7% Saline in Nebulizer for Mac

Posted by healthybon @healthybon, Mar 7, 2023

Could you all give me your opinion?
I have Mac..don’t know species yet.

I’m new at this but have seen many posts on here about how important it is to clear the mucus. Saline in nebulizer, flutter valve!

I requested that my pulmonary call in a script for the 7% saline to be used in a nebulizer! His response was “just use the flutter valve, the saline could make things worse.”
I have read in this support group that everyone uses the saline and also videos on UTUBE…..etc. I’m confused.
What is your opinion on this?

Interested in more discussions like this? Go to the MAC & Bronchiectasis Support Group.

In reply to @lungproblems2024 "What is "NJH"?" + (show)
Profile picture for lungproblems2024 @lungproblems2024

What is "NJH"?

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National Jewish Health in Denver, CO. Care teams are experts in treating bronchiectasis, MAC among many other respiratory diseases. Several people in this forum travel to NJH for care and treatment because they do not have adequate care locally. Some go for a second opinion. After all, bronchiectasis is somewhat of a rare disease.
https://www.nationaljewish.org/conditions/bronchiectasis

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In reply to @lungproblems2024 "What is "NJH"?" + (show)
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What is "NJH"?

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So sorry. National Jewish Health in Denver, CO

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Profile picture for Sue, Volunteer Mentor @sueinmn

@healthybon Welcome to Mayo's MAC community - we are not experts, just people walking your path. But one thing many of us have learned is that there a pulmonologists who know and treat MAC regularly, and there are others who run across a patient occasionally and just follow their "standard protocol."

Fortunately, the recent addition of 7% saline nebs by National Jewish Health (NJH), Mayo and other centers of excellence in treating MAC has been a game changer for many of us. But it has totally escaped the notice of many pulmonologists to our detriment.

Is there any possibility that you can make an appointment at one of the specialty clinics? Or search your area for a pulmonologist with more expertise?

Sue

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@sueinmn Hi Sue, I have been nebulizing with 7% saline solution n it has helped enormously. I am so glad I refused that regime of three antibiotics 3 x a week for 18 months. The previous pulmonologist never even mentioned nebulizing, which speaks to your point. I have a new pulmonologist who recommended nebbing. I also begin with 2 pumps of Albuterol.

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Profile picture for scoop @scoop

National Jewish Health in Denver, CO. Care teams are experts in treating bronchiectasis, MAC among many other respiratory diseases. Several people in this forum travel to NJH for care and treatment because they do not have adequate care locally. Some go for a second opinion. After all, bronchiectasis is somewhat of a rare disease.
https://www.nationaljewish.org/conditions/bronchiectasis

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@scoop My new pulmonologist had mentioned that some of his patients are treated there; he speaks highly of NJH in Denver.

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I have been using 7% saline daily for 5 years, and found it very helpful. I tried 3% saline, and it was less effective, but a little less harsh. I nebulize the saline while using the Vest, and occasionally add a pump of Albuterol.

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Profile picture for emilda @emilda

I have been using 7% saline daily for 5 years, and found it very helpful. I tried 3% saline, and it was less effective, but a little less harsh. I nebulize the saline while using the Vest, and occasionally add a pump of Albuterol.

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@emilda Hello, and thank you for sharing your experience. Like you I have used 7% saline for years, and feel it has helped keep me free of reinfection with MAC and Pseudomonas.

Recently some members have talked about adverse side effects from using hypertonic saline including hoarseness, dry mouth and constipation. Have you had any side effects from the saline? How did you deal with them?

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@sueinmn Hi, I have not had those side effects, but I have occasionally found that the 7% saline felt very harsh in my mouth and throat, was almost impossible to complete, and left me with a bad taste in my mouth which took hours to go away. This was aleviated by using 3% for a few days, and then returning to 7%. I thought the side effect might to be related to using 5 mg of Creatine daily in powder form for muscle and brain health, becasue it only began after I started using the Creatine, and I wonder if anyone else has experienced similar problems.

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