Anyone had a problem with neuropathy after receiving the vaccine?
I am 85 with small fiber neuropathy that is getting worse. My neurologist thought it would be a good idea for me to wait with the covid vaccine and not be first in line to see how it affected other people with neuropathy. Probably because it is a new technology. Has anyone had a problem with neuropathy after receiving the vaccine? If so, which vaccine?
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Has your neurologist advised you that the neuropathy might get worse, with leg cramps? I am 84 yrs old and 11 yrs ago due to treatment with chemo I developed neuropathy and over the years it seems to have gotten worse, with severe leg cramps. I will be interested in reading if the electromyography test will answer any questions as to your current problems. I have given up on this problem for me ever going away, I just live with it.
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2 ReactionsWelcome to Mayo Connect, where patients and caregivers support one another in their health journeys.
Let me tell you that I have an overreactive inflammatory system, and every vaccine gives me a new surprise. This time, the Covid vaccine in my bicep caused a pain reaction all the way up through my bad shoulder and into my neck.
I have talked this over with my pain doc and my pain physical therapist. It is a real thing, but it is also a sign that my body is responding to the vaccine, whose purpose is to ramp up my immune system.
So, I always try to space out my injections and know I will be sore - often in an entirely new way or place. I plan extra rest & good food, take Tylenol, use ice or heat, and keep moving and stretching. Usually everything subsides in a week, but occasionally it lasts a bit longer. Then I go to the PT or massage therapist for a "tune up."
So, if I always react to vaccines, why do I keep getting them? Because I have bad lungs and therefore am at very high risk of serious illness from any respiratory illness. And because I have seen how awful shingles can be, and with my inflammatory response, I can't imagine how my body would respond.
Sue
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2 ReactionsI am sorry that you are having severe leg cramps, So far nothing like that, but it only start early 2023, so who knows. I have terrible pains in my arms, told by doc that it is torn tendons, and that has gotten very painful lately, and last couple of months had problems getting comfortable in bed to sleep.. Not sure if this may be related to the Neuropathy, will find out on 19th with Neurologist I guess.
I had kidney Cancer in 2003 and was lucky it was caught so soon, and did not need chemo or radiation, and worry with all these aches and pains that it might have gotten into bones, but docs say no. Anyway.... I will post after my appointment what the doc has to say...
I have had that test for moth the nerves and the muscles. It is a piece of cake, nothing to be afraid of.
Thanks, have heard that from a few people, makes me feel better. What were the results, what does it show?
A Dr will read the results and give you or your referring Dr the diagnosis, mine was mild-moderate peripheral neuropathy.
Can you please clarify what the process is as far as spike protein. My understanding is the same as yours as far as the MRNA vaccine not containing the spike protein. However I thought that the MRNA tells your body to create the spike protein so that your immune system would then create antibodies for it and have them hanging around if you do get infected. It seems what you are saying is that the MRNA in fact instructs the body to create antibodies at first instance to the spike protein. Your response is appreciated in advance.
Hello,
I rarely comment here but when I saw your question about the Covid vaccines having any effect on neuropathy it hit home.
I have what was diagnosed as idiopathic neuropathy twelve years ago . After having an EMG last year I was diagnosed with distal axonal polyneuropathy.
My symptoms worsened after my third dose of Moderna.
I lost the feeling in both feet while in a sitting position , therefore losing the ability to drive safely.
It’s been two years since I drove and that’s been very difficult as I was an active independent 70 year old .
I am a retired triage nurse working remotely for a family practice on a per diem schedule, which has helped tremendously with my psyche.
MRI’s showed some nerve root compression but not anything that would require surgery. Very happy about that!
I’m very much on the fence about taking the latest vaccine
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1 ReactionHere is my experience with the Covid Vaccine. First shot Dec 31,2020. Second shot Jan 31, 2021 on military base. Less than two months later my heart was jumping all over the place very scary. Would be asleep and it would jump and wake me up. The doctors sent me back to Texas. I had a one month holter monitor test showing bradycardia and tachycardia. Documented in the medical journal of cardiology. I was diagnosed by an electrophysiologist with cardiac autonomic neuropathy. Cardiologist told me told me it was a very common problem with the Covid shots. The electrophsiologist told me I was not eligible for an ICD pacemaker/ defibrillator and most people only live seven years after the diagnosis. You have to have an electrical system to have an ICD to be able to shock your heart. I will say this there have been times in the middle of the night that my husband has gotten out of bed to go to the restroom and I am not breathing. He shakes me for awhile I don’t know how long he shakes me but I wake up gasping for air. Unless I can get IVIG therapy and get some of this reversed I am signing a DNR. There is no reason to keep trying to revive someone that doesn’t have the nervous system for it. There was a scandal about two years ago that was in the news that the military new about these side effects and did not make them public. There was supposed to be a congressional hearing but it got squashed by Biden administration.
The reason this scared me so bad is my son was born with congenital heart disease and has tachycardia and an ICD his heart stopped at the age of 14 due to tachycardia. It was an emergency surgery to get his ICD put in.
I am not a nonvaccine person. I simply had an allergic reaction that affected my nervous system. In 15 specialists across many fields including my team of regular doctors no one knows enough about the vaccine to treat the nerve damage it did. When I am out of remission I am on fire all over and pedisone is used to put it back in check. When I am in remission I mimmic MS but dont have the disease. Tingling knees to toes both feet, elboes to hands, cheeks, lips always salty. Stress is a factor in flare up. I always have to wear a mask and sanatize as I can never have another vaccine. Anyone know anything that can help me?
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