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Anyone here dealing with peripheral neuropathy?

Neuropathy | Last Active: 6 days ago | Replies (2916)

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@aliskahan

Hi @rabbit10 and welcome to Connect! I want to connect you with @martid, and @grandma41 who have both recently written about peripheral neuropathy. They both had different causes of their diagnosis and can discuss their experiences with you.

How long have you been dealing with peripheral neuropathy?

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Replies to "Hi @rabbit10 and welcome to Connect! I want to connect you with @martid, and @grandma41 who..."

When I clicked on those topics I was told they did NOT EXIST. 

BAD Link in my post above - it looks like the page is not available from outside of the Facebook group. The following link goes to the protocol list and has a link to join the group.

http://theprotocolworks.blogspot.com/2017/03/protocol-links-to-purchase-instructions.html

Sorry for the confusion!
John

@materk sorry for the bad link - try this http://theprotocolworks.blogspot.com/2017/03/protocol-links-to-purchase-instructions.html. The other page must not be available outside of the closed Facebook group.

Hello @caf132 - There is quite a bit of information available about the toxicity of Vitamin B6. It could be a great question for your doctor but I would do the research yourself which I think will help if you have a discussion with your doctor. The following link has some good information on the toxicity:

http://www.easy-immune-health.com/vitamin-b6-toxicity.html

Also the National Institutes of Health's page has a really good overview of B6:
https://ods.od.nih.gov/factsheets/VitaminB6-Consumer/

I shy away from any megavitamins myself because a lot of them including some daily vitamins have a high level of b6 and most people get enough B6 through food intake.

John

The pain of neuropathy is only in my feet, though I feel its effects in my hands and other places. I put thick insoles in all my shoes, including my slippers, which really makes a difference. I never walk without slippers or shoes. Socks at night help with the pain of rubbing against the sheets, and a blanket lifter keeps the bedding off my feet. I use Lidocaine cream at bedtime, to numb the painful parts. It works for about 2 hours, long enough to get to sleep.

I recently had a spinal cord stimulator implant, and the pain is significantly better, until later in the day if I've been walking a lot.

Jim

@georgiegirl

I almost always do the driving, and I use cruise as much as possible, so I can move my feet around. The pain became intense in 2015. In October of that year, we took a road trip from Oregon to New Hampshire, to visit our daughter, and visited my sisters and our son along the way. I had a fleece blanket rolled in front of my seat, to rest my feet on it. That was a most painful 5 week trip, but we enjoyed seeing our family, and being tourists in as many National Parks as we could. We just couldn't do a lot of walking.

I can't put my feet flat on the floor, either. I'm always changing position, feet on their sides, on the heels with toes pointed up, or feet on a chair.

Another thing that hurts is crossing my legs or ankles. Within a few seconds, the burning pain and electricity kick in. The doctors know not to touch my feet. Being in the hospital is a challenge, too. Every nurse wants to cover my feet. I discovered that I can't tolerate those wraps they put on your legs, and pump up every little bit. The first pump was the last. That really hurt!

I've always raised my knees to read in bed, but that ended because it means putting my feet flat on the bed.

Neuropathy certainly requires a lot of adapting, doesn't it.

Jim

@lynsorensen

Where would I get CBD oil capsules?

Jim

HI @lynsorensen, where do u live?

You can order them online. For example Charlotte's Web makes them and can shop to all 50 states. Google "Charlotte's Web".

Hi @geek_girl do you buy her products from charlottes web, and are they any good. What kind of meds were you on before if you do not mind me asking. And is charlottes Webb the only thing you take now? I have severe neuropathy and foot drop. I am in constant pain all the time. I was on opioids for years and that did help, but they took me off of them and now I am on something called suboxone. It keeps the pain around a 6 to 7. Not good. It would be wonderful if her products worked. Please let me know. Thanks.