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Anyone had a problem with neuropathy after receiving the vaccine?

Posted by cue @cue, Feb 15, 2021

I am 85 with small fiber neuropathy that is getting worse. My neurologist thought it would be a good idea for me to wait with the covid vaccine and not be first in line to see how it affected other people with neuropathy. Probably because it is a new technology. Has anyone had a problem with neuropathy after receiving the vaccine? If so, which vaccine?

Interested in more discussions like this? Go to the Neuropathy Support Group.

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hello2 | @hello2 | Oct 9, 2023
In reply to @danye1 "How long after getting the 2023 updated vaccine did it take for your SFN symptoms to..." + (show)
Profile picture for danye1 @danye1

How long after getting the 2023 updated vaccine did it take for your SFN symptoms to subside? I am 5 days out without noticing my exacerbated symptoms improving.

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It never went away. I find if you don't move your toes, it's not as bad.

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hello2 | @hello2 | Oct 9, 2023
In reply to @dinawashere "I have symptoms everyday and flare ups that last a day or but this time it..." + (show)
Profile picture for dinawashere @dinawashere

I have symptoms everyday and flare ups that last a day or but this time it was seven days of relentless pain and burning. Still I’m not sure what happened. Was it both vaccines at the same time or was it something entirely different? I never had any issues with my vaccinations before. Hope you get relief soon!

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Same to you!
Same to you

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hello2 | @hello2 | Oct 9, 2023
In reply to @dinawashere "Hi thanks for reaching out! Yes it did subside thank goodness!" + (show)
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Hi thanks for reaching out! Yes it did subside thank goodness!

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Lucky you!!!!

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sheilarob116 | @sheilarob116 | Oct 10, 2023

I had my last booster for covid around the end of 2022, making 2 vaccines and 3 boosters. I developed Neuropathy several months later. Starting in my toes and feeling like there was paper between my toes when I curled them under. It seems to have spread along my feet almost to my heels and the area is numb. I am not sure if vaccines or not, but I dont think I will be having any more shots just in case. I am one of the lucky ones I guess because it is not painful. I do have arthritis all over and suffer with that, so thankful the Neuropathy is not painful. I have seen a Neurologist and I go on Oct 19 for them to do a Electromyography Test.. where they are going to stick needles in my muscles at rest and when contracting... not looking forward to that, but hopefully get some answers to some problems. I am 79 y

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swilkins1974 | @swilkins1974 | Oct 10, 2023

So my husband received the 2nd dose of Moderna and the inside of his mouth on the left side went numb. It spread up into his nose and down to his chin. Lasted months, went away for about 8 weeks. Came back, went away, came back and stayed. He also had shock wave type feelings in his mouth. Doctors said not from vaccine. Spoke to a friend who is a naturopath, said his MIL had the same thing told her to take magnesium. So my husband tried it. 200 mg a day of Magnesium Bisglycinate. In about 10 days is started to subside. Gone completely now. Coincidence maybe, but worth a try.

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pacer3702 | @pacer3702 | Oct 10, 2023

For those seeking information about SFN and other neurological injuries from the Covid vaccines, the Facebook group Neuro V Long-Haulers and React19.org are great sources of information and support. The V in Neuro V Long-Haulers is necessary to avoid the Facebook censors even though the site is not political and exists to share information and resources.

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rayjay535353 | @rayjay535353 | Oct 10, 2023
In reply to @pacer3702 "I developed sensory and motor peripheral neuropathy after the Pfizer vaccine. My outstanding peripheral neurologist agrees..." + (show)
Profile picture for pacer3702 @pacer3702

I developed sensory and motor peripheral neuropathy after the Pfizer vaccine. My outstanding peripheral neurologist agrees the vaccine was the likely cause. My deep knees reflexes have returned 2 years later and I am slowly improving overall. While the initial vaccines saved many lives, they also seriously injured many people. After considerable research, I believe the government is not being transparent about the true serious adverse reaction rate.

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I would find a new Neurologist.

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NJ Ed | @njed | Oct 11, 2023
In reply to @sheilarob116 "I had my last booster for covid around the end of 2022, making 2 vaccines and..." + (show)
Profile picture for sheilarob116 @sheilarob116

I had my last booster for covid around the end of 2022, making 2 vaccines and 3 boosters. I developed Neuropathy several months later. Starting in my toes and feeling like there was paper between my toes when I curled them under. It seems to have spread along my feet almost to my heels and the area is numb. I am not sure if vaccines or not, but I dont think I will be having any more shots just in case. I am one of the lucky ones I guess because it is not painful. I do have arthritis all over and suffer with that, so thankful the Neuropathy is not painful. I have seen a Neurologist and I go on Oct 19 for them to do a Electromyography Test.. where they are going to stick needles in my muscles at rest and when contracting... not looking forward to that, but hopefully get some answers to some problems. I am 79 y

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@sheilarob116 Relax....I've had the EMG tests done a few times and it sounds worse than what it is. You're looking for answers and this is part of the process, wish you the best. Go in and relax, that is key.

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rnlorena | @rnlorena | Oct 11, 2023
In reply to @sheilarob116 "I had my last booster for covid around the end of 2022, making 2 vaccines and..." + (show)
Profile picture for sheilarob116 @sheilarob116

I had my last booster for covid around the end of 2022, making 2 vaccines and 3 boosters. I developed Neuropathy several months later. Starting in my toes and feeling like there was paper between my toes when I curled them under. It seems to have spread along my feet almost to my heels and the area is numb. I am not sure if vaccines or not, but I dont think I will be having any more shots just in case. I am one of the lucky ones I guess because it is not painful. I do have arthritis all over and suffer with that, so thankful the Neuropathy is not painful. I have seen a Neurologist and I go on Oct 19 for them to do a Electromyography Test.. where they are going to stick needles in my muscles at rest and when contracting... not looking forward to that, but hopefully get some answers to some problems. I am 79 y

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I had EMG and I didn’t think it was bad.

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lreitman | @lreitman | Oct 11, 2023

I have neuropathy due to damage to my sciatic nerve. I took the Covid vaccine last week and the pain has increased significantly. This did not happen with my past vaccine booster.

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