Have you been cured of POST COVID?

Posted by mccoydj1 @mccoydj1, Sep 28, 2023

I would love to hear from folks that have been cured from Post COVID. What were your symptoms.... what things helped you improve? what things made it worse for you?

I ask because I am currently on a recovery journey - would love to understand what you've done

Interested in more discussions like this? Go to the Post-COVID Recovery & COVID-19 Support Group.

@covidstinks2023

Yes. The first one was Vitamin C, Zinc and Glutathione. The 2nd one was Vitamin C, Zinc, Glutathione & B Vitamins. Blessings....

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wonderful to hear good news.
continued good and better health…

i will mention infusions to my functional medicine dr.
thank you for sharing.

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@elliep

wonderful to hear good news.
continued good and better health…

i will mention infusions to my functional medicine dr.
thank you for sharing.

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If your doctor agrees, I advise you to start with a low dose the first time and build up. Blessings.....

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@covidstinks2023

If your doctor agrees, I advise you to start with a low dose the first time and build up. Blessings.....

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thanks

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No cure for me, but I have been able to resume more physical activity. Actually walked 4miles! My leg muscles previously would have started feeling wooly afterwards when resting,
but I was ok this time.
Once in a while I get a brief taste of a food, a few seconds, then it's gone.
My brain fog gets prominent when I get stressed. No multi-tasking either.
My gift for cooking has gone.....I get confused now & have to strictly follow written recipes.
Many many other symptoms have altered my abilities, but are not life threatening.
I am not suffering pain as so many others are. My lungs&heart are well. My family supportive. I am blessed, but I am not my real regular self by any means & I am praying for us all to find a "cure".

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@joanma

If you can, get yourself to the Mayo Long Covid Clinic in Rochester. My insurance covered all but airfare and housing but it was worth it for many reasons (a) docs know the latest and they believe and confirm what we say, (b) they follow Mayo traditions of testing to tell you what you don’t have so you know heart and lungs, for example, have not been damaged by the virus (despite symptoms), (c) they lay out a program without big pharma drugs to treat symptoms (not caused) that can make things worse when the virus has over-sensitized our central nervous system into a constant flight-flight, and (d) advise on optional for natural supplements and diet. Program included consults with great physical therapy folks there who know how to work with folks with post-exertion problems or Covid induced POTS and followup via zoom with an online wellness coach who was both my cheerleader and the best in offering strategies and support when I was most discouraged. I am slowly getting stronger and recovery from crashes is shorter. It’s taken me 15 months and I still have a way to go to be all I was — a high performing professional (now retired) who could multi-task like the best of them. Slow and steady has become my mantra. I can actually see a light at the end of the most debilitating of tunnels. Also most helpful — Redinger’s book “Cured” and changing to a nutrition-dense diet. God bless, all who suffer. I never thought I’d get back to anything close to full health, but see that I can and will. ❤️

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Thanks J, I'm a Canadian in the Vancouver BC area, where most Long COVID clinics are now closed. In any event my GP advised against pursuing it as she said their recommendations tended to be very generic and unhelpful. Including 12 or more medical tests I've been following alternative medicine treatment (all on my own dime, and hence expensive) with some possible mild help (such as micro-dosing Naltrexone, and various supplements). No real improvement yet after 2+ years of Long COVID. Hanging in with you all, by God's grace :).

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@annebp

My Long Covid symptoms are much improved 9 months to a year after my 2nd Covid infection.
1st infection was a Delta Variant/pneumonia co-infection 10/21. The 2nd infection was in August 2022.

I assembled a team of specialists with much frustration due to long waitlists for doctors and scheduling appointments 2-9 months out.
Primary Care Doc was helpful with recommending specialists in my insurance network. Sometimes I would work with a registered Nurse Practitioner rather than wait for a doctor to become available. A good NP will spend an hour with you…which is how long it takes to tell a long Covid story.
- Pulmonologist
- Neurologist
- Physical Therapist
- Social Worker for Cognitive Talk Therapy
- Psychiatrist
- Gastroenterologist
- ENT Doc
- Allergist/Immunologist
- Endocrinologist
- YMCA pool time and gentle yoga.
- Walking my dog in the woods with friends.

I got the idea that I needed a team of doctors from an article I read about the old Swiss Alps Tuberculosis Clinics that were being converted into Long Covid Clinics. Traveling to Switzerland wasn’t an option, so I have had to manage my own recovery.

I was suffering from chronic diarrhea post Covid infection. My Gastroenterology NP and Doctor prescribed Xifaxan off label for 2 weeks and stool samples to confirm that I did not have C Dif or parasites. The virus had not flushed out of my system, and was lingering in my intestinal tract. My symptoms cleared up and I felt much better, had more energy, clearer mind, and started riding my bike. Then I got a 2nd Covid infection and a relapse of diarrhea. I took another 2 week dose of Xifaxan and again that cleared up my symptoms.
For rapid heartbeat and migraines, I was prescribed and continue to take Propranolol. I also spent several months working with a Physical Therapist who did dry needling and recommended specific exercises for headaches and to relieve tension and body aches from the coughing fits that had racked my torso during Covid.
The ENT prescribed a short course of prednisone for ear swelling and Tinnitus. Also Physical Therapy dry needling treats ear and face pain and Tinnitus. I also did some Vestibular Therapy for dizziness and balance issues with my PT.
My Pulmonologist nurse prescribed Spiriva Respimat to open my Bronchial airways and she said that her Long Covid patients were responding well to Spiriva Respimat 1 or 2 puffs in the morning. It helped me to be able to walk my dog farther without feeling like I needed to sit down on neighbors’ steps to rest halfway.
My Psychiatrist had me do a cheek swab and submit to Genomind for psychiatric genetic testing. I tend to have weird reactions and sensitivity to inactive ingredients in pills and tablets. Basically ingredients that extend shelf life in medications make my face turn red and sinuses swell up.
He prescribed Pristiq 25 mg daily which is an SNRI and extended release. It is helping me to feel more even keeled. My Genomind results suggested that an SNRI would be better suited for my metabolic processes than an SSRI. I had not felt any better mood-wise when I tried Zoloft.
My results said regular exercise would improve my mood as well.

My Endocrinologist tested my Thyroid levels and increased my Synthroid dosage to 75 mg each morning. I got approved for name brand only because I have sensitivity to inactive ingredients in the generic. Also name brand Synthroid has more consistent levels of the active ingredient, whereas the generic versions can vary. My hair started growing back. I also started Nutrafol supplements and a hair tonic Phytocyane for temporary hair loss.
I started Aquafitness classes at the YMCA and enjoy Body Balance classes.

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Wow! What a marathon! I live in Canada and not sure what your insurer covers with all this treatment, but other than traditional treatment covered by our government health care plans, we're on our own for alternative treatments (which I've been pursuing for 2+ years of LC). I'd love to try out much of what you describe, but I can't afford yet more on my own dime.

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@joanma

If you can, get yourself to the Mayo Long Covid Clinic in Rochester. My insurance covered all but airfare and housing but it was worth it for many reasons (a) docs know the latest and they believe and confirm what we say, (b) they follow Mayo traditions of testing to tell you what you don’t have so you know heart and lungs, for example, have not been damaged by the virus (despite symptoms), (c) they lay out a program without big pharma drugs to treat symptoms (not caused) that can make things worse when the virus has over-sensitized our central nervous system into a constant flight-flight, and (d) advise on optional for natural supplements and diet. Program included consults with great physical therapy folks there who know how to work with folks with post-exertion problems or Covid induced POTS and followup via zoom with an online wellness coach who was both my cheerleader and the best in offering strategies and support when I was most discouraged. I am slowly getting stronger and recovery from crashes is shorter. It’s taken me 15 months and I still have a way to go to be all I was — a high performing professional (now retired) who could multi-task like the best of them. Slow and steady has become my mantra. I can actually see a light at the end of the most debilitating of tunnels. Also most helpful — Redinger’s book “Cured” and changing to a nutrition-dense diet. God bless, all who suffer. I never thought I’d get back to anything close to full health, but see that I can and will. ❤️

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@joanma Thanks for this encouraging post.. any report of recovery, even slow, is helpful. I will look into the book you recommend. Also ...good to know about the Mayo clinic... and look forward to your reports on your progress.

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@bettyjackson

No cure for me, but I have been able to resume more physical activity. Actually walked 4miles! My leg muscles previously would have started feeling wooly afterwards when resting,
but I was ok this time.
Once in a while I get a brief taste of a food, a few seconds, then it's gone.
My brain fog gets prominent when I get stressed. No multi-tasking either.
My gift for cooking has gone.....I get confused now & have to strictly follow written recipes.
Many many other symptoms have altered my abilities, but are not life threatening.
I am not suffering pain as so many others are. My lungs&heart are well. My family supportive. I am blessed, but I am not my real regular self by any means & I am praying for us all to find a "cure".

Jump to this post

Im with you! My lungs were never affected. My heart does a lot of weird things, but yet when monitored out in ER for this. They never have found anything. EKG's wore a heart monitor for two weeks, echo etc. I pressed the button on the heart monitor several times when I was having an episode and wrote the date and time so they could look back. There was just one little detection on their end. On the one they could track that was bad with chest pressure and extreme palpitations, they saw just minor disturbance. It's like this little mario brother man gets inside runs around causing chaos abs noone can catch him. That's how I visualize it! It's crazy as is the inner trembling that you cannot see on the outside. Bazaar!

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Still have heart palpitations from May Covid and headache and neck pain. Sleeping better. Aby thoughts? Sometimes I feel like the headaches come from no caffeine. I didn't drink a lot of coffee. Always water to start then a cup of coffee. I drink 84 ounces of water a day. I give blood every 8 weeks except that timing in May-mid July. Wonder if I should stop or do less. 74 years old.

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Interesting segment on WCBS (NYC) news tonight about long covid neurological issues. Apparently researchers at Penn have linked residual covid in the gut with interference with serotonin production that led to brain fog, memory problems, etc. This could lead to treatments (fingers crossed).

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