 meal a day or total quantity of 1 meal per day. If I eat more I will get severe constipation and pain. I just want to let people know that you really need to listen to your body and adjust to what It wants or doesn't want. This is what has been working for me lately.

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@filiond

Thanks for your reply. I have to at least gain back 25 pounds to get to a reasonable weight. Gastroparesis does not sound very encouraging. How do you manage it.

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Eating less and making sure I eat low fat and low fiber foods. If a food makes the stomach hurt at night- like pizza and salads do for me, I just cut them out. I am still learning.

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I have had tests done such as Ct Scan enterography and barium meal test. The tests came back normal. My GI doctor refuses to pass other tests and referred me to my family Dr. My family Dr is useless and referred me to pain management clinic. I am still having trouble eating and loosing weight I weigh about 90 lbs or less. I went to a private clinic to see ( I live in Montreal, Canada) an emergency Dr. He sent me for blood tests. Since about 3 weeks I am having trouble walking. I had knee replacement surgery in my right knee Oct 2015. The operation was not a success I developed severe scar tissue. I could manage to walk but with pain. The other knee needs surgery. In my condition I cannot go for surgery. I have constant burning in my knees and limited to walking around the house. I wonder if the stomach and pain in knees is a condition that is over looked. The drs seem to think these are separate medical issues. any opinions or suggestions. I am 70 years old

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@filiond – I posted here in April, suggesting your blood supply to the intestines was abnormal. The problem I referred is MALS- when the important celiac artery in your abdomen is compressed by a ligament. You get severe abdominal pain after eating and most people lose a lot of weight. Was this discussed?

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