Anyone had a problem with neuropathy after receiving the vaccine?

Posted by cue @cue, Feb 15, 2021

I am 85 with small fiber neuropathy that is getting worse. My neurologist thought it would be a good idea for me to wait with the covid vaccine and not be first in line to see how it affected other people with neuropathy. Probably because it is a new technology. Has anyone had a problem with neuropathy after receiving the vaccine? If so, which vaccine?

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Profile picture for www3 @www3

I am not a nonvaccine person. I simply had an allergic reaction that affected my nervous system. In 15 specialists across many fields including my team of regular doctors no one knows enough about the vaccine to treat the nerve damage it did. When I am out of remission I am on fire all over and pedisone is used to put it back in check. When I am in remission I mimmic MS but dont have the disease. Tingling knees to toes both feet, elboes to hands, cheeks, lips always salty. Stress is a factor in flare up. I always have to wear a mask and sanatize as I can never have another vaccine. Anyone know anything that can help me?

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Welcome @www3, I moved your question to this existing discussion to help you connect with others:
- COVID vaccines and neuropathy: https://connect.mayoclinic.org/discussion/covid-vaccines-and-neuropathy/

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Profile picture for www3 @www3

I am not a nonvaccine person. I simply had an allergic reaction that affected my nervous system. In 15 specialists across many fields including my team of regular doctors no one knows enough about the vaccine to treat the nerve damage it did. When I am out of remission I am on fire all over and pedisone is used to put it back in check. When I am in remission I mimmic MS but dont have the disease. Tingling knees to toes both feet, elboes to hands, cheeks, lips always salty. Stress is a factor in flare up. I always have to wear a mask and sanatize as I can never have another vaccine. Anyone know anything that can help me?

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I’m so sorry about your experience. I can’t offer any advice regarding treatment, but as someone who cannot receive additional boosters, I can tell you what I’m doing to try to protect myself. I was diagnosed with vaccine induced neuropathy after my first Moderna booster. Thankfully, I have completely healed. I run the risk of a return of the neuropathy if I get another vaccine OR if I actually get Covid. In place of a vaccine, I received AtsraZeneca’s monoclonal antibody shots. This provided me with antibodies that my immune system did not have to generate, therefore my immune system did not overreact causing damage to my nerves. I was supposed to get my second dose last March but it was no longer effective with the new variants. I am waiting for government approval of a modified version of the AstraZeneca monoclonal antibody treatment or a new version of something similar from Regeneron. I also always wear a mask anywhere indoors since I am under vaccinated at this point. Again, this doesn’t help your current condition but it may be something to investigate so that you feel more protected. Best to you.

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Profile picture for detc @detc

I’m so sorry about your experience. I can’t offer any advice regarding treatment, but as someone who cannot receive additional boosters, I can tell you what I’m doing to try to protect myself. I was diagnosed with vaccine induced neuropathy after my first Moderna booster. Thankfully, I have completely healed. I run the risk of a return of the neuropathy if I get another vaccine OR if I actually get Covid. In place of a vaccine, I received AtsraZeneca’s monoclonal antibody shots. This provided me with antibodies that my immune system did not have to generate, therefore my immune system did not overreact causing damage to my nerves. I was supposed to get my second dose last March but it was no longer effective with the new variants. I am waiting for government approval of a modified version of the AstraZeneca monoclonal antibody treatment or a new version of something similar from Regeneron. I also always wear a mask anywhere indoors since I am under vaccinated at this point. Again, this doesn’t help your current condition but it may be something to investigate so that you feel more protected. Best to you.

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No one has even talked to me about the antibody treatment. They did talk to me about antibody treatment when my sister who is 81 got covid 2 years ago and I had to decide on her course of treatment. I also had Moderna. They say it could heal but it will take time. They stopped me 2nd and all other shots. Thank goodness. 2 other people I know, they didnt and their damage might be permanent.

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Profile picture for www3 @www3

No one has even talked to me about the antibody treatment. They did talk to me about antibody treatment when my sister who is 81 got covid 2 years ago and I had to decide on her course of treatment. I also had Moderna. They say it could heal but it will take time. They stopped me 2nd and all other shots. Thank goodness. 2 other people I know, they didnt and their damage might be permanent.

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Who diagnosed you?

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Profile picture for www3 @www3

No one has even talked to me about the antibody treatment. They did talk to me about antibody treatment when my sister who is 81 got covid 2 years ago and I had to decide on her course of treatment. I also had Moderna. They say it could heal but it will take time. They stopped me 2nd and all other shots. Thank goodness. 2 other people I know, they didnt and their damage might be permanent.

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Yes, they were used as treatments, but now can be used as protection from Covid. Please consider looking into it if you think it might be helpful to you when they become available again. It took me about 9 months to heal completely. I’m very lucky and very grateful. Good luck.

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Profile picture for www3 @www3

I am not a nonvaccine person. I simply had an allergic reaction that affected my nervous system. In 15 specialists across many fields including my team of regular doctors no one knows enough about the vaccine to treat the nerve damage it did. When I am out of remission I am on fire all over and pedisone is used to put it back in check. When I am in remission I mimmic MS but dont have the disease. Tingling knees to toes both feet, elboes to hands, cheeks, lips always salty. Stress is a factor in flare up. I always have to wear a mask and sanatize as I can never have another vaccine. Anyone know anything that can help me?

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I took my second booster in Jan 2021. Less than two months later my heart was going all over the place. I had a one month holter monitor test. Diagnosed with cardiac autonomic neuropathy due to the Covid shots. My cardiologist and electrophsiologist said it’s very well documented in the journal of cardiology. There’s nothing that can be done. I am trying to get IVIG therapy. I was told from the time of being diagnosed you have approximately seven years left to live. We shall wait and see. My cardiac meds were just upped. I take them three times a day. The dosage was no longer controlling the arrhythmias.

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Profile picture for artemis1886 @artemis1886

I took my second booster in Jan 2021. Less than two months later my heart was going all over the place. I had a one month holter monitor test. Diagnosed with cardiac autonomic neuropathy due to the Covid shots. My cardiologist and electrophsiologist said it’s very well documented in the journal of cardiology. There’s nothing that can be done. I am trying to get IVIG therapy. I was told from the time of being diagnosed you have approximately seven years left to live. We shall wait and see. My cardiac meds were just upped. I take them three times a day. The dosage was no longer controlling the arrhythmias.

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I never had a 2nd shot. They stopped mine in hopes of stopping more damage. They told me all my heart tests turned out good.

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yes , I had two shots and developed AN autonomic neuropathy, I want to sue Pfizer for doing this to me! Is there any legal action I can take part in?

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Profile picture for leebird6915 @leebird6915

yes , I had two shots and developed AN autonomic neuropathy, I want to sue Pfizer for doing this to me! Is there any legal action I can take part in?

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I would love to sue them. We signed a disclaimer before getting the shot. We were stationed in Germany. If you did not have the shot could not get back into the US. If you figure out how to sue them let me know. They knew the side effects before making it mandatory.

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Yes, I've had 3 Covid injections. The first 2 were fine, but the 3rd one I was very sick and in bed. I remember my hands even hurt, which was unusual for me. I am reluctant to take another Covid vaccine. I'm pretty much a "home body" anyway. I'm 69 yo and was diagnosed in 2020.

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