Abdominal aortic aneurysm – surgery

Posted by miracle1 @miracle1, Sep 2, 2019

Would like to know how patients did with AAA surgery

My dad had an 10 cm abdominal aortic aneurysm repair done in Dec 2017 in Arkansas. In Dec 2018 we found out he had a bloodstream infection with MRSA. (Likely related to hospitalization for surgery in Dec 2017). He was also diagnosed with a spinal epidural abscess that Drs don’t recommend draining due to its small size. After 24 days in the hospital being treated with IV antibiotics he was released with negative blood cultures. 2 weeks later he is back in the hospital with positive MRSA blood cultures. It appears the MRSA may be I n the abdominal aortic repair and the spine. The Drs here don’t see these types of cases often (1 every 2-3 years) and we’re hoping they could consult a Mayo specialist. My dad is currently in the hospital fighting for his life so travel is questionable right now. We desperately would like for our Drs here (cardiology and infectious disease) to consult with specialists there on options/recommendations. If the specialist believe surgery is a viable option after reviewing scans, labs, his case, then we’d get my dad there for surgery. However, due to his current hospitalization, just going for an in person consult to find out they might not even consider surgery would put a tremendous strain on him. Can anyone weigh in? His Drs here don’t seem to know how to reach out or motivated to try. We’re desperate and time is of the essence.

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@miracle1

We live in Louisville, Ky. My sister had two repaired one month ago. She will be going back for the other three to be repaired with stent as soon as it arrives from Australia and surgery by Dr. Oderich. Being from out of town I was looking to see if all goes perf3ct approximately how long of stay in hospital and then rehab ?
I did call concierge and they gave me the name of hotels directly across from St. Mary’s.
I have forwarded this link to my sister and hope she will find it beneficial and gives her a little peace of mind,
Thank you so much.

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Hello @miracle1,

I was just noticing that you posted last year about your sister coming to Mayo for surgery. I hope that by now she has had the surgery and has returned to her home.

I'd enjoy hearing from you. Could you post an update?

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@worry

Does anybody have an idea why an AAA would grow in 1yr from 3.9cm to 4.5cm?

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@worry

I can understand your concern about the growth of your AAA in one year. One thing to consider is what test(s) were used to measure the AAA? For example, was an ultrasound used one year and a CT scan the second year? Different tests can produce different measurements.

We have some discussions on Connect that you might find helpful. Here is the link, https://connect.mayoclinic.org/discussion/aaa-surgery/ and
https://connect.mayoclinic.org/discussion/abdominal-aortic-aneurysm/
I would also like to invite some other members of Connect, who have discussed AAA to this conversation. Meet, @acara, @cheryl66 and @kdh1.

Here is some information from Mayo Clinic's website, https://www.mayoclinic.org/diseases-conditions/abdominal-aortic-aneurysm/symptoms-causes/syc-20350688

As you have a concern about the growth, I would encourage you to phone your doctor's office and ask about it and if there is a need to be concerned. Also, remember that it is always your right to get a second opinion. Have you considered getting a second opinion to put your mind at ease?

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@worry

Does anybody have an idea why an AAA would grow in 1yr from 3.9cm to 4.5cm?

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I think it grows, (dialates) because the wall of the aorta becomes stretched and compromised perhaps because of factors that are different for each person. An illness that affects the heart specifically, likeRheumatic fever(from severe “scarlet fever“), Marfans Syndrome( inherited disorder), or some kind of weakness in collagen.. these are the things that add to the blood getting in between the layers of the wall. The blood causes a bulge which can be measured. From what info I have gathered, at a certain “dilation” there is less blood flow to be distributed to the major organs. There can be coughing because there’s pressure on the esophagus. There can be shortness of breath. A person can get by with these early stages, and not seem to experience great difficulty unless they are a very good athlete. But it is a silent condition, therefore, a potential deadly one, and must be monitored as we become aware of it. It is good in that sometimes a happenstance shows the condition, like you are getting tested for other things such as lower abdomen scan or chest X-ray .

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Does anybody have an idea why an AAA would grow in 1yr from 3.9cm to 4.5cm?

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@hopeful33250

@worry

I can understand your concern about the growth of your AAA in one year. One thing to consider is what test(s) were used to measure the AAA? For example, was an ultrasound used one year and a CT scan the second year? Different tests can produce different measurements.

We have some discussions on Connect that you might find helpful. Here is the link, https://connect.mayoclinic.org/discussion/aaa-surgery/ and
https://connect.mayoclinic.org/discussion/abdominal-aortic-aneurysm/
I would also like to invite some other members of Connect, who have discussed AAA to this conversation. Meet, @acara, @cheryl66 and @kdh1.

Here is some information from Mayo Clinic's website, https://www.mayoclinic.org/diseases-conditions/abdominal-aortic-aneurysm/symptoms-causes/syc-20350688

As you have a concern about the growth, I would encourage you to phone your doctor's office and ask about it and if there is a need to be concerned. Also, remember that it is always your right to get a second opinion. Have you considered getting a second opinion to put your mind at ease?

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Both were done with ct scan, dr wants to test me again in 6months.

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@worry

Does anybody have an idea why an AAA would grow in 1yr from 3.9cm to 4.5cm?

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Hi, @worry – I wanted to let you know I moved your post here to this discussion where you posted previously on abdominal aortic aneurysm to get you in contact with others already talking about that type of aneurysm. If you click on VIEW & REPLY in this email notification, it will take you to the whole discussion on the Connect site.

Are you feeling concerned about the amount of growth your aneurysm has had this year? What did you doctor say about the growth?

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@lisalucier

Hi, @worry – I wanted to let you know I moved your post here to this discussion where you posted previously on abdominal aortic aneurysm to get you in contact with others already talking about that type of aneurysm. If you click on VIEW & REPLY in this email notification, it will take you to the whole discussion on the Connect site.

Are you feeling concerned about the amount of growth your aneurysm has had this year? What did you doctor say about the growth?

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He did not say anything except will check it again in 6months

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@worry

He did not say anything except will check it again in 6months

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Hello @worry

As you know, on Connect we are not medical professionals and therefore cannot make diagnoses or answer your question as to why your AAA has grown in one year. However, if your doctor is checking again in 6 months that sounds like he is being diligent and taking this seriously.

Is there something you can do for yourself in the meantime? Perhaps take walks (when the weather permits) or go to a movie or talk to a friend? It would be a good thing if you could build up some social support for yourself.

Also, you could keep a list of one thing that you are grateful for each day. Could you try and do that?

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@hopeful33250

Hello @worry

As you know, on Connect we are not medical professionals and therefore cannot make diagnoses or answer your question as to why your AAA has grown in one year. However, if your doctor is checking again in 6 months that sounds like he is being diligent and taking this seriously.

Is there something you can do for yourself in the meantime? Perhaps take walks (when the weather permits) or go to a movie or talk to a friend? It would be a good thing if you could build up some social support for yourself.

Also, you could keep a list of one thing that you are grateful for each day. Could you try and do that?

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When my cardiologist says I can wait 2 years for another scan..I take that as a good sign…my AA has not changed in over a dozen years…

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