Anyone had a problem with neuropathy after receiving the vaccine?

Posted by cue @cue, Feb 15, 2021

I am 85 with small fiber neuropathy that is getting worse. My neurologist thought it would be a good idea for me to wait with the covid vaccine and not be first in line to see how it affected other people with neuropathy. Probably because it is a new technology. Has anyone had a problem with neuropathy after receiving the vaccine? If so, which vaccine?

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Profile picture for jlander @jlander

I also have the same concerns, except I was diagnosed with erythromelalgia in 2018. It started in 2017, it then became dormant the fall of 2018, but surfaced again this past November 2020 and I have had flare since then. I have not resorted to medications other than aspirin, a topical cream and ice pack but may be looking into other medications after I give it another few months to see if it gets under control again. This still all new to me! I am 74. I have read a lot of comments on erythromelalgia and understand my pain and flare is not as bad as many people face but it is still there. I have wondered if anyone with neuropathy and/or erythromelalgia (specifically) has received the Covid vaccine and what has been your results. Is there a erythromelalgia area I should be posting to instead? I am new to this Mayo site. Thank you.

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If you don't want to die from Covid, you'll get the vaccine. Your choice.

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I just read that 90% of people who are dying from Covid now are over 65. I would rather take my chances with the vaccine rather than take my chances with having Covid.

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Profile picture for as143 @as143

I have neuropathy caused by DADS which is a variant of CIDP. The symptoms began within 2 months of getting my first two Pfizer vaccines and progressed over the next year or so. I am convinced that is what caused all of this though it has not been confirmed. I went on to get the first booster before making the connection as my symptoms were somewhat mild at that point. It was after the booster that symptoms really took off and changed my life, forcing me into early retirement. I refuse to get any more Covid vaccines unless/until I am 109% guaranteed they did not cause my illness. Not only that I refuse any vaccine that is not absolutely imperative. This illness is hell!

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I am almost 99% sure that the Covid vaccine is behind a lot of my symptoms but the doctors aren't saying anything about that.
I have full body trunk legs arms hands feet peripheral neuropathy, they call it idiopathic , which means they don't know. I know how you feel and everyone out there that's experiencing what they think is a side effect of the vaccine.

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Profile picture for pippy023 @pippy023

I am almost 99% sure that the Covid vaccine is behind a lot of my symptoms but the doctors aren't saying anything about that.
I have full body trunk legs arms hands feet peripheral neuropathy, they call it idiopathic , which means they don't know. I know how you feel and everyone out there that's experiencing what they think is a side effect of the vaccine.

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I developed sensory and motor peripheral neuropathy after the Pfizer vaccine. My outstanding peripheral neurologist agrees the vaccine was the likely cause. My deep knees reflexes have returned 2 years later and I am slowly improving overall. While the initial vaccines saved many lives, they also seriously injured many people. After considerable research, I believe the government is not being transparent about the true serious adverse reaction rate.

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Profile picture for txflower2023 @txflower2023

Also me. Hugs I trust none of vaccines for a friend was told one set of ingredients, I asked for a sample to test and got a whole set of other answers. Each one has to deal with their own. I fear not flu, covid, RSV, shingles, hepatitis, pneumonia etc for I am from pioneer stock. My beloved mother survived something and passed on wonderful immunity to her kids. The vaccines would removed that immunity.

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txflower,

Vaccines don't remove immunity.

This kind of talk is harmful.

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I can absolutely say that while I had COVID (had vaccines) I developed neuropathy with the horrible pains streaking up my legs and still have it and guess will always have it. What do any of you do when the pain is really terrible?
Tramadol just takes the edge off of the shooting pain; but, it still is there. So far I have tried the Boston Scientific SCS trial (no improvement) Saluda (no improvement) an epidural (no improvement) have any of you found ANYTHING that will help? Are you taking ie Pregabalin during the daytime also-if so how mg.?

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I had Covid before it was announced as a new virus. Thought it was a bad flu. Got over it took vaccine when it was available. I started getting symptoms almost a year later of diabetes, neuropathy, Glaucoma worsened, and fibromyalgia. Got Covid again and it is now Long Covid. I believe Covid and the vaccine brought out these diseases which were in my body. My immune system was compromised so I will not take vaccine. I’m 73. I believe the AARP has info on side effects. You also need to research for yourself on sites like Mayo Clinic and Others. I am also very susceptible to side effects. My doctor believes I shouldn’t take it either. Everyone is different. I don’t believe things are black and white but what is suitable for you.

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Profile picture for bettyg81pain @bettyg81pain

I can absolutely say that while I had COVID (had vaccines) I developed neuropathy with the horrible pains streaking up my legs and still have it and guess will always have it. What do any of you do when the pain is really terrible?
Tramadol just takes the edge off of the shooting pain; but, it still is there. So far I have tried the Boston Scientific SCS trial (no improvement) Saluda (no improvement) an epidural (no improvement) have any of you found ANYTHING that will help? Are you taking ie Pregabalin during the daytime also-if so how mg.?

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I 300 mg Gabapentin 3X a day and Cymbalta 60 mg 2X a day. I have nerve pain all over my entire body.

I was on Lyrica but the Gabapentin seems to be helping more. I just wish they could take out the nerves that are giving us so many problems. But that's impossible I'm afraid.

Good Luck to you.

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Profile picture for bettyg81pain @bettyg81pain

I can absolutely say that while I had COVID (had vaccines) I developed neuropathy with the horrible pains streaking up my legs and still have it and guess will always have it. What do any of you do when the pain is really terrible?
Tramadol just takes the edge off of the shooting pain; but, it still is there. So far I have tried the Boston Scientific SCS trial (no improvement) Saluda (no improvement) an epidural (no improvement) have any of you found ANYTHING that will help? Are you taking ie Pregabalin during the daytime also-if so how mg.?

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My nerve pain is much better now 2.5 years after the Pfizer vaccines. I'm able to control it at night using 5% Lidocaine patches available by prescription. I'm not sure these would have helped at the height of my injury, but it would be worth a try. Like you, my nerve pain could not be controlled with Tramadol. Out of desperation, I discovered the nerve pain and numbness in my feet and calves was worsened by sitting. I therefore avoided sitting completely for 3 months and had to take medical leave. If not for that, I believe I would eventually have been hospitalized. I believe the dorsal root ganglion neurons near my spine were also under autoimmune attack, which could explain the unusual intolerance for sitting. My peripheral neurologist did not disagree that this could be a possible explanation. I know it sounds weird, but you could try avoiding sitting to see if the nerve pain then becomes manageable.

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Has anyone had the new Comirnaty vaccine from pfizer yet?

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