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Anyone here dealing with peripheral neuropathy?

Neuropathy | Last Active: 2 days ago | Replies (2974)

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@aliskahan

Hi @rabbit10 and welcome to Connect! I want to connect you with @martid, and @grandma41 who have both recently written about peripheral neuropathy. They both had different causes of their diagnosis and can discuss their experiences with you.

How long have you been dealing with peripheral neuropathy?

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Replies to "Hi @rabbit10 and welcome to Connect! I want to connect you with @martid, and @grandma41 who..."

GET *EMG TESTED!*<br><br>

Welcome ridge runner you have found a great group of helpful people. Did you have a question about the TENS machine? I use one when needed. I put the pads where the pain is and set it as high as is comfortable. Where I had constant pains has now stopped. Haven't had to use it for a while now. Hope this helps. <br><br>

So good to hear from you again @rabbit10. Can you believe that the simple question "Anyone here dealing with peripheral neuropathy?" that you put forward last April now has over 230 responses?

It was actually another new member, @twinky, who was asking about the TENS machine. You can see her message and questions here:
https://connect.mayoclinic.org/discussion/anyone-here-dealing-with-peripheral-neuropathy/?pg=1#post-232354

How are you doing Rabbit?

I am glad you mentioned this. I had forgotten about it. Yes it does seem to help. I got the wise idea one time that if I grated the soap and put it on the area of where your feet were that it would help more. Well it did,but the grated soap also ate a hole in my sheet so don't try that. I plan on putting soap on my sheets tonight.

Hi Joannem, if you saw my note on putting soap UNDER the sheet for RLS no need to do anything to the soap. I sleep in a double size bed, but the intact BAR of soap is even on the other side of the bed. It is the same bar I've used for years. The bar is now about half the size it was originally, but that is only from it being in the bed for so many years. Not sure but maybe 20, 30 or more years! As I mentioned, the MD who wrote that i column where that suggestion was, admits no one knows why it works, but many people responded that it surely workesfor them. I have no idea at this time the brand of soap I used. @gailfaith

taking gabapentin 300mg qid. it helps for the shooting pains that seem to go along with Neuropathy.

I agree with your comment, but please don't YELL using all caps. it's rude.

I agree @medic7054. ALL CAPS is considered shouting in online etiquette. In fact our community guidelines discourage the use of all caps https://connect.mayoclinic.org/community-guidelines/

However, having said that, one member pointed out to me that she writes in all caps because she has poor eye sight due to a degenerative condition. This was not something I had considered and she didn't realize that all caps was considered shouting. Thus I taught her how to increase the font size on her computer (Ctrl +), and she stopped using all caps.

Ive taken Gabapentin for several yrs, have tried various doses. Its helped a lot, or not much depending....on what excatly?? Then added Cymbalta wich really did seem to help a lot. Note that nothing makes the pains go away completly. But if I can do what I want/need to do, then I'm happy.
Of course, there is always side effects with meds. Gradually I noticed by body was on fire, on/off. Then the burning was more "on" than off, then it was all the time. Side effects I was told...so I tried to be an even more "patient" patient. Upon consulting my pharmacist again, I was told Cymbalta could be the culprit...I stopped it. The burning subsided & now is gone. Only, how to deal with neuropathic after that?
Whish I could be more help, those 2 drugs can bring relief, they have 4 me for a while. Be mindful of what ur body is telling u, to know when enough is enough before it becomes too much.
Take good care.

I have suffered with pn for 10 years.