Can Dementia, if caught early, be reversed or slowed down?
Can dementia if caught early be reversed or is the symptoms be managed early slowing down the progression? I felt the speaker gave false information hence false hope and/or made loved ones feel guilty for not knowing and advocating for their loved ones early…
Interested in more discussions like this? Go to the Caregivers: Dementia Support Group.
Connect

@kimlily2005 My husband is on lequembe actually into his 24th infusion. He's had MRI's and Petscans during various infusion dates, with no brain swelling. He hasn't experienced any side effects that I can see. He came home from the last infusion and went down to his boat and was cleaning it. That surprised me. I don't know if the lequembe has reduced the amyloid plaques; we'll know that when he reaches his 36th infusion 6 months from now. Hopefully, then he can go on maintenance. I read from someone on Mayo Connect, the maintenance infusion may be done at home but I'm not sure. I haven't discussed it with his doctor. Do I notice any difference? He appears a more organized; his things, napsack, phone, watch, all stay in one place. Before he was constantly losing everything. He still has short term memory loss and needs help with phone, PC, etc. He helps in the kitchen, does forget where things go, but other days remembers. He is still independent, but I do notice, things need to stay calm for him, or he gets irritable. He's always been pretty mild mannered. We haven't done a lot of traveling. He tells me he just wants to stay home. The structure is important to him, so we stay home. Best, Karla
-
Like -
Helpful -
Hug
3 Reactions@kimlily2005 Thanks for the Metamucil twice a day suggestion......I wanted to go on Wegovy to lose some weight, but with my stomach issues, I'm holding off and just taking the plant fiber, Beneficial. I'll try Metamucil, per your suggestion. Best, Karla
-
Like -
Helpful -
Hug
1 Reaction@kimlily2005
Laquembi is every two weeks. The first time I had him he infusion I became dizzy had a bad head ache Dr told me to go and get Benadryl. Took a tablet went sleep never happened again. The first time they keep you for three hours. If that goes OK the next time you have an infusion they keep you for an 2hours . After that 1 hr no complications like dizziness, headache, or anything like that they let you go after transfusion.
At the start of I seem to have gotten worse, but then I got better as time went on. I’m on my 18th or 19th infusion.
We go away on vacations but we travel around the infusion day. I’ve learned it’s important to get your infusion on time.
Wishing you good luck
-
Like -
Helpful -
Hug
4 Reactions@joycel10 I will get my first Leqembi infusion next week. From what I've read, it is now available in the at-home form now. They have even okayed starting with the injections at home from the very beginning. I am hoping to start at the hospital and after about the 3rd MRI and if I have no issues, I can switch to at home injections. They are making progress pretty quickly it seems. This is all very new so you'll have to check with your doctor but just stay informed. understand also that there is about a 5 day window to getting the infusion. The injections at home may really simplify travel issues. Good luck and safe travels.
-
Like -
Helpful -
Hug
3 Reactions@kjc48 I get the “Metamucil Premium Blend” it is sugar free, made with Stevia. I get it at Walmart. It does cost a little more but I think it’s worth it.
@midnightwalker Please let me know how your infusion went. I’m 70 with only mild cognitive decline at this point so I’m very leary about the possible side effects. I was told 3 months ago by my neurologist that when you go on maintenance you can do the home injections but maybe that varies from hospital to hospital. My neurologist is at Barrows in AZ. Good luck with your infusion!
-
Like -
Helpful -
Hug
1 Reaction@kjc48 Thank you for responding. Best of luck to both you and your husband. My neurologist told me that maintenance injections can be done at home. It sounds like a good sign that he seems to be more organized. You sound like a wonderful wife! I hope his amyloid plaque is reduced in 6 months.
-
Like -
Helpful -
Hug
1 Reaction@kimlily2005 Thank you; it's caregivers who post like you who do make a difference and help motivate us to be better caregivers. I try to be a wonderful wife. I love this man, I told him today at lunch, and I told him regardless of what happens in our future, we're here for each other - even if one of us can't respond the way we used to do. I knew going into old age, things would be different. I never thought I would encounter anything called MCI - or Alzheimers and the like. It's mind boggling but we deal - and we adapt. I printed out something I wrote to another caregiver, @georgescraftjr from something noteworthy she posted! As caregivers, we all pass through the "valleys' of fear, grief, uncertainty, denial and/or hardship. A reminder to have faith over fear, presence over panic, and divine guidance over darkness. Thank you for your post and your prayers that my husband's amyloid plaques are reduced in 6 months. It's the same prayer I have for every other caregiver dealing with whatever medical approach they are taking to slow this disease down. Best, Karla
-
Like -
Helpful -
Hug
1 Reaction@kimlily2005 thank you, thank you. Gosh, anything for GI help I appreciate. I wanted to bad to go on Wegovy, but I'm afraid to do it, with all these already GI issues. Best, Karla
-
Like -
Helpful -
Hug
1 ReactionWow, I’m truly struck by what a wonderful person you are. I never thought I’d ever be faced with Alzheimer’s either. Your husband is a very fortunate man. If you’re ever in Arizona I’d love to meet you. I’ll keep your husband in my prayers.❤️
-
Like -
Helpful -
Hug
1 Reaction