Anyone had a problem with neuropathy after receiving the vaccine?

To be blunt, I'm calling b.s. No one is handing out samples and you're not testing them. Nothing takes away immunity except time and old age. There are people (like your mother?) who do have super immunity due to certain T-cells (research ongoing), but the vaccine absolutely does not remove but only adds to immunity. I just read an incredible article in the NY Times on how immunity forms, increases and wanes. Unfortunately I cannot share it as it is for subscribers only (yes, I tried anyway). I can say that vaccines + exposure to viruses both contribute to the immune system. Those who thought herd immunity would happen were wrong. The virus mutated too rapidly which is why the vaccines need to evolve as well.

I have read studies (forgive me for not taking the time to find the links) about this very issue. Yes, a very small percentage of people will develop neuropathy after the injection. However, these people are already predisposed due to genetics and would have also developed neuropathy upon becoming infected with covid. In fact there is a greater chance of developing neuropathy with covid. I'm glad your symptoms seem to be improving. My neuropathy is chemo induced and will probably never improve.

Weird! I’m new here. I don’t like these forums (no offense) but I’m getting desperate and I belong to one other one called “stuff that works “ (ironically nothing works) anyway all they talk about is how Covid and/or vaccines did this or that and I suffer from sfn so horribly for over a decade now that I never thought about the issue. But last week I got my COVID booster and my flu vaccine at the same time and it was over a week of a really bad flare up where I couldn’t even wear pants from the burning. So I thought hmmm? Maybe it was the covid booster or the fact I got both vaccines at the same time? Who knows? More mystery, more thoughts on a disease that has no cure and no treatment.

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Hi @dinawashere Welcome to Mayo Connect. The goal of this forum is to be a kinder, gentler place than most of the online support group formats. Occasionally discussions get a little heated and we strive to bring that back under the guidelines of respect and civility. So I hope that you’ll feel welcome and find the support you need here.

You may be right about your Covid booster or any vaccine actually, allowing for a flare up of some pre-existing conditions. A few years ago I had a serious spinal cord inflammation not related to Covid or the vaccine. With treatment and therapy my spinal cord healed and back to normal.
About two weeks after the first vaccination I was alarmed one morning when I woke up with some of the same initial symptoms of my demyelination of my spinal cord incident a few years before. So I quickly called my bone marrow transplant team at Mayo to let them know. My doctor scheduled an MRI and my neurologist confirmed that my spinal cord was ok. Pfhew. Speaking with the neurologist he did mention that the medical community was seeing evidence at that time (early 2020) that some patients with pre-existing neurological conditions such as neuropathy, Bells Palsy, Shingles, etc., were experiencing some minor symptoms of their disease which disappeared within 2 weeks to a month. My symptoms did go away within two weeks. When I get a Covid vaccination or flu shot…and recently an MMR vaccine, each time I get vague symptoms again but they go away.

Has your flare up gotten any better for you?

I never take shots(flu, Covid, etc.)
I read that is wise not to ingest any sugar, salt or caffeine. I'm glad that I quit drinking coffee many yrs ago.
Unfortunately, before I found this out: I ordered a 12pk of Dr Pepper online from Walmart with a Halloween pkg of tiny Twix bars and a Halloween pkg of tiny Reeses cups.
I will give the drinks to my caregiver, since she likes them.
I haven't had any sugar or caffeine since I stopped being able to shop. I have a very kind friend at my church who buys the groceries for me. He charges them. I then reimburse him.
I am SO blessed.

Hi thanks for reaching out! Yes it did subside thank goodness!

I woke up two days after I retired and I had full onset of pinpricks all over including my eyes. I went to the neurologist and had a bunch of tests. The skin biopsy showed I had small nerve fiber idiopathic. I had two Moderna vaccines in January and about 5 weeks later is when I woke up with the pinpricks. It was within the 6 week time frame for reactions to happen if it was going to that I had the pinpricks. I don’t know if that caused it. I asked the neurologist how many patients that he took care of that had this happen. His reply was none it’s rare. I will not know for sure if the vaccine caused it. I had 20 tubes of blood checking for many things which were negative. No one in my family has small nerve fiber. Because small nerve fiber can cause GI problems or heart problems has anyone gotten the GI problems or heart issues before being diagnosed with small nerve fiber?

How long after getting the 2023 updated vaccine did it take for your SFN symptoms to subside? I am 5 days out without noticing my exacerbated symptoms improving.

I have symptoms everyday and flare ups that last a day or but this time it was seven days of relentless pain and burning. Still I’m not sure what happened. Was it both vaccines at the same time or was it something entirely different? I never had any issues with my vaccinations before. Hope you get relief soon!