RE:  Your question about Charlotte's Web on the internet:   I have been getting similar medications from another internet source and it has been a miracle.   I have been on CBD capsules and edibles for two months now and the results have been amazing.  Instead of living in level 5 - 6 pain around the clock (the dull ache inside the bones as well as the occasional sharp stabbing pains in the muscles and muscle cramps and spasms), I now down to a fairly stable level 2.  The pain is so much milder now that I can push it out of my mind and keep going with the good things in life.  My good results come from using a high CBD level medication with little or no hallucinogenic side effects.  It makes me so sad to see one posting after another talking about the problems with taking the prescription pain killers.  I, too, was hesitant to try something other than a doctor's prescription to a big pharma produced pill - and at the age of 79 it was quite a daring adventure for me.  But I was in such agony most of the time, it was find a solution or just lose the will to keep trying to stay alive. It was my two sons (both middle-aged men, highly successful, and well-regarded in the communities where they live) who convinced me to try based on their own positive experiences coping for years with school sports injuries using holistic medications.

Very much so. 2 years with my BP injury and still no resolution. I'm, unfortunately, on narcotics. No medical relief..... YET.

@saragroves

It would be nice if we could have something other than narcotics for our pain. But, for some of us, it's the only thing that helps. So, I guess it's a mixed blessing. Bad because of the abuse of them, good because they work. I don't apologize for taking what I do - I take a relatively low dose of MScontin - as long as it gives a level of relief and doesn't interfere with my ability to function. My doctors exhausted all the other possible meds, and the morphine is the only thing that touched the neuropathy pain.

Jim

Happy that you found something that works I did the soap no work i.e.-did the tens unit don 't know why but ended up in emergency room painful stiff neck did not work for me...

I have chemo neuropathy, could you give me the name of the supplements your friends on Facebook. Used.

Hi @jersey, I wasn't sure who you meant for your message but if it was me - I use the vitamins and supplements listed here:
http://solutions2pnpd.com/

They do have their 501c3 status. I don't know whether it will work for you but I can share how it's helped me. If you join their closed group you can read the success stories they've had. My small fiber peripheral neuropathy has been going on for over 20 years before I finally sought out a diagnosis in the spring of 2016. I only have numbness with my PN and when I started taking the vitamins and supplements in September 2016 the numbness was in both legs to just below the knees. By December the numbness was down some to just above the ankles - it's subjective on my part though. I haven't seen any additional improvements since then and I'm still taking the protocol of supplements because it may not make the numbness go away totally but does seem to have stopped it's progress which is what my neurologist told me was going to happen. It would keep getting worse until it affect the autonomic nervous system (I think is what he said).

Whatever you decide, I would recommend reading through all the discussions and material they have and it's a lot. Then would discuss it with your doctor.

John

I have had neuropathy for years. It is an awful disease and I feel for fellow sufferers. I have a nerve stimulator that helps me some especially on the soles of my feet. Otherwise I have tried lidocaine ointment on my feet. I also take Lyrica and Cymbalta which help with the neuropathy in my legs and hands.

I think we all have to find our own relief. In 6 years not one of the 9 specialists I saw has really helped the pain of my peripheral neuropathy. I have idiopathic neuropathy. Numb from toe to knees, sometimes freezing , sometimes burning but chronic pain. I tried cymbalta, gabapentin, anitriptaline. All the side effects were unbearable. The neurology tests showed yes indeed I had it . I had to find my own relief. What works for me is mostly meditation(I had practiced many years before neuropathy,) counselling for anxiety and depression,cannabis for insomnia, Saran Wrap around calves and feet even takes numbness away. Weird but try it. I wish the pharmaceuticals would have worked but I learned a lot and most days am content and happy. When flare up comes ,warm bath and Saran Wrap. Very fortunate for me I live in Canada and we have health coverage. Also we have good pain clinics that teach about pain. I have also found anything that bothers my nerves bothers my emotions as well. Too hot, too cold, too windy, people who antagonize me, dumb politics you name it. gentle and middle way seems to guide me through this terrible disease. Appreciation Charly

Hello @charly welcome to Connect. I do agree with you that we all have to find our own relief. I also have idiopathic small fiber peripheral neuropathy but I have no pain with it. I just have numbness and tingling with my neuropathy. When I received my diagnosis, the neurologist told me there is nothing that treats the numbness. All of the drugs on the market that address the pain come with their own associated side affects which can be as bad as the pain itself.

I'm glad you found some treatments that work for you. Thank you for sharing the tip about Saran Wrap. It's something that doesn't cost much and if it works for you it's a great solution.

John

Just realizing that I have it...I drop things because I dont know I am hanging on to them. I also broke my wrist 2 years ago and had s minor stroke 20 years ago...have Dup..???contracture in one finger...a mess. anything else I should watch for?