I'm concerned about the new recommended guidelines for opioids. My need is genuine, my dose is low for a chronic pain patient, but I don't want to have to nearly beg every time I see my pain Doctor. Yes I understand that opioids are not the best choice for chronic pain, but I've tried everything else and what I'm on right now works! I haven't had a dosage increase in a long time however every time I've tried to back my dose down the pain is unbearable. I'm so frustrated with it all.
I take 200 mg Tramadol and 900 MG of gabapentin throughout the day. for pinched nerves and arthritis pain. I also take a full aspirin every morning and stil, I cannot walk more than 2 blocks without severe back pain. I am soooo tired. Anybody else who is just fatigued from constant pain?
The thing that takes away the pain the most and helps with the fatigue is an indoor swimming pool. I joined a community center and try to get into the pool 3 times a week. Of course, when I get home I am exhausted but just being somewhere I can move without pain lifts my spirits. What I hate is the way the fatigue from pain has changed my personality. Grumpy, irrational and angry at the world. I don't sleep well since I worry about everything, including the cuts in prescribing opioids since I'm not dying from cancer. Why don't docs understand that pain causes fatigue!<br />
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I'm concerned about the new recommended guidelines for opioids. My need is genuine, my dose is low for a chronic pain patient, but I don't want to have to nearly beg every time I see my pain Doctor. Yes I understand that opioids are not the best choice for chronic pain, but I've tried everything else and what I'm on right now works! I haven't had a dosage increase in a long time however every time I've tried to back my dose down the pain is unbearable. I'm so frustrated with it all.
I agree, I could have said the same thing about my conditions. Even worst for me as a veteran they are trying to pass a law making very difficult if not impossible for veterans to use opioids.<br />
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I wish I could go swimming as I am disabled and swimming is about the only exercise I could do, but the only swimming pool is too far away and too expensive. Also it is not doctors who are restricting opioids although some doctors are involved. <br />
Due to untimely deaths from over doses the thinking is that eliminate opioids and stop the deaths, but in some journals on pain their are studies that show a high rate of suicide among chronic pain suffers. The limiting of opioids is more likely result in increased suicides as well as more suffers going out side the law for dangerous illegal drugs. I do not see anything good coming from these restrictions.<br />
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<p>I have had chronic pain for over 40 years and use strong medicine to fight it. My concern is that there are groups trying to ban opioids for everyone except cancer patients and temporary short term use. 19lin</p>
Hi I have chronic pain since 2015 I go to a pain clinic. I used to be involved in the pain association. I'd love to talk anytime. We can do it right here<br />
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I've had surgeries, injections, nerve burns, multiple medications, psychotherapy, physical therapy, and been thru the pain rehab clinic. The only thing that works is opioids. I'm tired! Tired of doctors that look at me with suspect, tired of the pain. Just so tired. I keep moving, keep going, ride my bike, grocery shop, cook, and once again I'm so tired of it all. I'm NOT suicidal but those thoughts have entered my mind. I SO WISH that medical marijuana was legal so I could try that. I've heard it works well, but I live in a conservative state. I'm trying to get on disability, but have been rejected twice. I now have an attorney that is trying. Enough ranting for tonight but it helps to unload to those that might understand.
Hi I have chronic pain since 2015 I go to a pain clinic. I used to be involved in the pain association. I'd love to talk anytime. We can do it right here<br />
<br />
I can sympathies. There maybe so other things to try so keep checking on new alternatives and I might suggest you write your elected officials as these are the ones who will make the final decision to shut off opioids. I have tried many things including tems units, acupuncture, and other things. I have not tried hypnosis yet, but that is only because I know of on one in my area who does it for pain. You might try counseling, but be aware any threats of self harm could land you in a hospital. Keep trying to find things that help. One of my big issues is to encourage the development of an objective measure for pain. I think this might help a lot of people as well as doctors. If they could objectively measure our pain and how well pain control methods worked or didn’t work it would make it easier to get better treatment for pain.<br />
<br />
<br />
<br />
<br />
<br />
<br />
Sent from Windows Mail
<p>I have had chronic pain for over 40 years and use strong medicine to fight it. My concern is that there are groups trying to ban opioids for everyone except cancer patients and temporary short term use. 19lin</p>
You may have been, but this particular thread has been really active recently, so I moved you over here in hopes you could join the conversation 🙂 Some threads are more active than others, so I wanted you to get the most interaction.
<p>I have had chronic pain for over 40 years and use strong medicine to fight it. My concern is that there are groups trying to ban opioids for everyone except cancer patients and temporary short term use. 19lin</p>
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I'm concerned about the new recommended guidelines for opioids. My need is genuine, my dose is low for a chronic pain patient, but I don't want to have to nearly beg every time I see my pain Doctor. Yes I understand that opioids are not the best choice for chronic pain, but I've tried everything else and what I'm on right now works! I haven't had a dosage increase in a long time however every time I've tried to back my dose down the pain is unbearable. I'm so frustrated with it all.
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4 ReactionsThe thing that takes away the pain the most and helps with the fatigue is an indoor swimming pool. I joined a community center and try to get into the pool 3 times a week. Of course, when I get home I am exhausted but just being somewhere I can move without pain lifts my spirits. What I hate is the way the fatigue from pain has changed my personality. Grumpy, irrational and angry at the world. I don't sleep well since I worry about everything, including the cuts in prescribing opioids since I'm not dying from cancer. Why don't docs understand that pain causes fatigue!<br />
<br />
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Helpful -
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6 ReactionsI agree, I could have said the same thing about my conditions. Even worst for me as a veteran they are trying to pass a law making very difficult if not impossible for veterans to use opioids.<br />
<br />
<br />
<br />
<br />
<br />
<br />
Sent from Windows Mail
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1 ReactionI wish I could go swimming as I am disabled and swimming is about the only exercise I could do, but the only swimming pool is too far away and too expensive. Also it is not doctors who are restricting opioids although some doctors are involved. <br />
Due to untimely deaths from over doses the thinking is that eliminate opioids and stop the deaths, but in some journals on pain their are studies that show a high rate of suicide among chronic pain suffers. The limiting of opioids is more likely result in increased suicides as well as more suffers going out side the law for dangerous illegal drugs. I do not see anything good coming from these restrictions.<br />
<br />
<br />
<br />
<br />
<br />
<br />
Sent from Windows Mail
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2 ReactionsThank you, I though I was in the Chronic pain group?
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1 ReactionI've had surgeries, injections, nerve burns, multiple medications, psychotherapy, physical therapy, and been thru the pain rehab clinic. The only thing that works is opioids. I'm tired! Tired of doctors that look at me with suspect, tired of the pain. Just so tired. I keep moving, keep going, ride my bike, grocery shop, cook, and once again I'm so tired of it all. I'm NOT suicidal but those thoughts have entered my mind. I SO WISH that medical marijuana was legal so I could try that. I've heard it works well, but I live in a conservative state. I'm trying to get on disability, but have been rejected twice. I now have an attorney that is trying. Enough ranting for tonight but it helps to unload to those that might understand.
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Like -
Helpful -
Hug
2 ReactionsI can sympathies. There maybe so other things to try so keep checking on new alternatives and I might suggest you write your elected officials as these are the ones who will make the final decision to shut off opioids. I have tried many things including tems units, acupuncture, and other things. I have not tried hypnosis yet, but that is only because I know of on one in my area who does it for pain. You might try counseling, but be aware any threats of self harm could land you in a hospital. Keep trying to find things that help. One of my big issues is to encourage the development of an objective measure for pain. I think this might help a lot of people as well as doctors. If they could objectively measure our pain and how well pain control methods worked or didn’t work it would make it easier to get better treatment for pain.<br />
<br />
<br />
<br />
<br />
<br />
<br />
Sent from Windows Mail
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Like -
Helpful -
Hug
2 ReactionsYou may have been, but this particular thread has been really active recently, so I moved you over here in hopes you could join the conversation 🙂 Some threads are more active than others, so I wanted you to get the most interaction.
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1 ReactionHow do I get on the thread chronic pain lets talk?
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1 ReactionI don’t know for sure as the moderator came on line and moved me there, contact the people who run the site.