1. < MAC & Bronchiectasis

7% Saline in Nebulizer for Mac

Posted by healthybon @healthybon, Mar 7, 2023

Could you all give me your opinion?
I have Mac..don’t know species yet.

I’m new at this but have seen many posts on here about how important it is to clear the mucus. Saline in nebulizer, flutter valve!

I requested that my pulmonary call in a script for the 7% saline to be used in a nebulizer! His response was “just use the flutter valve, the saline could make things worse.”
I have read in this support group that everyone uses the saline and also videos on UTUBE…..etc. I’m confused.
What is your opinion on this?

Interested in more discussions like this? Go to the MAC & Bronchiectasis Support Group.

kathleenlp | @kathleenlp | Jun 19 10:55am
In reply to @frankie160 "Hi Healthybon and Kathleenlp, I too was told by my Pulmon in 2023 that 7% saline..." + (show)
@frankie160

Hi Healthybon and Kathleenlp,
I too was told by my Pulmon in 2023 that 7% saline may cause complications given my overall COPD condition ( Bronchiectasis and Emphysema) and she would like me to stay on 3% saline for now. My CT scan shows lots of nodules and inflammation in all 4 lobes! Having another CT Scan in two months and will go from there. I'm wondering too if an MRI would give a clearer picture of my lungs? My Pulmon is a generalist with Weill Cornell in NYC and works very closely with an Infectious Disease Doc that I now see in between my visits with the Pulmon.
Good luck with all!
Flo @frankie160

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Only the CT gives the picture the pulmonary wants is my understanding...

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kathleenlp | @kathleenlp | Jun 19 11:01am
In reply to @lilianna "Kathleen I watched the videos and my question is. Where did you find the place that..." + (show)
@lilianna

Kathleen I watched the videos and my question is. Where did you find the place that actually offers the red light therapy, what part of the body you expose and how often you use it. It looks simple to be done and - no pills. How long have you been doing it

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Hi Lilianna! I purchased the one in the link above in my post. Visiting a facility that does it is not affordable! I do it everyday that I can. Usually standing front and back 5-10 min each side then sitting 5-10 minutes each side. You cannot have any clothing on. You can target the areas you like. I have been doing it about 7 or 8 years. 😎

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1 reply
lilianna | @lilianna | Jun 19 11:08am
In reply to @kathleenlp "Hi Lilianna! I purchased the one in the link above in my post. Visiting a facility..." + (show)
@kathleenlp

Hi Lilianna! I purchased the one in the link above in my post. Visiting a facility that does it is not affordable! I do it everyday that I can. Usually standing front and back 5-10 min each side then sitting 5-10 minutes each side. You cannot have any clothing on. You can target the areas you like. I have been doing it about 7 or 8 years. 😎

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Hello is the link the same as the videos link. The talk about two companies selling products such as a helmet. Is it a lamp?

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1 reply
kathleenlp | @kathleenlp | Jun 19 1:53pm
In reply to @lilianna "Hello is the link the same as the videos link. The talk about two companies selling..." + (show)
@lilianna

Hello is the link the same as the videos link. The talk about two companies selling products such as a helmet. Is it a lamp?

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Hi lilianna
The top link is a medical/doctor link that I follow ....he gained popularity in the pandemic guiding people to natural/scientific healing and immune boosting practices.
The bottom link is the company where I purchased my panel....I have the biomax 600
I would not get a helmet. You want your lungs getting the light and face etc. The helmet is just for hair growth which you will get from the panel.

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maryaugust | @maryaugust | Jun 20 11:10am
In reply to @extracare808 "I believe it provides an inhospitable environment for further growth. The reason sea water is safe..." + (show)
@extracare808

I believe it provides an inhospitable environment for further growth. The reason sea water is safe for swimming (for those vulnerable to NTM infection), is it has a 3% salinity, which is above the tolerance mycobacteria have for survival and reproduction.

My colony count went from over 200 down to under 20, once I started nebbing with 7% saline.

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Oh my gosh! I was unable to tolerate the antibiotic treatment due to my GERD. But I've been using the saline nebulizer and flutter valve for the past few months. But I didn't know that it could decrease the amount of bacteria. I thought it just provided an inhospitable environment for further infection.

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sadies1mom | @sadies1mom | Jun 20 8:37pm
In reply to @med08 "I’m not an expert, but just came back from NJH and have been to a seminar..." + (show)
@med08

I’m not an expert, but just came back from NJH and have been to a seminar on MAC at MUSC they can’t stress enough how important airway clearance is with saline and I also use an Aerobika at same time.

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How long were you at NJH?
Did you find them to be exceptional?
I was diagnosed 2 yrs ago
MAC & bronchiectasis - very damaged lungs.
I did the things an infectious disease dr. Suggested.
I am stable per CT scan.

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1 reply
lilianna | @lilianna | Jun 21 7:46am

healthy bone
i was not told about saline when i was diagnosed with bronchiectasis and MAC- such a shame- i found about it here and asked the pulmonologist who said i could use it. if your pulmonologist is against it, just ask your primary care- thats how my husband got it for sinus. it can be purchased online without prescription but it is pricy.

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1 reply
med08 | @med08 | Jun 21 7:50am
In reply to @sadies1mom "How long were you at NJH? Did you find them to be exceptional? I was diagnosed..." + (show)
@sadies1mom

How long were you at NJH?
Did you find them to be exceptional?
I was diagnosed 2 yrs ago
MAC & bronchiectasis - very damaged lungs.
I did the things an infectious disease dr. Suggested.
I am stable per CT scan.

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Diagnosed with MAC in 2021. I was at NJH first time I think was 4-5 days. Lots of testing. Then repeat some tests after 6 months Now I just go back yearly. It’s only One day of testing now at NJH. I’ll have blood work, CT & sputum sample taken and then review tests with Dr. they are very knowledgeable, friendly & it’s really nice to see experts in the field. I don’t have a local doctor with expertise of MAC. But together I work with my pulmonologist to get my 6 month CT scan and whatever NJH suggests my doctors are great locally to get any tests that NJH recommends

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1 reply
1fancydancer | @1fancydancer | Jun 21 12:49pm
In reply to @lilianna "healthy bone i was not told about saline when i was diagnosed with bronchiectasis and MAC-..." + (show)
@lilianna

healthy bone
i was not told about saline when i was diagnosed with bronchiectasis and MAC- such a shame- i found about it here and asked the pulmonologist who said i could use it. if your pulmonologist is against it, just ask your primary care- thats how my husband got it for sinus. it can be purchased online without prescription but it is pricy.

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Infectious disease Dr nor Pulmonologists have ever said anything about saline. Pulmonologists did prescribe airway clearance vest that I have been using for the past 7 years. It helps my breathing but I am continually picking up bacteria. The mucus gets trapped and they put me to sleep, go in an wash my lungs out every few years. It helps sometimes.

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lungproblems2024 | @lungproblems2024 | Jun 22 11:30am
In reply to @med08 "Diagnosed with MAC in 2021. I was at NJH first time I think was 4-5 days...." + (show)
@med08

Diagnosed with MAC in 2021. I was at NJH first time I think was 4-5 days. Lots of testing. Then repeat some tests after 6 months Now I just go back yearly. It’s only One day of testing now at NJH. I’ll have blood work, CT & sputum sample taken and then review tests with Dr. they are very knowledgeable, friendly & it’s really nice to see experts in the field. I don’t have a local doctor with expertise of MAC. But together I work with my pulmonologist to get my 6 month CT scan and whatever NJH suggests my doctors are great locally to get any tests that NJH recommends

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What is "NJH"?

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