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Brain & Nervous System | Last Active: Jul 21, 2021 | Replies (7)

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@johnbishop

Hello @robin396, Welcome to Connect. I'm sorry to hear you've been off work since January due to severe tailbone pain. I know it can be frustrating when doctors can't figure out what is causing your symptoms and have run many tests. You may also be interested in the following discussion:

-- Extreme weight loss, cannot eat. No diagnosis yet.: https://connect.mayoclinic.org/discussion/extreme-weight-loss/

I'm not sure if it's an option for you but have you thought about seeking help at a major teaching hospital or health facility like Mayo Clinic? If you would like to seek help from Mayo Clinic, contact one of the appointment offices. The contact information for Minnesota, Arizona and Florida can be found here http://mayocl.in/1mtmR63.

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Replies to "Hello @robin396, Welcome to Connect. I'm sorry to hear you've been off work since January due..."

I went to an oncologist/hematologist in Jackson, MS, he did blood tests and a bone marrow biopsy. My blood test showed a faint band on my gamma region, but biopsy showed nothing. He suggested that I might want to go to the Mayo Clinic. I saw a dermatologist for the waxy rash on my face and my hair falling out, she said that it looks like an autoimmune disease that my body isn’t fighting and it is attacking my nervous and neurological systems. I fall very often, with no warning, I have low B12, folic acid and my iron level is 22. My vision is extremely blurry unless I put on +1.50 readers, I have never had to wear glasses. I have the feeling of an electrical jolt in my feet and then they go numb. I have constant headaches with hardly any relief. I have had shingles 3 times since January of this year, I’ve lost 60+ lbs not intentionally. Some days I am numb from my waist down. Any ideas?