COVID vaccines and neuropathy

I can absolutely say that while I had COVID (had vaccines) I developed neuropathy with the horrible pains streaking up my legs and still have it and guess will always have it. What do any of you do when the pain is really terrible?
Tramadol just takes the edge off of the shooting pain; but, it still is there. So far I have tried the Boston Scientific SCS trial (no improvement) Saluda (no improvement) an epidural (no improvement) have any of you found ANYTHING that will help? Are you taking ie Pregabalin during the daytime also-if so how mg.?

I had Covid before it was announced as a new virus. Thought it was a bad flu. Got over it took vaccine when it was available. I started getting symptoms almost a year later of diabetes, neuropathy, Glaucoma worsened, and fibromyalgia. Got Covid again and it is now Long Covid. I believe Covid and the vaccine brought out these diseases which were in my body. My immune system was compromised so I will not take vaccine. I’m 73. I believe the AARP has info on side effects. You also need to research for yourself on sites like Mayo Clinic and Others. I am also very susceptible to side effects. My doctor believes I shouldn’t take it either. Everyone is different. I don’t believe things are black and white but what is suitable for you.

I 300 mg Gabapentin 3X a day and Cymbalta 60 mg 2X a day. I have nerve pain all over my entire body.

I was on Lyrica but the Gabapentin seems to be helping more. I just wish they could take out the nerves that are giving us so many problems. But that's impossible I'm afraid.

Good Luck to you.

My nerve pain is much better now 2.5 years after the Pfizer vaccines. I'm able to control it at night using 5% Lidocaine patches available by prescription. I'm not sure these would have helped at the height of my injury, but it would be worth a try. Like you, my nerve pain could not be controlled with Tramadol. Out of desperation, I discovered the nerve pain and numbness in my feet and calves was worsened by sitting. I therefore avoided sitting completely for 3 months and had to take medical leave. If not for that, I believe I would eventually have been hospitalized. I believe the dorsal root ganglion neurons near my spine were also under autoimmune attack, which could explain the unusual intolerance for sitting. My peripheral neurologist did not disagree that this could be a possible explanation. I know it sounds weird, but you could try avoiding sitting to see if the nerve pain then becomes manageable.

Has anyone had the new Comirnaty vaccine from pfizer yet?

To be blunt, I'm calling b.s. No one is handing out samples and you're not testing them. Nothing takes away immunity except time and old age. There are people (like your mother?) who do have super immunity due to certain T-cells (research ongoing), but the vaccine absolutely does not remove but only adds to immunity. I just read an incredible article in the NY Times on how immunity forms, increases and wanes. Unfortunately I cannot share it as it is for subscribers only (yes, I tried anyway). I can say that vaccines + exposure to viruses both contribute to the immune system. Those who thought herd immunity would happen were wrong. The virus mutated too rapidly which is why the vaccines need to evolve as well.

I have read studies (forgive me for not taking the time to find the links) about this very issue. Yes, a very small percentage of people will develop neuropathy after the injection. However, these people are already predisposed due to genetics and would have also developed neuropathy upon becoming infected with covid. In fact there is a greater chance of developing neuropathy with covid. I'm glad your symptoms seem to be improving. My neuropathy is chemo induced and will probably never improve.

Weird! I’m new here. I don’t like these forums (no offense) but I’m getting desperate and I belong to one other one called “stuff that works “ (ironically nothing works) anyway all they talk about is how Covid and/or vaccines did this or that and I suffer from sfn so horribly for over a decade now that I never thought about the issue. But last week I got my COVID booster and my flu vaccine at the same time and it was over a week of a really bad flare up where I couldn’t even wear pants from the burning. So I thought hmmm? Maybe it was the covid booster or the fact I got both vaccines at the same time? Who knows? More mystery, more thoughts on a disease that has no cure and no treatment.

A gentle reminder about the Community Guidelines (https://connect.mayoclinic.org/blog/about-connect/tab/community-guidelines/). These Community Guidelines offer 12 short rules of conduct that help keep the Mayo Clinic Connect community safe, supportive, inclusive, and respectful.

Hi @dinawashere Welcome to Mayo Connect. The goal of this forum is to be a kinder, gentler place than most of the online support group formats. Occasionally discussions get a little heated and we strive to bring that back under the guidelines of respect and civility. So I hope that you’ll feel welcome and find the support you need here.

You may be right about your Covid booster or any vaccine actually, allowing for a flare up of some pre-existing conditions. A few years ago I had a serious spinal cord inflammation not related to Covid or the vaccine. With treatment and therapy my spinal cord healed and back to normal.
About two weeks after the first vaccination I was alarmed one morning when I woke up with some of the same initial symptoms of my demyelination of my spinal cord incident a few years before. So I quickly called my bone marrow transplant team at Mayo to let them know. My doctor scheduled an MRI and my neurologist confirmed that my spinal cord was ok. Pfhew. Speaking with the neurologist he did mention that the medical community was seeing evidence at that time (early 2020) that some patients with pre-existing neurological conditions such as neuropathy, Bells Palsy, Shingles, etc., were experiencing some minor symptoms of their disease which disappeared within 2 weeks to a month. My symptoms did go away within two weeks. When I get a Covid vaccination or flu shot…and recently an MMR vaccine, each time I get vague symptoms again but they go away.

Has your flare up gotten any better for you?