Have you been cured of POST COVID?

All of this is simply a nightmare. I have been on this road for over a year. Running to specialists, waiting for weeks, and months to even speak to anyone, and then getting NO help after the wait. After this length of time and my symptoms just getting worse, I no longer have the energy to jump through the hoops to get more meaningless appointments. I guess I’m going it alone. If my body doesn’t figure this out, I guess it will finally kill me.

Is there a post Covid 19 clinic in your area. Not sure what your symptoms are, but don’t give up advocating for yourself. You know your body better than anyone else.

All of this is simply a nightmare. I have been on this road for over a year. Running to specialists, waiting for weeks, and months to even speak to anyone, and then getting NO help after the wait. After this length of time and my symptoms just getting worse, I no longer have the energy to jump through the hoops to get more meaningless appointments. I guess I’m going it alone. If my body doesn’t figure this out, I guess it will finally kill me.

dloos: I feel you... I've only been on this road since March, but it feels much longer My PCP doesn't know much (anything?) about Long Covid; she's prescribing tests (mostly cardio stuff) that lead to ... more tests. I'm on a waiting list for a LC clinic in Chicago... no openings until April 1, 2024. Hard to keep hope alive, and I'm trying. but the fatigue is depressing. I've learned that some people DO get better, so I'm trying to remain hopeful.

Just wanted to update you. I have just gotten my 2nd infusion for Long Covid. I did react to this one as it was a little to strong for me and the integrative medicine doctor is very tuned into this. I am ultra sensitive to everything. I will say this. Since having had 2 IV infusions I have noticed the following:
1) I am not having to use my nebulizer at all now for asthma.....just my rescue inhaler.
2) I have not had bronchitis, new pneumonia or a sinus infection since this summer.
3) I am finding I do feel better especially in the mornings.
4) Allergies have been much better this fall.
5) I am not quite as fatigued as I use to be.
6) Reflux is better. He told me about Ginger chews by Prince of Peace on Amazon for breakthrough reflux pain. I am on Protonix 20 mg a day now and these are wonderful. I only eat 2 a day and they are delicious. They do have a little sugar in them.

God Bless you all and stay tuned.....

Can you tell me what is in your infusions? Thank you.

Thanks for the detailed information. Was the overall diagnosis that you had Long Covid and were all the symptoms in your diary attributed to Long Covid? Sorry, it wasn't clear. I'll go through them. 🙂 :
1) Lymphedema - directly attributed to LC? Great that you no longer have any swelling. Hooray!
2) What medication are you taking for OAB and will you be able/when will you be able to stop the medication without a return of the incontinence?
3) PT - Completely relate to that. Have been undergoing from 2021 when hospitalized and continuing.
4) Did you have a sleep study pre-Covid that indicated you didn't have it pre-Covid? Curious because I do not think I have sleep apnea but docs have another sleepy study scheduled in case it has manifested post Covid. I was prescribed Gabbapentin for sleep but it did nothing for me. Docs wrote another script for both sleep and nephropathy but I did not fill the script because of past experience with its lack of results for my issues.
5) I have another pulmonary function test and 6 minute walk test to schedule. Have been putting them off because of very, very, severe shortness of breath and extreme PEM that comes with taking the test. I do not have restrictive airway disease, but Covid caused severe lung damage including a collapsed lung. Still have opacification and will be asking for new scans to look for improvement. Docs have me scheduled for pulmonary rehab (exercises...ugh) to strengthen lungs. No specific treatment for the opacification recommended yet.
6) I have the severe aches and pains. They are specific to LC and likely due to inflammation but I have not had any tests with a diagnosis of inflammation . What tests did you undergo for the docs to diagnose the inflammation or did the docs just assume there was inflammation because of your symptoms? What med did they prescribe for the inflammation? Has it helped? How long do you have to stay on it until inflammation is "cured"?

Sorry, lots of questions, but since the docs are still learning about LC and don't have the answers, I'm trying to get as much information from my fellow survivors. Thanks!

I was prescribed massive amounts of Ibuprofen and Tylenol to address but did decided to stop taking the Ibuprofen because of the damage it can cause the liver. Covid caused enough damage to my organs.