Living with Neuropathy - Welcome to the group

Hi @jeanm1, When you reply to an email notification like you would a normal email, your post will have all this extra coding in it from your mail program. It's best to click the VIEW & REPLY button at the bottom of the email notification and then you can type in the reply box below the post.

Hope this helps!
John

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Sounds like a good plan but is often diffic=
ult since I live in a winter climate.  Getting out for a walk can be co=
ld and hazardous under foot!  So I have taken to stair walking, which i=
s also boring!Sent from my iPhoneOn Jun 4, 2023, at 5:42 PM, Mayo Clinic C=
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I'm interested in finding out what others are doing for this issue. And what they found that works to releave pain

Hi. My name is Jan and I have peripheral neuropathy in my feet. It seems to have been getting worse until just recently when my doctor ordered some blood tests and I found out that I am very high in vitamin B6. I have been taking B6 off and on for a few years but a week ago I stopped. It seems like my neuropathy is slightly better but I'm not sure if it's only in my mind. B6 has been shown to cause naturopathy if you have toxic levels in your blood. Has anyone else had any experience with this being true? Also, some people have neuropathy symptoms just from taking any B6 supplement. Not to worry about B6 you get naturally in foods.

I'm interested in finding out what others are doing for this issue. And what they found that works to releave pain

Hi, I'm Dawn. Diagnosed (after several doctor visits and tests) with peripheral polyneuropathy, which has become much worse over the last year. Have a lot of balance issues and fall fairly frequently. Try to get exercise by going up and down shopping aisles (because I can hang on to the cart and pretend I'm walking somewhat normally), but if I do too much of that, I'm awake all night because of unrelenting pain in my legs. Does anyone else experience that? On Gabapentin, but not sure how much it helps. So glad to find this forum for support and information. What a frustrating diagnosis! The neurologist essentially said, don't know why you have it but that doesn't make much difference - there's not a lot you can do about it.

@imagine1
Hello Dawn,
I read your post and first I want to say I am sorry you have neuropathy, it can very very painful at times and challenging to life. You asked if anyone had experience with gabapentin, I have CIDP and that also comes with a great deal of pain and I have been taking gabapentin for about two years now. I have to say in the beginning it didn’t seem to help much but I have had my dosage increased a few times and now the pain has substantially decreased. One important thing that I have learned is to take the medication routinely as close to eight hours apart as possible.
If I get busy and don’t take the medication on time the pain gets severe and it is difficult to get back under control. I also feel that it took several months
for the pain to subside. I find that being active, attempting to decrease my sugar intake and getting my IGG infusion as scheduled also makes life better. I do hope you fell better in the future. Keep us posted.
Kim