Anyone had a problem with neuropathy after receiving the vaccine?

Chronic Inflammatory Demyelinating Polyneuropathy,
Thanks for the thought

Steroid 150 mg IV
Every 4 hours
2 Benadryl one hour prior to infusion
Tylenol 500 mgs
Wait 30 minutes and I am on Panzyga IVIG
Just an fyi I was told to drink 100 ounces of water day before and 100 ounces the day after to prevent migraines after infusion

WOW!!!!! You sure are going through so much.
Best of luck to you.

How much IVIG? Mine is 5 days a month. It has gotten rid of my dizziness and balance problems. My left leg was dragging along with drop foot. My left leg is not dragging any more. I am waiting to see how long it takes to work on the motor neuropathy. I have several types of neuropathy plus mine in autoimmune related.

I was getting IVIG on two consecutive days every 4 weeks. After 5 months of no improvement it was discontinues. I was referred to a specialist at Penn Medicine and an now on high infusions of methyl prednisone which don’t seem to be helping either.

I am a healthy active 73 year old woman who got both the flu and Moderna Vaccines Sept 7 because my doctor encouraged me to…..my fifth booster….each year since 2019 these shots did not prevent me from bad cases of flu each year….this year I am suffering from very odd neurological distress….persistent headaches which I’ve never had before….pins and needles in my feet don’t go away and get worse
at night dizziness, nerve twitching in my eye, bizarre dreams during deep sleep wake me at 1 am each night…active brain makes it difficult to get back to sleep….these vax are NOT safe or effective….I have been suffering with persistent neuropathy and headaches over two months now…. How do we get this message out to the world so the public is better informed? And why is there such a push from doctors who must be aware of frightening long term debilitating neurological disorders to ignore these dangers and instead encourage patients to take these vaccines?

I hear you. Unfortunately, I'm not a doctor.

I think I had a near-catastrophic reaction to the COVID vaccine and/or infection. I ended up in the hospital for 12 days after an autoimmune attack on my spinal cord. Not to scare you, but just to alert you, I would keep a close eye on your neuro symptoms. Certainly report them to your doctor and take yourself to the hospital if they significantly progress. After my first COVID vaccines, I developed numbness in my feet. After the fourth, the numbness spread very quickly to half my body, resulting in the hospitalization. The symptoms have not resolved.

Vaccine and/or viral triggers of (likely immune-mediated) neurological symptoms are real. and they should be at the forefront of the minds of doctors, especially neurologists and primary care docs.

I have not received the latest Covid vaccine, and I wear a mask everywhere. Note: I am not an anti-vaxxer. I believe in science and vaccines, although they may not be for everyone.

Best of luck to you.

I'm so sorry this has happened to you. Covid 19 is radically different from viruses in the past with its spike protein which means any vaccine would be as well. As to telling the world, it already knows. These vaccines have been thoroughly tested and retested and hundreds of millions of people have been vaccinated. Sadly, there isn't a single vaccine or drug or medical procedure that is without risk, that some people will react badly to. I have gotten all of the covid shots and boosters and updated variations to date. So have my family and friends, etc etc. None of us have had bad reactions beyond the norm. I have chemo induced neuropathy which did not worsen after any of those shots. I got covid once after waiting too long between boosters, and it was less than a mild cold. I'm sorry this didn't work for you, but it has been a godsend to millions.

Indeed. Vaccines can be life savers.

Do anyone know about Mamma Bears cream for neuropathy.