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Anyone here dealing with peripheral neuropathy?

Neuropathy | Last Active: Dec 8 11:43am | Replies (3052)

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@aliskahan

Hi @rabbit10 and welcome to Connect! I want to connect you with @martid, and @grandma41 who have both recently written about peripheral neuropathy. They both had different causes of their diagnosis and can discuss their experiences with you.

How long have you been dealing with peripheral neuropathy?

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Replies to "Hi @rabbit10 and welcome to Connect! I want to connect you with @martid, and @grandma41 who..."

Hello @twinky, I too saw the ad for Nerve Renew when I started looking for things to help with my peripheral neuropathy. It made sense from some of the ingredients but I'm still a little suspect. I also have a little concern about the amount of B6 listed in the ingredients based on some research I've done in the past.

Mayo Clinic on B6 Safety, Side Effects and Warnings - http://mayocl.in/2qK67Ov
More info on B6 toxicity - http://bit.ly/2gu54w3

Here's a couple of topics that may help with your decision on trying it:

Mayo Connect members tips avoiding scams and snake oil cures
http://mayocl.in/2gcdDNt
FDA's HEALTH FRAUD PAGE
http://bit.ly/2n6kpHr
John

@Hi Jodi! I was so glad to hear back from you! ReQuip is a prescription drug originally subscribed for Parkinson's Diseaseor any other spasmotic disease of the nervous. I don't know much abour ReQuip, except to know it calms and relaxes the spasms. You start out with a low dose,(I also began Valium at the same time) and work up to a dose that finally helps you.ReQuip is very good, but my doctor had to keep increasing the dosage. Requip works on the nerves that cause those awful spasms.That's about all I know at the moment. Thank God you had a peaceful night--Praise the Lord for that! Why not a bar of soap, I am willing to try Even banana peels under my pillows instead of drugs! Good luck, Jody. Hope you get to try ReQuip, it is a really good drug at the right dosage. More good nights ahead, Virtual Hugs, Peggy

Medical marijuana has given me an almost pain free life after years of doctors putting me on opioids. I get the CBD oil capsules which is NOT hallucinogenic at all. I take one each morning with breakfast. And I got a jar of the ointment to massage any 'hot spots' that occur. When I get that sharp pain in my leg or shoulder, I rub it in and the pain is gone in 10 minutes.

I am dealing with neuropathy in my feet and finger tips. I take lyrica daily. Have a problem wearing shoes. My neuropathy came from chemo treatment. Would like to know if anyone can recommend help.

Hello @user_ch1df4426, when you have peripheral neuropathy it's really important to take care of your feet because you can't feel them. You probably already know this but just in case there is more information on the following Mayo Clinic page:
http://www.mayoclinic.org/diseases-conditions/diabetes/expert-blog/peripheral-neuropathy/bgp-20056528
I wear socks during the day and at night which helps if I step on something that injures the foot...then I can tell it by the socks. Also, I try to wear shoes that have plenty of toe room which seems to help. Hoping others can jump in if they have some stories to share.

While I don't have chemo induced neuropathy and I do have small fiber peripheral neuropathy with no pain, only the numbness. I take some over the counter natural supplements and vitamins that have helped me. I found it in a neuropathy support group on Facebook. Others in the group that also had chemo induced neuropathy have shared that it has enabled them to get off pain medication once they had been on the supplements for a few months. When trying alternative treatments you should always have a discussion with your doctor first. You can read my story from an earlier post here:
https://connect.mayoclinic.org/comment/65985/bookmark/?ajax_hook=action&_wpnonce=13af2ed380
John

@johnbishop

I have been wearing socks day and night because my feet hurt if they have contact with shoes or bedding, and I never walk without slippers or shoes, and I'm learning which of my shoes I can walk around stores in, and which ones I can't. I'm really thankful for my handicap placard, as it saves me a lot of steps.

When I sit in the recliner, I have to use a footstool so my feet don't just hang off - I'm tall - because that makes them hurt.

Jim

Wow, Your post is the first one I have seen that mirrors some of my symptoms. It's difficult to explain these problems to anyone who has no clue what we're talking about. I have to sleep under bedding that is not tucked in so I can stick my feet out. I have less pain when I am wearing socks. I need to wear slippers or shoes at all times for comfort or to prevent injuries (I stubbed and broke my little toe a few months ago). But I don't like wearing shoes because after a while they make my feet burn and tingle with electricity. Learning which shoes to wear and when is always a concern. Your recliner statement was the kicker - I can't have my feet hang off a chair; they must be in contact with something when I'm sitting. Otherwise the stinging and electricity set in.

When I am in the passenger seat in a car, I can't keep my feet flat on the floor (too much pressure?); they have to stretch out in front of me and connect with the incline up front, and I have to move them around a lot. Thanks for confirming that perhaps my symptoms are real. What to do about them? That's another story.

Thanks, Jim

John, what are some of the over-the-counter supplements that you use? Are they readily available? I just joined the FB group. Thanks for that tip. Looks like it will be helpful.

Hello @georgiegirl, it's really important to read through the group's new member welcome document. It explains the protocol and also has link to the document that has all of the links to purchase the supplements/vitamins on amazon.com. The new member welcome is the pinned post at the top of the groups Facebook page but you can also access it through a web browser here:
http://theprotocolworks.blogspot.com/2017/02/click-and-start-here.html/
There is a also nice list of what to take, when to take included inside of the document. I copied and pasted it into a separate document so I could print it out and then discuss it with my doctor to make sure there is no interaction with any current medications I'm taking. To see all of the stories for members and how it's helped them, go to the groups Facebook page, click the search at the top and type #theprotocolworks in the search box to search the groups posts.

Hoping it works for you too.

John

A doctor told our group that Vit B6 can promote cell growth in cancer cells also. Might not be a good idea to take.